Jump to content

ravenwoodglass

Advanced Members
 View Profile  See their activity

  • Posts

    14,675

  • Joined

  • Last visited

  • Days Won

    153

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by ravenwoodglass

  1. ravenwoodglass
    That's why the first thing I do when I get home from anywhere is wash my hands. I rinse them again after putting groceries away and always at least rinse my hands after opening packages and before I touch the food. That may sound excessive but I was a cook for years and even wash my hands before changeing ingredients so it is second nature.
  2. ravenwoodglass
    Yes you can have negative tests and still have celiac. That is the case for up to 30% of us. Your derm can do a biopsy of the skin NEXT to an active lesion and tell the lab they are looking for DH. They need to do a specific test for DH to find it. Still a risk of a false negative though. After you are done with all testing for celiac it would be a good...
  3. ravenwoodglass
    There are many of us who have had gall bladder issues. Since the antibodies can attack any organ I wouldn't be surprised if undiagnosed celiac might have something to do with it but I can't be sure. I hope you recover from the surgery quickly.
  4. ravenwoodglass
    Having eaten a ton of soy all your life doesn't mean you wouldn't develop an intolerance to it. That would be the first thing I would cut out for at least a couple of months to see if that helps.
  5. ravenwoodglass
    I personally have never tried any products that use Codex but I have read of quite a few folks that have had an issue with it. With you being 'a super sensitive' celiac IMHO it would not be something your body will tolerate.
  6. ravenwoodglass
    Mine cleared up on it's own and my BP is now in normal ranges. The only thing doctors ever did was tell me to change positions slowly to prevent 'attacks'.
  7. ravenwoodglass
    I have trouble with it but I can't do soy. Don't know if that is the case for you.
  8. ravenwoodglass
    I had POTS amd extremely low blood pressure since childhood. It meant getting up very slowly from sitting or laying down otherwise I would get dizzy and feel like you describe. Within a few months gluten free my blood pressure was within normal levels and I don't get dizzy when I stand any more so it was definately associated with gluten for me but know...
  9. ravenwoodglass
    You can't use the same toaster for gluten free bread that others are using for gluten bread. You need a dedicated toaster. If the deli uses any gluten containing ingredients in anything else there is a high chance of CC in it. Better to make your own at home than buy store made.
  10. ravenwoodglass
    Hopefully this med was prescribed by a doctor as you need regular blood tests to check levels. This med is for bipolar and there may be better ones with less side effects your doctor can prescribe if your only issue is depression. For the OP- If you haven't been diagnosed for very long the hair loss should stop fairly soon. Make sure you are getting...
  11. ravenwoodglass
    Your not 'juicing' with wheat or barley grass are you? Those are not safe for us even though they can carry a gluten-free label. Since you have only been gluten free for a few days you are far from fully healed. Some of us will also go through withdrawl from gluten so that may be going on also.
  12. ravenwoodglass
    What are the ingredients? It should be but the words casien or whey would indicate that it is not dairy free.
  13. ravenwoodglass
    You can also help hubby along by 'secretly' feeding him gluten free dinners for a few weeks and then ask him how he has liked your cooking lately. There is a whole world of naturally gluten free food. If your imagination needs some nudging check out the recipe section. Many people think the diet is a 'fate worse than death' (a quote from one of the doctors...
  14. ravenwoodglass
    He risks a great deal by not following the diet. Celiac is autoimmune, that means the body is attacking itself and that is not a good thing. He could develop other autoimmune issues that might impact any organ including the brain. His chances of developing certain cancers will be raised (that goes down to the same as non celiacs after 5 years gluten-free...
  15. ravenwoodglass
    Whether to go for the official diagnosis or not is wholly up to you. If you can stay strict with the diet without it then go for it. For some of us the reaction our body has when we consume gluten and the way we feel off it is enough proof.
  16. ravenwoodglass
    Yea I agree with the others that you are one of us. Whether you are going to choose to biopsy is up to you. If your little one has symptoms then do get him tested. You do have the option of making him gluten free, at least at home, without testing. Schools however sometimes want to see an official diagnosis to take the precautions they need to take. If...
  17. ravenwoodglass
    You make some good points for the biopsy. We do have to keep in mind that the false negative rate on celiac testing for children is just as high, if not higher, than it is for adults and for adults that is 20 to 30%. So we do need to do a trial of the diet either way. There are doctors who will give an 'official' diagnosis based on positive blood work and...
  18. ravenwoodglass
    You do sound very much like you could be in the right place. If you want to be tested for celiac you need to immediately go back on gluten until that testing is done. Your child with type 1 diabetes should also be tested. Testing of Type 1s for celiac is advised by the NIH. When you are done with all celiac related testing then do give the diet a good strict...
  19. ravenwoodglass
    Just make sure your iron levels are low before you supplement. Too much iron is toxic so if supplementing do get the levels checked frequently to make sure the levels are not going to high.
  20. ravenwoodglass
    There are folks that have had negative blood work and a positive biopsy. You do have positive blood work but that does not insure an accurate biopsy result. False negatives for biopsies are about the same as for blood work, at about 30%. Could you have a positive biopsy, yes. Could you have a negative biopsy, yes. Could you have a false negative biopsy, yes...
  21. ravenwoodglass
    If you are not going to have a biopsy done then it is time to go ahead and try the diet. Give it at least a couple of months and do be strict.
  22. ravenwoodglass
    Whether it is celiac or "just" gluten sensitivity really doesn't matter. Just as much damage is done with each and the need to be strictly gluten free is the same no matter what label you put on it. It is a misconception IMHO that gluten sensitivity is less serious.
  23. ravenwoodglass
    It is going to be very hard for him to work in a place that has flour floating around. If he can find another job he should do so.
  24. ravenwoodglass
    That might help the gas symptom but it won't stop damage from being done. If you do go this route do make sure the antigas med is gluten free but IMHO better to simply avoid the gluten as eventually you may go from just having gas to having D. That is no fun if you are out for a pleasant night with freinds or family.
  25. ravenwoodglass
    Your D pattern was the same as mine was for years. Until it became a daily and then a day and night occurance. Ask your doctor to run a celiac panel, including a total IGA and then when you are done with testing for celiac go ahead and give the diet a good strict try and see if that helps your problems.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.