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ravenwoodglass

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Everything posted by ravenwoodglass

  1. ravenwoodglass
    You are new to the diet and it does take some time to heal. I do agree with eliminating dairy now. The same villi that are damaged by celiac also are used in the formation of the enzyme that helps us digest the sugar in dairy. It will greatly speed your healing to stop the dairy until you have been feeling better for a while. Then you can challenge it...
  2. ravenwoodglass
    A 'weak' positive is still a postive and you do need to be strictly gluten free. If you have had long term D that would give the same appearance to the colon that long term laxitive use would. That should heal. Hopefully the doctors let you know that you need to avoid gluten in your toiletries and that sort of thing also. Also double check your supplements...
  3. ravenwoodglass
    Celiac testing has many false negatives. It is quite possible to be a celiac even with negative blood work. Do try the diet unless you have been referred for an endoscopy. If I had not had the good fortune to have a really savvy allergist I would most likely not be here today. I am one of the 30% of us that do not show up on blood work. You may also...
  4. ravenwoodglass
    It is not usually the wheat that is an issue with most beverages it is barley and that is not required to be listed. I have had no problem with Pepsi products but I have with Coke so I stick with Pepsi. Generally I find the safest bet to be the clear sodas like 7up or Sprite. I am extremely sensitive though and sometimes react to really, really low levels...
  5. ravenwoodglass
    Don't debate get yourself tested. All of his first degree relatives should be tested, you, Dad, brothers and sisters. If you or Dad are positive then your brothers, sisters, Mom and Dad should be tested. And so on. It is going to be tough with the number of intolerances he has and hopefully someone who has been through this with a little one will be...
  6. ravenwoodglass
    It takes time. Be sure to check all your toiletries, makeup, lotions etc and also if you have a significant other a kiss after they eat or drink gluten is off limits until they have throughly brushed their teeth. Also try to eat as simply as you can right now. Fresh whole foods rather than processed and if you live in a gluten home make sure that you and...
  7. ravenwoodglass
    I hope the meeting was productive. Glad he is feeling better today. It is amazing how 'Jekell and Hyde' we can be when 'under the influence'. I also find it surprising how quickly it can pass as long as we are not reglutened.
  8. ravenwoodglass
    If you can't get a for sure answer then I would stop using it for a month or so and then try it again and see if you get the same effect. Personally I don't like the sanitizers for multiple reasons and they do generally contain alcohol also. That alcohol may be gluten derived but they might still consider it gluten-free if it is a distilled form. Not all...
  9. ravenwoodglass
    I like a cocoa butter and jojoba oil product that NOW puts out, that is literally all that is in it. It is solid in the jar but becomes liquid with the warmth from your hands. I have also used olive oil.
  10. ravenwoodglass
    I find my rice cooker to be very helpful. It has a steamer basket that I put frozen veggies and shrimp or cooked meat in that cooks at the same time as the rice. Mine came with a bunch of easy recipes. I just throw things in and then go read the paper till it's done. gluten-free pasta with a gluten-free sauce is also quick and easy. Just use a safe...
  11. ravenwoodglass
    Judy, When bright objects are found on an MRI and they are not in the correct location to be diagnostic of MS they are often diagnostic of celiac. If you google UBO's and celiac you should see some information come up although most of it is not from the US.
  12. ravenwoodglass
    It does sound like you belong here but before you go gluten free you should get a celiac panel done. If you are going to want a endoscopic biopsy for 'gold standard' diagnosis you will need to continue on gluten until that test is done. However diagnostic testing for celiac is far from perfect, even if the test results are negative you should still do a...
  13. ravenwoodglass
    Gerri, You have been through so much. I am glad it is over. Now you can heal and I hope it happens quickly for you.
  14. ravenwoodglass
    There are some of us that will have gastroparesis that is linked to the celiac disease. Gastroparesis in common english means literally 'partially paralyized stomach'. Something is effecting the nerve function of the stomach and messing it up. Your symptoms do sound like you could be one of us. The severe fatigue and weakness may also be an indication...
  15. ravenwoodglass
    If anyone can identify with your post I do. Unfortunately. I would go ahead and get the endo done. As mentioned there is still a risk of a false negative even with the biopsy. You have 22 ft of small intestine and damage can be patchy so do try the diet as soon as the endo is done. You don't need to wait till the appointment to review the results. You...
  16. ravenwoodglass
    An IEP is an individual education plan. It is a federal mandate that falls under the 'No Child Left Behind' legislation we have. The schools are required by law to make sure that he is kept as safe as possible while he is in school and will also address the need for counseling in school to address the behavioral issues that he is experienceing. When he...
  17. ravenwoodglass
    Those appear to be older and very old lists. I would get the 800 number off of a product and call the company directly about any product I was going to use. Some companies will send a current list and even enclose some coupons (although I have found many times that most of the coupons I can't use so I pass them on)
  18. ravenwoodglass
    When newly diagnosed it is best to avoid products on shared lines. It would not be safe to just pick out the fruit any more than it would be safe to just eat the cheese and sauce off of a wheat pizza crust. There are some of us who can tolerate consuming stuff off of shared lines, a lot depends on how well they clean the lines and whether the wheat risk...
  19. ravenwoodglass
    We also run into this issue with gluten grain alcohols and vinegars. It may by definition of the scientists be gluten free but there will be some of us that do react. You have tested this product in the most conclusive way there is. You tried it, you got glutened, it is not safe for you.
  20. ravenwoodglass
    Yes the area beside these could still be biopsied. They would use a very small 'punch' to take a bit of tissue. They do numb the skin first and it is not something that is really scarey or painful. In addition DH is not the only skin effects that we can get. My DD gets excema and my DS used to have small raised bumps all over his chest. Kind of like...
  21. ravenwoodglass
    You need the sublingual B12. The sublingual part is important as your body can't utilize it from a regular vitamin. Do give that a try. You may also want to visit Planned Parenthood. They can deal with female issues like PMS and if you don't have insurance they will charge on a sliding fee scale or even if needed help you for free. They are not just...
  22. ravenwoodglass
    You are in a tough spot. Is there any way you can get the father to educate himself more on what he needs to feed your son? Could you pack safe meals for him to take with him and then Dad can just heat them up? It sounds like he is just not as educated on celiac as he needs to be, not that he is careless. Hopefully that is the case. But if he doesn't...
  23. ravenwoodglass
    You unfortunately really have to check with many hams. They are usually cooked often with a glaze or other stuff added. A plain raw ham with nothing added to it will be gluten free but most are precooked. As with a lot of products you really have to check with the company to be sure. With the ham that you read the label of you may not have missed anything...
  24. ravenwoodglass
    Yes. All shampoos, lotions etc. need to be gluten free. You also need to check on art supplies and that sort of thing. It can hide even in some brands of playdough and finger paints.
  25. ravenwoodglass
    I would encourage Dad to get tested ASAP. If he is positive then testing your DD, all other children, his mother and father and brothers and sisters would be advised. That would show a definate need for testing in your child with any knowledgeable doctor. However, celiac often shows a false negative in young children but I would ask the doctor to go ahead...
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