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ravenwoodglass

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Everything posted by ravenwoodglass

  1. ravenwoodglass
    Hi Becky and welcome to the board. You'll find lots of info here and some wonderful people. Ask any questions you need to.
  2. ravenwoodglass
    It can take us a while to heal from a glutening. The weakness you are feeling may be part of the antibody reaction. For some of us it can take a couple of weeks before we are feeling better even after the gut reaction stops. One thing you should not do is start popping iron without having a blood test done as too much iron is toxic. Here is a list of iron...
  3. ravenwoodglass
    With celiac being an antibody reaction you need to be strict with the diet for it to be effective. You getting cross contaminated will keep the antibody reaction active and that may be why you are not getting any relief. While it can take some time to heal you should notice some relief within a month or so IF you are strict with the diet and also eliminate...
  4. ravenwoodglass
    I think the form of vitamin E that starts with D-alpha is lab derived and is not from either soy or wheat. That is what I use. Here is a table of food sources of it. The first number is how much is in the food and the second number is it's percentage of daily value. Open Original Shared Link Table 2: Selected Food Sources of Vitamin E (Alpha-Tocopherol...
  5. ravenwoodglass
    Corn does contain a form of gluten but not the kind that we can't have. For celiacs cornstarch is safe. That said some folks do have an issue with corn but it is not a celiac issue.
  6. ravenwoodglass
    Could you have been glutened? The weakness, dizziness and gallbladder type pain for me would mean gluten snuck in somewhere. Like the last poster I also get severe joint pain from soy. I would try eliminating that and also drop the script she gave you for the 'arthritis' and see if that helps. I also am not much impressed with your doctors 'psychic' form...
  7. ravenwoodglass
    Most of us have some ups and downs in the healing process. How long before you feel better all the time varies for different folks. It is a good idea to avoid dairy until you have healed as the part of your intestine that is damaged by celiac is the same part that produces the enzyme that helps us digest dairy. So it may not have been the sausage it may...
  8. ravenwoodglass
    Yep and if he refuses to give you a referral for a second opinion you should switch doctors. No doctor who is a good doctor would object to a second opinion.
  9. ravenwoodglass
    Do you tolerate dairy? This product is whey protein and soy lecithin. Some that are intolerant to soy can still tolerate lecithin. If you tolerate dairy you could give it a try and if things worsen then drop it.
  10. ravenwoodglass
    This is only my opinion but I consider IBS to be a 'catchall' for gut problems that doctors can not find a diagnosis for. The problem may not be gluten it may be an intolerance to something else not identified. My soy issues were defined as IBS when I still had problems after being diagnosed with celiac. I know it is a pain in the behind for doctors to guide...
  11. ravenwoodglass
    I wouldn't fault her either. In fact I would commend her for it. Pretty savvy resident IMHO.
  12. ravenwoodglass
    You could just ask your GI about it and see what he says instead of switching doctors.
  13. ravenwoodglass
    I would fast for 12 hours before the blood draw just to be on the safe side since you don't know what tests are being ordered. Otherwise you might have to make two trips if the doctor has ordered any fasting tests. I would also mention to the doctor the remark of the lab person who told you to 'fast if you want to'. IMHO that was an irresponsible answer and...
  14. ravenwoodglass
    I agree. If not eating a food for a long time would make someone sensitive to it then folks that only eat pumpkin pie or other 'holiday' or 'seasonal' foods a couple times a year would all be getting sick. It would make elimination diets and their challenges totally worthless. It also would have basically wiped people off the earth long ago as for a very...
  15. ravenwoodglass
    Did your doctor do any bloodwork? If you didn't have the feeling you couldn't lift your arms before yesterday give the office a call back, ask to speak to a nurse and let them know of the new symptom.
  16. ravenwoodglass
    The original post was four years old. Companies change ingredients and it may not have been gluten-free then but may be now. Better to read labels or contact makers than using very old threads to see whether something is safe or not.
  17. ravenwoodglass
    You mention in a previous post that you have been gluten free for three months. This is going to give you a real good chance of a false negative. If you have had adverse reactions to gluten since you went gluten free and have seen some healing do keep up the diet. Neuro effects take longer to heal than the gut.
  18. ravenwoodglass
    I am glad they got you right in. I had a feeling they would. Calling your doctor was the best thing to do with something like this. Going to the ER would have just had you referred back to your doctor in most cases. With false negatives for celiac being common if you had a negative test and she then told you to try the diet she was giving you good advice...
  19. ravenwoodglass
    I'm no doctor but that sounds like a positive reaction to me.
  20. ravenwoodglass
    According to this link they are gluten free. However if they are like many of the Frito Lay products they may have a risk of cross contamination. Note the list is for Canada Open Original Shared Link
  21. ravenwoodglass
    Please contact your doctor immediately and tell them that you are passing white stool. It can be a sign that you have a serious issue. As to the gluten free diet helping with malabsorption issues... After your body has some time to heal it will start absorbing nutrients from your food again. Please be aware that if you are on the gluten-free diet that you...
  22. ravenwoodglass
    You can be celiac and have all of those tests be negative. I would agree with your doctor that the positive IGA is a really strong indication that you are celiac. If you are going to have the endo done make sure that you keep eating a regular gluten filled diet until afterwards. Do keep in mind that the endos can also have a false negative so after the endo...
  23. ravenwoodglass
    Not that I know of. You could contact Enterolab and find out what the cost would be for just the soy part. I already knew I was celiac so I opted out of the gluten test but did get the tests for soy, casien and yeast along with the gene panel and it was around $300 but I think a lot of the cost was the gene panel. You could also just eliminate soy for at...
  24. ravenwoodglass
    I started eating a lot more of it after I went gluten free. Gluten and soy for me are different reactions, gluten gives me D but soy gives me C along with joint and severe stomach pain. When I first went gluten free I thought I was being CC'd and it took me a long time to figure out I wasn't. I finally did an Enterolab panel that pinpointed it.
  25. ravenwoodglass
    I rarely buy specialty gluten free foods. I usually get one or two loaves of bread and one package of pizza shells in a month and that is about it. Many foods are naturally gluten free. Rice, beans, veggies and fruit, meats and chicken etc are all naturally gluten free. Being gluten free doesn't have to be expensive. I have a very limited budget, actually...
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