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neesee

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Everything posted by neesee

  1. neesee
    I found this on the delphi boards. Open Original Shared Link
  2. neesee
    I didn't fuss about anything at all. It's been over 20 years now and I'm doing fine. No cancer, no major celiac problems. If I had it to do over, I would get a new colander and maybe replace very scraped up teflon. I didn't use teflon back then. I was too sick to think about things like that. You've gotta love the internet! I didn't have that around to influence...
  3. neesee
    Giving someone a warning is a serious thing. It is never funny! No one should make jokes about it. I took my warning seriously and I will do my best to never let it happen again! neesee
  4. neesee
    Who moderates the moderators? That last little barb hurts my feelings! neesee
  5. neesee
    People who are underweight have low blood pressure. neesee
  6. neesee
    I'm o+ and my gluten-free son is o- neesee
  7. neesee
    Thanks Kris. That's good to know. I can't read small print anymore with or without my glasses. I have no idea what color lipsticks I wear anymore. If it looks good enough, I use that one. neesee
  8. neesee
    I'm confused. Is this what you ate? Open Original Shared Link Or was it this? Open Original Shared Link
  9. neesee
    Here's a little extra info. Open Original Shared Link
  10. neesee
    Did you get sick? Or does it just make you uneasy? I feel kind of sorry for your wife. She matters too you know. Hopefully you can find a kinder gentler way to work things out. For the record, occasionally I will bake a batch of(gluten) cookies for the family. So far, I haven't had a problem. And yes, I am a major reactor. Good luck, neesee
  11. neesee
    I've read about this happening to others as well. I have a feeling these inconsistencies are the reason Dr. Fine hasn't published anything yet. Try having a blood test through your Dr. You might get clearer picture of how you're doing on the diet that way. neesee
  12. neesee
    I was diagnosed back in the dark ages. There was no internet and no local support group to go to for advice. Needless to say, I didn't think to replace anything! But something wonderful happened. I slowly got well anyhow. My advice is to do what you feel comfortable with. I would get a new toaster and a new colander. neesee
  13. neesee
  14. neesee
    I think it could be all the water. At least for me it is. The last time I had one of these exams the diarrhea started before I even got to to office. I almost had to cancel. How do you keep a full bladder with diarrhea? Celiac is a real pain sometimes. neesee
  15. neesee
    Hi Fedora, No your reading isn't to in depth for me to understand. I find it to be very interesting. Here's another article that's interesting too. Open Original Shared Link I have no idea what Gluten Wrangler's genes are. He just said he was negative, but he did test with enterolab. He could still have that alpha gene. He wasn't tested for it. Enterolab...
  16. neesee
    Oh I hear you about the stubborn relatives. Mine won't listen either! My brother says he's fine, and my dd's don't want any part of the diet. The oldest does have symptoms! Low cholesterol and belly sx's. My son did listen and is gluten-free. His GI dr. said his biopsy was fine. His bowel just looked burned out in spots. Nothing to worry about. Ha! He...
  17. neesee
    According to prometheus, it's not impossible to have celiac with only DQA*0501. Something like this could account for the people here who don't seem to have any celiac genes yet do have celiac. Gluten Wrangler comes to mind. Prometheus told Amooliakin ( over on celiac forums ) that she had half of a celiac gene. DQA*0501 and that while it was rare, it...
  18. neesee
    Fiddle-Faddle, I have to agree. There is so much more to be learned. At least the medical profession seems to be more interested in celiac and gluten sensitivity than in the past. But I have to add, If I were to have my genetics tested, I would choose a more complete test than enterolab offers. neesee
  19. neesee
    In all honesty, I don't think I would completely trust enterolab gene testing. They don't test for anything but the beta alleles. Kimball genetics tests for both the beta and the alpha genes. It does matter. You still don't know if you have a full celiac gene or not. I asked enterolab why they didn't test for the alpha genes and this is their reply. ...
  20. neesee
    I don't eat a lot of nightshades, so I don't think that's the problem. I do eat a lot of sugar however, and my blood sugar is now in the pre diebetic stage. I should cut out the sweets I guess. I really don't think it'll help the aches and pains, but then again you never know. It's worth a try. neesee
  21. neesee
    I have miserable muscle and joint pain. It's gotton real bad for about the last 5 years or so. I have days I can barely walk around. I take a lot of ibuprophen just to get through the day. I have been truely gluten free for 20 years now. Even personal care products! I didn't hurt like this 20 years ago! I don't think it has anything to do with gluten at all...
  22. neesee
    Being grouchy is not acceptable......even if I'm not feeling well! Thanks to all of you for your patience. neesee
  23. neesee

    ARCHIVED Gastritis?

    neesee replied to lizard00's topic in Related Issues & Disorders

    yes.....I also was diagnosed with chronic gastritis along with celiac. I was told it was caused by multiple vitamin deficiencies. Denise
  24. neesee
    Ursula.... I tried to send you a pm. I hope it went through. I don't think I could type it out again. It's long. To all the rest of you, No, I'm not a troll, or at least that was not my intention. I do have scars from my celiac disease. I lost my ability to socialize because of my severe diarrhea. This is why I feel I could use a support group too...
  25. neesee
    No, it doesn't really matter to me how you refer to gluten. I'll admit it I'm stumped Expressing myself through my writing has never been one of my strengths. Put my flute in my hands and i'm good to go. I'm a musician not a writer. I'm sorry. I'm crying. I know you don't want me here. I just wanted to help the newbies to cope without so much anger. ...
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