Jump to content

ravenwoodglass

Advanced Members
 View Profile  See their activity

  • Posts

    14,675

  • Joined

  • Last visited

  • Days Won

    153

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by ravenwoodglass

  1. ravenwoodglass
    I've never had an issue with any Pacific brand beverages but haven't used them in a while. I go with Wegmans Rice Milk now as it is less expensive and safe.
  2. ravenwoodglass
    Myself and both children were born in the summer all in the same month. Makes for a pretty boring mother's ring. However my mother and my other brother, both who we think had and have celiac, were born in the winter though.
  3. ravenwoodglass
    Sorry to hear that. I hope he wins the fight. (((((((((((((((((((HUGS)))))))))))))))))))))))
  4. ravenwoodglass
    They will fade but it can take a long time. The ones I had on my legs from when I was a child took literally years but the ones that I had on my face and back were mostly gone within a few months. Take heart in the fact that they are likely more obvious to you than to others. If they really bother you then get some gluten free cover-up to use until they have...
  5. ravenwoodglass
    You have found one of the best sites there is for info. Before you go gluten light please do get at least a celiac panel done. All first degree relatives of someone diagnosed is advised to do so even if they don't seem to have the typical celiac symptoms. Celiac is genetic and it is common for there to be more than one in a family and with the different presentations...
  6. ravenwoodglass
    I would go with number 2 if that is a school he wants to go to. He can share a place off campus with other students to save some money and you won't be charged the room and board fee at the school so that will help to offset the costs. My DD faced this same issue at her school when they insisted freshman live on campus. The school admitted they couldn't...
  7. ravenwoodglass
    Me too. I get frankly suicidal. I do know now that it will lift which does make it easier to deal with. I would go back to whatever face wash you were using before this started and see if that helps. Some companies are really good about labeling gluten in topicals, Dove is one and so is Garnier, which is what I use, if you really want a change.
  8. ravenwoodglass
    I do have to admit that when someone said on the board a long time ago that Bud Light was low enough to not effect us I did try one. Boy did it taste good as I was a big fan of beer prediagnosis and the sorghum beers to me taste nasty. Result was not pretty. I might as well have had a piece of cake or some phyllo. Just not worth it. You have to keep in mind...
  9. ravenwoodglass
    Well the elimination police aren't going to go after you if you do. You could try it for a couple of weeks and if you are still having the same pattern of issues then drop it and use something else as a carb source. You might want to be sure to rinse the rice well before cooking and use one that is just rice.
  10. ravenwoodglass
    Great minds think alike. I have DH and my doctor wouldn't let them use the injected contrast when I had a scan and ordered gluten free liquid to drink. I had been severely glutened when I had a previous scan done with the regular barium drink.
  11. ravenwoodglass
    From what I have read in peer reviewed journals (sorry I don't have a link to the info) if you are strict with the diet your risk of lymphoma decreases and by year 5 is the same as the non-celiac population.
  12. ravenwoodglass
    It can take awhile to get over a glutening. Some of us get an upset tummy and then it is over, lucky them. Others like myself will get a cascade of symptoms that follow a pattern that can take a couple of weeks or a month to resolve. It can take a couple of glutenings to know what your symptom pattern is and after a long time gluten free that can change....
  13. ravenwoodglass
    The best place to find out is your insurance company. Most will have a number you can call on the back of your insurance card.
  14. ravenwoodglass
    A very long time ago, and I mean many decades, the US formed regulations that when a meat item had any 'fillers' of any kind they had to be declared. That would include stuff like wheat or soy etc. Companies did it for the same reason bread crumbs were added to meat loaf, to stretch the meat. If the company says something is '100% beef' that is what it is...
  15. ravenwoodglass
    My doctor guided me with my elimination diet and I started out with 5 foods, turkey, rice, sweet potatoes, peas and pineapple. No coffee, soda, only water as a beverage, no spices other than salt, no butter or sugar. He picked foods I did not commonly eat as those would be the ones I would be least likely to react to. In other words I started with foods I...
  16. ravenwoodglass
    The posters question was "So could it still be celiac, even if my routine bloods are fine???" as the OP has not gotten the results of the celiac panel. There is also still much to be learned about celiac and gluten intolerance. My doctors trusting my false negative tests cost me years of my life and permanent damage. IMHO the number of false negatives is...
  17. ravenwoodglass
    False negatives are not uncommon. If you are done with all celiac related testing do a good couple months strict trial of the diet and see if it helps.
  18. ravenwoodglass
    You have already done the best and most reliable test there is. You eliminated gluten, got better and had your symptoms come back when you added gluten back in. It sounds like you have a good doctor. You could do a lengthy gluten challenge for 3 months and then get blood and endo done but you could still have a false negative even after all that misery. ...
  19. ravenwoodglass
    Simple answer, yes.
  20. ravenwoodglass
    I am afraid I have to disagree with the GI doctor, strongly. Celiac symptoms can be 'treated' with meds but the disease will continue to progress. IMHO it is better to be diagnosed rather than living with meds for years and years like I did. I had a tackle box full and as more and more of my body came under autoimmune attack for celiac the scripts just kept...
  21. ravenwoodglass
    Just what I was going to say...but without the dinosaur part.
  22. ravenwoodglass
    I have to agree and I am one of the rare celiacs that do have problems with distilled gluten grains. If someone is having continued problems or continues to have elevated blood work then maybe drop it for a bit and see if that helps but most will tolerate distilled gluten just fine.
  23. ravenwoodglass
    Is there anything that has changed in the last year? Any new scripts (generics need to be rechecked at each refill) or supplements, are you eating at restaurants more, are you doing any home remodeling or gotten a new craft hobby or pet? Changed any toiletries or makeup or gotten a new gluten eating significant other? I am really hopeing for you that you...
  24. ravenwoodglass
    If you have a Wegmans near by their milk is for sure safe. Pacific brand also makes some good milks.
  25. ravenwoodglass
    The only thing that I would disagree with in the quote the previous poster gave you is the genetic part. Usually they only test for the 2 most common genes when there are others that can be associated with celiac. Even if the gene tests are negative that does not rule out someone developing celiac. Unfortunately my family has first hand experience with this...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.