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elefky

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by elefky

  1. elefky
    I originally had it on my face and scalp. (22 years ago) First biopsy with dermatologist came back as folliculitis. Then when I had a new outbreak on my upper back, she was able to remove a nice clean blister and we got the diagnosis of DH. She started me on Dapsone (100mg/day) and gluten free diet. Now I take 25-50 mg/day. My understanding at the time...
  2. elefky
    I was diagnosed with DH in 1995. I don't remember how long it took to clear up after going gluten-free, I was taking 100 mg Dapsone, now I take 25-50. The only true treatment is being gluten-free. Iodine will not cause a flareup but it can aggravate one. I don't mind continuing the Dapsone. It helps with the occasional slip. But I am as close to...
  3. elefky
    After 21 years, I still take Dapsone daily. My dermatologist requires blood test annually. Besides being gluten-free, try avoiding iodine. It doesn't cause a flare-up but it can aggravate one. Don't use iodized salt and avoid shellfish.
  4. elefky
    I was diagnosed with DH 21 years ago. I don't remember exactly how long it took to heal. As the previous poster said, avoid iodine. If you use salt, do not use iodized salt. Avoid shellfish. Make sure you are eating 100% gluten free. Be very careful. Even now, I don't always know what I am reacting to because the reaction is not immediate. But...
  5. elefky
    Try this Open Original Shared Link It's a New York City meetup group. Also if Nassau County might work for you - there is a meeting of a Long Island support group on Monday Oct 10 at 7:00 at Winthrop University Hospital in Mineola. Dr Peter Green will be speaking. Open Original Shared Link for more info
  6. elefky
    I haven't tried this yet: Chocolate Cake (Adventures in a glutenfree kitchen) from Simply Tempting, second edition, p. 120 (instructions slightly modified)
  7. elefky
    I have heard that there can be some issues with gluten free dental materials. I have to have a root canal and new crown work. Does anyone know what I have to ask the dentists about? Thanks for any info
  8. elefky
    A couple of years ago there was a very long thread on this forum regarding Brazilian Cheese bread that was a homemade version of the Chebe mix. You might be able to do a search for it
  9. elefky
    I guess I'm the only one who doesn't mind ener-g bread. I buy the "light tapioca" and now they have a new "corn loaf". It's not corn bread but a light bread. When you look at the calorie counts on most gluten-free breads, it's very difficult to fit into a Weight Watchers plan. The light tapioca is about 90 cal (I think) and on WW it counts as 1 point...
  10. elefky

    ARCHIVED Olive Garden

    elefky replied to MKat's topic in Gluten-Free Restaurants

  11. elefky
    There is a new restaurant in Long Beach, La Bottega 36 E Park Ave., 516-442-0982. When I noticed that there is a restaurant by the same name in Oceanside, I looked them up on line thinking that they might be a chain. Their website is not finished but the Long Beach location said that they can make gluten-free panini. I called and they said yes. I immediately...
  12. elefky
    Call one of Mario Batali's restaurants. I think he does gluten-free at each of them
  13. elefky
    Also, for casual (fast food but very good) on A1A (Collins Ave) in Sunny Isles - POLLO TROPICAL check their website, it's grilled chicken, almost all their stuff is safe. Great to take to the beach too (I've been to Sunny Isles for a few vacations)
  14. elefky
    Chain restaurants - Carrabfa's carrabbas.com , Outback (there's always an outback around), PF Changs (there is one on Biscayne Blvd pfchangs.com Pizza Fusion (they use Still Riding Pizza's crust) Lame Advertisement I have heard that The Melting Pot in some locations does Gluten free but I have never tried it. There is one on Biscayne. check...
  15. elefky
    I'm with those that say eat before and bring a small snack. I think it's inappropriate to bring a "lunchbox" to an affair unless you are VERY close to the hosts and they understand. Eat before you go, eat a little something in the car, take small things in your bag (nuts, snackbar, raisins) and have something in the car waiting for you for the ride home...
  16. elefky
    Can anyone recommend any safe restaurants in the DC area? Going for a weekend in June. Thanks
  17. elefky
    I don't like to wait either so I usually take 2-3 of her bagels or English muffins, bake them and THEN wrap them individually and freeze them. They reheat very well.
  18. elefky
    Pizza Fusion 1013 N Federal Hwy phone 954-358-5353 uses "Still Riding Pizza"'s crusts.
  19. elefky
    I've been on Dapsone for 12 years. No problems. Doctor runs blood tests every 6 months. I take 50mg per day.
  20. elefky
    I've tried the chalah (good) and the hamentaschen (also good) Jandi's in Oceanside carries them
  21. elefky
    I prefer Pamela's ginger snaps. Taste more like what I remember Nabisco to be.
  22. elefky
    CAFE FORMAGGIO on Old Country Rd in Carle Place gluten-free pizza and pasta
  23. elefky
    Try RichWhip Frozen non-dairy topping. It's casein-free, but does contain soy. Check rich-seapack.com Also Kineret non-dairy whipped topping
  24. elefky
    A non-gluten-free friend of mine mentioned that she heard a gluten-free kosher restaurant advertised in Great Neck (NY). Does anyone here have any info on this? Thanks
  25. elefky
    It is the same as Villa Milano. They both use Still Riding Pizza. So does Plum Pizza. Check the website for Still Riding Pizza stillridingpizza.com
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