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NewGFMom

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Latest Celiac Disease News & Research:

Everything posted by NewGFMom

  1. NewGFMom
    This is a super personal decision... but I'll tell you what we did. My son had the ELISA panel in June of 2007 and all the numbers were WAY out of the range of normal. He wasn't particularly sick, but he'd been complaining of stomach aches and was spending way too much time in the bathroom. A very dear friend has celiac and I've been cooking for her...
  2. NewGFMom
    We're staying in Mt Vernon Square near the Convention Center. But I'm guessing we'll be near the museums a lot. We'll have a car too and easy access to the subway too. -Margaret
  3. NewGFMom
    Hi there, I'm going to DC and Philadelphia in April and I needs some ideas for places to take my super picky gluten-free son. He mostly eats gluten free pasta and sandwiches. Are there any hidden gems in either of these cities? We'll likely be bringing his food everywhere with us, but in case there's something out there, I'd love to know about it...
  4. NewGFMom
    She's getting her 2 year old molars.. only about a year late! And that's been making her grumpy. But she's been really healthy this winter (knocking on wood). No fevers or anything. We did the scabies medication last night, and it's significantly better this AM. But it also gets better when the heat is on less and the temp just jumped in boston about ...
  5. NewGFMom
    Hi there, I have a 5 year old celiac son diagnosed through bloodwork and diet (no biopsy). He's been gluten-free since June of '07 and he's just doing great. I have a younger daughter nearly 3 who shows no gastro symptoms similar to her brother (his main "tells" were bright green and yellow poop and stomach issues). But everybody in the family was tested...
  6. NewGFMom
    About 60% of the stuff on their menu is available as gluten free. My son ate pasta there twice and we got the gluten-free pizza out of solidarity. It was really good. It's a thin crust, just crispy and squishy enough to have a great texture. The owner was there the first time I went. He said that they stretch the regular pizza crust out on rice flour to prevent...
  7. NewGFMom
    ARGH. I just saw the box that said "NEW" and I thought, that's it! I read the ingredients and they looked ok.... but alas I got it home and it has barley malt. ARGH! Didn't see the barley malt in the store, it was there at home. My son ate one of them... But so far he's OK. They were really good tho. Next time I'll make sure. It's my first stupid...
  8. NewGFMom

    ARCHIVED Having My Children Tested

    NewGFMom replied to kkkkaty's topic in Doctors

    One thing you can do is get the gene test for them. That would let you know if you could rule it out in the future, or if you have to keep testing. I plan on doing that for my daughter who doesn't seem to have it (no symptoms, negative TTG). That way we'll know if we need to keep testing for it. But if you have a celiac in the family everybody should be...
  9. NewGFMom
    My son is the only one who has celiac, but my house is gluten free. (except for the beer that my husband drinks) I cook all the time and found that I didn't miss it. For bread, I use the gluten-free Pantry White bread mix, and we all eat that. I make tons of muffins and baked goods for snacks. We decided early on, that our house needed to be 100% safe...
  10. NewGFMom
    My daughter (who has had no signs of celiac, and negative bloodwork) gets no gluten at home. But she eats regular pasta at daycare three times a week and also gets some when we go out to dinner. The house is gluten-free for my 5 year old, so she never gets any at home. Nobody is deprived of great food in my house! I think people that don't underestimate...
  11. NewGFMom
    I make gluten-free "breadcrumbs" with a mixture half almond flour, and half cornmeal, garlic powder and herbes de provence (but you could easily use Italian Seasoning). Use egg as the glue to hold them on the chicken strips and cook up in olive oil and butter (or one or the other) and they come out really good.
  12. NewGFMom
    Hi there, The Stone Hearth Pizza in Cambridge, MA has gluten-free Pizza and Pasta. We haven't tried it yet, but I'm going to soon. They're kind of neat. They use all organic ingredients and support local agriculture. Open Original Shared Link The websited doesn't have any info on the gluten-free menu, but I called and they confirmed that they do...
  13. NewGFMom
    Your son sounds a lot like my husband's cousin. His mom put him on a gluten free/cascien free diet when he was about 5. She couldn't toilet train him and he had what she politely referred to as "bathroom issues" meaning that his poop was really weird. His belly was distended and he had stomach aches. She was told by the doctors that "autistic kids are just...
  14. NewGFMom
    We tend to go to Thai and Japanese restaurants where we can get Mr. Picky-ness a bowl of rice pasta. He likes to squeeze lemon juice on it. At a lot of places, hot dogs and french fries are a pretty safe bet, if you call first and make sure they understand about cross contamination. Otherwise, we pack a meal for him and order him a fancy drink or something...
  15. NewGFMom
    If you can tolerate it, you can also use gluten-free oats. Precooked sticky rice also works well in meatloaf too.
  16. NewGFMom
    My husband went to go see Dr. Ayalla at Cambridge Hospital after he had a mildly abnormal celiac panel. (He was only tested because my son has celiac). Dr. Ayalla was really thorough. but it took a really long time to get the initial appointment, and a long time to get the results of the biopsy. But he was a good doctor and is not a celiac specialist per...
  17. NewGFMom
    my son's poop was BRIGHT green, like he'd eaten paint until we figured out that he had celiac. Now we know if he gets some cc because his stool will become pale yellow. He's also a super picky eater. But we found enough stuff on the gluten-free diet that he like that he's happy. BUT it took over six months for the stomach/poop issues to abate on the...
  18. NewGFMom
    It also depends on what kind of kid you've got. A super active kid in a colder climate might do better in a kid space that a professional daycare offers. We had a lovely nanny when my son was a baby, but he ultimately needed more stimulation than one person could provide once he was mobile and the winter hit. The structure and routine and the interaction...
  19. NewGFMom
    We had the same thing. My son and his sister found a year plus bag of goldfish crackers in the car (from pre-diagnosis). He's so used to being able to eat anything he finds because the house is gluten-free that they started eating them and giggling. I turned around and realized what was happening.. AACCKKK!! But NOTHING happened. Usually he reacts just...
  20. NewGFMom
    Hi there, My son had a very abnormal celiac blood panel when he was 3 and he was growing pretty normally. He had had a few dr's visits with low weight gain over the years, but his long term growth told a very normal story. But he was plagued by stomachaches and weird poop. So they did the celiac panel, more to rule it out and lo and behold! his...
  21. NewGFMom
    I don't have a good bread recipe (still looking) but I think psyllium husk is wheat... A celiac friend of mine got violently ill when on metamucil.
  22. NewGFMom
    If he has celiac with positive serology, it can take a year (it did for my son) for his TTG to go back to normal. So, if he's only been gluten-free for a month, I think it's OK to do the full ELISA panel now. You have a good chance of getting an accurate result if it's positive. If it's negative, you can continue with the diet and let him do a gluten challenge...
  23. NewGFMom
    I read somewhere on this form that regular California strawberries are grown with artificial mulch. No gluten there. So, most of the strawberry supply should be safe. But if you're worried, call the 800# on the package.
  24. NewGFMom
    So, my son made a mistake and ate a year old goldfish cracker that he found in my husband's car. We've been gluten-free for a year now, and this is literally his first mistake like this. We keep a gluten-free house and he's used to being able to eat anything he finds in our house. Our house is the safe place for him and that's really important to us. But...
  25. NewGFMom
    for Chicken nuggets try this: Mix almond flour with italian seasonings salt and pepper. (You can make your own by putting almonds in the food processor). Just beat an egg and dip raw chicken tenders into the egg and then coat well with the almond flour mixture. Cook it up in some canola or olive oil and nobody will know you didn't use Italian breadcrumbs...
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