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ravenwoodglass

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Everything posted by ravenwoodglass

  1. ravenwoodglass
    Your friend is right. You can have both negative blood tests and endoscopy with DH. However having DH is still a having a celiac diagnosis. You could do enough gluten to bring back the rash and then have a doctor familiar with DH do a biopsy. The biopsy needs to be done on intact skin next to the rash not on the rash itself and they need to be looking specifically...
  2. ravenwoodglass
    I could be wrong but I think you now have a very good chance of finally healing fully. Do drop those products for a month or two. I would not be surprised at all if you are feeling much better when the Codex is out of the picture.
  3. ravenwoodglass
    Almost everyone here has more than just celiac. In fact your additional problems are minor compared to what some of us have dealt with. You have completely ignored posts that have tried to help instead wanting to rage against the VA and tell us we shouldn't ever have children. We have done all we can to try to help you but you are so deep in self pity that...
  4. ravenwoodglass
    It is a fallacy that most celiacs are underweight. Unfortunately most doctors don't realize this. It can take a bit of time to heal. Do eat as much whole unprocessed food as you can and if you have to go out to eat go to restaurants that have a gluten free menu. It is a good idea to avoid dairy also for a bit until you are feeling better. It does take...
  5. ravenwoodglass

    ARCHIVED Seeing The Dr Today

    ravenwoodglass replied to collgwg's topic in Doctors

    Hopefully the appointment will go well and you will be feeling better soon. Glad they were able to get you in today. Let us know how things go.
  6. ravenwoodglass
    I tend to do this also. There are a couple of things I started doing after I realized I was doing this. I stopped eating snacks out of the bag as I will mindlessly eat a whole bag of chips while reading or watching TV. I take pretzels, chocolate chips, rasiens and nuts and put them in snack bags to grab when the 'junk food munchies' hit. That way I am...
  7. ravenwoodglass
    Only you can see your personal information like address, email etc. Contact Scott to deactivate your account but that will not erase your posts or topics.
  8. ravenwoodglass
    Everyone is different. We do often have some ups and downs for a bit. If you eat as much whole unprocessed food as you can it can help with keeping down CC risk. Do delete dairy at first and then add it back in after you have been feeling good for a while. Be careful about cross contamination, if you have to eat at a restaurant eat at one with a gluten free...
  9. ravenwoodglass
    It can take quite a while to feel consisitently better and only a month in you also may still be going through a bit of withdrawl. That and still healing can make us feel tired so if you are fatiqued rest for now. You didn't mention the name of the bread but since you mentioned it tasted 'beany' does it have a bean or pea protein or flour in it? I found...
  10. ravenwoodglass
    No the biopsies have the same 20 to 30 percent false negative rate as the blood work. After the biopsy is done do a trial of the diet. You don't even need to wait for the results. Make sure you get tested also as well as all other first degree family members.
  11. ravenwoodglass
    Do any of the products use Codex Wheat Starch? In some places that is considered to be gluten free but may be still too high of a level for you. Just throwing another posibiiity out there.
  12. ravenwoodglass
    I thought for quite awhile when I went gluten free that I was being glutened by gluten free foods even stuff that was made in a dedicated facility. It turned out that the issue was soy. As was mentioned it is in a lot of gluten free foods. It will be clearly labeled in the ingredients as it is one of the 8 major allergens. Some of the soy free, gluten free...
  13. ravenwoodglass
    Here is a good site for info on the syndrome. As to the endometriosis I also had it. I do not know if it is associated with celiac or not. If you do have it and adhesions have formed they can do surgery to free up the scar tissue but the adhesions often will grow back. Open Original Shared Link
  14. ravenwoodglass
    Very well said.
  15. ravenwoodglass
    Please know that false negatives on testing are not uncommon. If you are going to persue a biopsy do keep on gluten until that is done then the day of the biopsy go gluten free strictly. You don't need to wait for the results. If the doctor will not biopsy for some reason then do give the diet a try anyway. You do sound like you could be one of us. I hope...
  16. ravenwoodglass
    I have to agree that this constant subject matter is most offensive. Thank you for your service but the military did not cause all your problems. Perhaps some counseling to get over your anger would be in order. You ignore any suggestions people give you in relation to your health issues, which many of us have dealt with successfully but continue to blame...
  17. ravenwoodglass
    I find it extremely offensive that you are saying we should not have children. There are a lot worse things that we can pass down to our children than celiac. Things like racism, cruelty, self pity, selfishness, ignorance, immorality well the list is endless. My being celiac and all the years when I struggled with pain and in poverty gave my children a strong...
  18. ravenwoodglass
    I saw this on the news this morning and thought this a nice way to support our fallen and wounded warriors. Just in case others might be interested I thought I would give some info and a link to their website. They must be being slammed with orders this morning as the site was quite slow but with patience I was able to order mine. Open Original Shared...
  19. ravenwoodglass
    Thanks for posting this link. I appretiate it.
  20. ravenwoodglass
    Have you changed out your strainer for pasta? If you used the same one you used to use for gluten pasta that would gluten you. You also should get rid of any scratched nonstick pans and wooden utensils that have been used for gluten foods. Early on in the diet many will have ups and downs and also go through withdrawl. It can take a bit of time to feel...
  21. ravenwoodglass
    Do get your iron levels checked before taking any more than is in a multivitamin. Iron can be toxic in large amounts.
  22. ravenwoodglass
    You should get things checked out with your doctor to be on the safe side. I did have constantly swollen lymph nodes pregluten free and they took a very long time to go down. Doctors checked me for all the really bad things they could be but always ended up saying it was from my 'atopic dermatis' which was actually DH. Since there are some really serious...
  23. ravenwoodglass
    Is there any way you can return them? If not you could donate them to a food pantry and if you itemize your taxes you could deduct them.
  24. ravenwoodglass
    Mine did substantially. Hopefully yours will also.
  25. ravenwoodglass
    If you enjoy doing them and like what you do don't let other people stop you. It doesn't matter what they think what matters is if you enjoy painting them.
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