Jump to content

ravenwoodglass

Advanced Members
 View Profile  See their activity

  • Posts

    14,675

  • Joined

  • Last visited

  • Days Won

    153

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by ravenwoodglass

  1. ravenwoodglass
    Were you gluten free or gluten light when those tests were run? If you were that would cause a false negative. If you feel better gluten free then just stay gluten free and heal.
  2. ravenwoodglass
    Please be aware that there are other genes associated with celiac. Just because you don't have DQ2 or DQ8 doesn't mean you can't have celiac and pass the associated genes on to your children.
  3. ravenwoodglass
    I noticed in your sig that you are being woken at night by D. That combined with your anemia and other issues really scream celiac. IBS does not wake someone up with D. Unless you have had an awful lot of slip ups with gluten after 6 weeks gluten free chances are very good that you would get a false negative on testing. You may also find it makes you very...
  4. ravenwoodglass
    Bob's Red Mill, I think, produces Gluten Free Oats in the facility that makes their gluten-free products. Some of us, like myself react to oats so if you are one of that group that may have been the issue with the corn flour.
  5. ravenwoodglass
    Many doctors will test at the 6 month mark after you start the diet. If your antibodies had returned to normal levels and then elevated I would advise you to try and go with more unprocessed food. Many of us have had issues with CC with Amy's products and that would be the first thing I would drop.
  6. ravenwoodglass
    The choice of whether to scope or not is solely yours to make. Sometimes our recovery on the diet followed strictly will be the best 'convincing' your family can have. There are doctors that will give the 'official' diagnosis based on your positive blood work and response to the diet.
  7. ravenwoodglass
    Does the company that makes the corn flour also make gluten products or gluten free oats? If they do the corn flour may be CC'd enough to cause you problems.
  8. ravenwoodglass
    The pudding should be gluten free as that company is really good about labeling. There are a couple things to keep in mind, one that some of us don't tolerate dairy until we are well healed and the other that gluten reactions are often delayed. So you might be reacting to something you ate earlier in the day or even from a day or two ago. If you are new to...
  9. ravenwoodglass
    You do sound like your in the right place especially with a family history of celiac. You really shouldn't have gone gluten free until after testing but even on gluten there can be a pretty high rate of false negatives. Once all testing is done you should give the diet a good strict try for at least 3 months. Your in a good place to learn what you need to...
  10. ravenwoodglass
    Your issue may not be thyroid so don't worry about that until the tests come in. Did you have positive blood work at diagnosis? If you did make sure they rerun those also. If you are eating out a lot you may be simply dealing with gluten issues as your problems are not uncommon for someone who is being CC'd. If your celiac panel shows your still not having...
  11. ravenwoodglass
    If you are in college that is a valid reason to stay in and real friends shouldn't question it. If you are not feeling well you need to listen to your body and rest. Going out in college usually means going to some bar, if that isn't your situation sorry for the assumption, and going to a bar and staying out till all hours isn't going to help your healing...
  12. ravenwoodglass
    Since celiac can impact everything from growth to behavior and learning you do want to have them tested every couple of years whether you think they have symptoms or not.
  13. ravenwoodglass
    I do seem to recall other topics about HS. You might want to do a board search to see what others have had to say about it. One thing you may want to do if you haven't alreay is make sure you have eliminated gluten from topical items like lotions, shampoos etc. I don't know if it would help but it won't hurt. I do hope this resolves for you as I understand...
  14. ravenwoodglass
    Chris the doctor you need to see about celiac or gluten intolerance is either a GP or GI. If gluten is contributing or causing your problems the 4 days is not enough time to really see a difference.
  15. ravenwoodglass
    If there is any chance that you are going to go to a GI doctor for confirmation you have to keep eating gluten. If your doctor is going to diagnose you based on your blood work being positive and you are not going to have a scope then go ahead and go gluten free. I agree with Josh that you should have a total IGA done to make sure you are not low. Although...
  16. ravenwoodglass
    It sounds like it was a pretty good appointment. The one thing I would request is that they do both the endo and the colonoscopy at the same time. No reason for you to pay copays for 2 procedures when both can be done in one shot. If your blood work is positive you do need the diet no matter the results of the scope. After all celiac related testing is finished...
  17. ravenwoodglass
    We do need to check the labels on everything we consume. Hopefully you haven't been eating those all along. Good luck with the test.
  18. ravenwoodglass
    Here is a link to non-dairy food sources of calcium. You will need to scroll down on the page. It gives the food source and the amount of calcium in the food. Open Original Shared Link Your issue could be with casien or lactose. You may want to try adding dairy back in after you are feeling better going with hard cheeses like cheddar. If your issue...
  19. ravenwoodglass
    You may want to take some high level gluten-free B vitamins including a sublingual B12. I use the Stress level B's which are high in the Bs and C. Your body will have trouble absorbing B12 from a swallowed vitamin so a sublingual is needed. Those will help the nerves heal a bit faster.
  20. ravenwoodglass
    If you have a positive on either test and a negative on the other the positive test outweighs the negative one as the false negative rate is high on both. The biopsy is the 'gold standard' for diagnosis and yours was positive. You need to get on the diet and follow it strictly. Your in the right place to learn what you have to do. Read as much as you can...
  21. ravenwoodglass
    Those are pretty odd results from what I have seen of other reports. Did your doctor only do one biopsy of the duodenum? He should have taken multiples from different areas. What did they find that was 'benign'? I am not a medical professional but that sounds more like they were looking for signs of cancer not celiac or you may have celiac changes but the...
  22. ravenwoodglass
    Your doctor should have never told you to go gluten free if you are being referred to a GI doctor for confirmation. Go back on gluten NOW. After you have your endo then give the diet a good strict try. Go with whole unprocessed foods to start. If you are not used to cooking then tell us and we can help you with some simple stuff to start with. As to why...
  23. ravenwoodglass
    Gluten reaction times can vary a lot from person and even for the same person. In some cases reactions can take as long as a week to show up although most react within 1 to 3 days. It can make it difficult to pinpoint what 'got' you after you have gone gluten free so keeping a food and symptom log can be very helpful. Eventually you should be able to figure...
  24. ravenwoodglass
    The reason why gluten grains don't show up in an allergy panel is because they are not allergies. Celiac is autoimmune and an intolerance rather than an allergy which is an entirely different sort of reaction. One can have both an allergy and intolerance though.
  25. ravenwoodglass
    That is going to be printed out and placed on my frig in a place of honor right next to Rainbow Bridge. What a great thought. Thanks so much for sharing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.