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ravenwoodglass

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Everything posted by ravenwoodglass

  1. ravenwoodglass
    Cynthia, I agree that GFP was way out of line. I don't know if he would have edited out the inflammatory remarks if he could have but that can only be done for a couple hours after posting. You do need to know that noone else here feels the way he did when he posted. I am sorry that his post was not immediately deleted. A couple ideas for the...
  2. ravenwoodglass
    As Richard says it can take a long time. It can take up to 2 years for some. But the outbreaks should be less severe after a while. The iodine means you should get some uniodized salt to use on your food. That will make a difference. Be careful too with topicals and shampoos and stuff. It is easy to get tiny amounts in your system which is enough to...
  3. ravenwoodglass
    Glad to hear your all right. I hope things can get back to 'normal' for you soon.
  4. ravenwoodglass
    "What is the deal with alcohol distilled from grains?" The deal with distilled gluten alcohol really amounts to... some of us react and some of us don't. It seems that folks that have more neuro impact, like depression and anxiety have more of an problem with it. Those folks will also usually not tolerate gluten grain distilled vinegars either. The...
  5. ravenwoodglass
    I made it. I did get there early so I could lay claim to a spot by the door. I will do that with tommorrows class also. It seems to me at times that the psychological trauma from the junk we deal with before diagnosis is even harder to heal than the body. If that makes sense. I WILL get my life back. I WILL I WILL I WILL (stomping feet) And it...
  6. ravenwoodglass
    There are some of us who don't show up in blood work. For us the big clue comes when an allergist,doctor or we ourselves eliminate it from our diets and then challenge. An allergist will tell you to stop a challenge as soon as you react. That was what mine did. His exact words when I called him to tell him the result of adding gluten back in and ask it...
  7. ravenwoodglass
    Well I am a bit nervous. I know I shouldn't be but I am. I am not nervous about school, I know I can do well and finally get that degree finished. What I am nervous about is that this is the first time since diagnosis, yep in almost 6 yrs, that I will be going anyplace after having food in my tummy during the day. I handled my constant D for years with...
  8. ravenwoodglass
    Ditto I think after we heal we need to get more to notice the effect in the gut. But when the brain is reacting to the antibody reaction or when gluten causes low level inflammation and autoimmune reaction it takes much less gluten to make the body reactive.
  9. ravenwoodglass
    Tried to go to the first link but that is only available in the UK. The second link did work though and has info on not just the ingredients but what they actually are. I will be saving that one in favorites. We have a program available on BBC here in the US where a woman helps people who have out of control issues with food. Can't think of the name...
  10. ravenwoodglass
    Whether you will react, well time will tell. I do know I myself would avoid this product. The idea of small amounts of gluten being safe really infuriates me. The biggest issue IMHO is that while the test may state that that product is safe, BY ITSELF, what about when folks are consuming multiple items in the day with that same small thresold. By...
  11. ravenwoodglass
    Thanks so much for the tip on clothes, would you perhaps know of some on line stores or catalogs I could get for him? We live in NY and have an outlet center 10 miles away that actually has clothes to fit me, a sz 2, because they have a lot of oriental folks that come there to shop but unfortunately they don't see fit to do the smaller sizes for men. He...
  12. ravenwoodglass
    Also as someone who this doctor would define as a 'full body' celiac I did have to be extremely strict with the diet. My first symptoms were neuro and they hit at about age 4 also. Did your doctors tell you to avoid personal products and toiletries with gluten ingredients? Are you avoiding gluten grain alcohols and vinegars? Are you doing everything...
  13. ravenwoodglass
    The brand I usually use for vitamins is 'Country Life'. There are other though but do get one that asserts it is gluten, soy and dairy free.
  14. ravenwoodglass
    Do get things checked out but this makes me wonder if maybe you are someone who has naturally low pressure and things are finally getting back to normal. Let us know what your doctor says. Being someone who has seen the same situation, borderline HBP when still eating gluten and then gluten free a return to lifelong low blood pressure but feeling fine...
  15. ravenwoodglass
    Go ahead and ask him for a celiac panel. Also ask him to test you vitamin and mineral levels. Although chances are that the test will come back negative it may still show a low level. Usually if a person shows a strong positive on the blood test doctors will run it again after a few months to see if those numbers are down and if they are not that may be...
  16. ravenwoodglass
    Make sure you are taking some sublingual B12 daily. That should help. Do go ahead and drink plenty of fluids but you don't have to drown yourself. Also make sure you don't keep drinking into the evening you don't need to be woken up for a pee break. Something that I have found helpful also is Royal Jelly. It helps me with energy really quick but no jitters...
  17. ravenwoodglass
    My DD was diagnosed in high school so we were able to ask about stuff when she applied to college. Her chosen school dropped the meal plan charges and placed her in senior housing the first year so she would have a stove, frig and a private room so there would be no CC issues. The school realized they would not be able to feed her and they were fantastic...
  18. ravenwoodglass
    I have felt the same way. However after watching what my DS goes through trying to find clothes that fit, shoes are the worst and he always has to buy a size too big and use double thick socks even in summer, and a car that is comfortable for him to drive, and the difficulties he has in social circles after years of teasing by his peers....well, my opinion...
  19. ravenwoodglass
    In addition make sure in your own home that you rinse glass jars and tin cans before disposing of or setting by the sink. We had a cat once get her head stuck in a glass jar trying to lick the last bit of tomato sauce out of it. We had a very hard time freeing her and an animal in the wild would likely break the jar and decapitate itself. If companies...
  20. ravenwoodglass
    Kraft is a company that has a good rep with most of us. They will not hide gluten in natural flavoring.
  21. ravenwoodglass
    If this has appeared only with the glutening it may be part of the inflammatory response in your body. It does sound like neuro impact are you taking a sublingual B12 supplement? That won't help with the pain but will help the nerves restore proper function which may help in the long run. When I get glutened I haven't found much that will completely...
  22. ravenwoodglass
    Are you on any meds? If so have you checked the gluten statis of those meds? Are you living in a gluten household? Many of us become more sensitive to small amounts after we have started the healing process. Be sure to check you toiletries like shampoo and lotions they can also be a source of CC. You need to add to the chicken and rice with some veggies...
  23. ravenwoodglass
    Thinking of you and the others who have stayed to ride it out. I rode out 2 hurricanes when I lived down south, couldn't have left if I wanted to. It can be really scarey how much power mother nature has. I rode one out in a trailer. We cleared the bedroom leaving only the mattress and then brought in one from another room and 'hid' between them during...
  24. ravenwoodglass
    No matter what the doctor says you seem to know the answer. Hopefully you are now back on the diet and back on the path to healing. I know this sounds jaded but sometimes I think doctors will do anything to try and 'prove' that we don't need the diet but do need lots of pills. My 'favorite' doctor response after biopsy is 'well there are some changes that...
  25. ravenwoodglass
    Another thing that you need to take into consideration as far as celiac and height goes is that not everyone is effected by celiac in childhood. Celiac can be triggered at any point in life and for some it may not appear until close to adulthood. A child effected by celiac in infancy will probably show more growth impact than a child whose disorder is not...
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