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frec

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Everything posted by frec

  1. frec
    The peanut butter cookie dough has dairy and eggs but no soy, but the chocolate walnut ones don't have dairy or soy. They do have egg whites, I think. The pancakes have soy. My Trader Joe's in Oregon (I live within walking distance--lucky!) also has a very decent gluten-free rice bread at a good price--makes good toast. They also have a good price on...
  2. frec
    That really helps. Tweaky is a good word for it. My muscles just don't let go. Anyway, thanks so much.
  3. frec
    OK, I'm desperate, and this forum is a great source of well-informed, obscure medical information. I am in serious pain. I've had back problems for five years and a frozen shoulder for over two. I am doing physical therapy to help--just gentle exercises. My arm has pretty much regained its range. But in the last two months my ribs started coming off....
  4. frec

    ARCHIVED Fat/mental & Celiac?

    frec replied to Cag's topic in Doctors

    I think the least useful person I've seen about my celiac disease was my gastroenterologist. Sure, he could do the endoscopy and diagnose me but that was the only useful thing he's done in the last five years. I agree that you need to see a new doctor, and I would recommend a naturopath if you can find a good one, or someone who really knows about nutrition...
  5. frec

    ARCHIVED Childrens Behaivor

    frec replied to a topic in Coping with Celiac Disease

    I am an elementary teacher, and I've taught for thirty years. Why would teachers believe parents talking about this issue? It isn't common knowlege--even the doctors don't believe patients when we talk about celiac/allergies/etc., and especially if it is connected to behavior. I have the opposite problem, however. I am seeing an increasing number...
  6. frec
    I'm taking Pure Encapsulations--5,000 IU of D3 a day. I was taking 10,000. My blood tests show I am still low but improving--I was surprised considering how much I have been taking. Make sure it is D3.
  7. frec
    The elementary school I teach at (in Oregon) is managing a gluten-free hot lunch once a week for a celiac first grader. Eating hot lunch at school is part of being a "big" first grader--she just felt so left out. There are two other celiac kids in our building. Anyway, if there are any uncertainties about food all the teachers know to send them to me, and...
  8. frec
    Some people on this forum were discussing the addition of soy lecithin to Almond Breeze. Here is the email the company sent me--lots of CYA statements, and not much help, unfortunately. Good Afternoon Susan - Thank you for contacting Blue Diamond Growers. Soybeans are a major allergen under the Food Allergen Labeling and Consumer Protection...
  9. frec
    Amen, Violet! Really, there are only so many food parameters I can keep track of. Then there are the ethical considerations--plastic packaging, free range eggs, local produce, etc.--and price!? I've kind of given up looking at the price, since there is usually only one product with the right combination of ingredients. I appreciate the advice about...
  10. frec
    I gave up dairy before 2000. I only gave up soy and casein/whey this year, though (on the recommendation/testing of the naturopath), so maybe that will help. Thank you. What I'm reading on PubMed, however, shows my naturopath is correct. There is research that shows continuing villous atrophy in some celiacs. He still may be ripping me off on the supplement...
  11. frec
    I appreciate the advice, and I am not convinced as to the effectiveness of the GI supplement either. Naturopaths believe in nutritional and herbal supplements, and I can always stop taking this one. But I was diagnosed celiac 5 and 1/2 years ago, and have followed the diet as perfectly as anyone can ever since. Yet I still, when tested, keep showing nutritional...
  12. frec

    ARCHIVED Recommend A Doctor In You State

    frec replied to a topic in Doctors

    Dr. Noel Peterson, naturopath 560 First Street Lake Oswego, OR 97034 503 636 2734 very intelligent and up on all the research, listens well
  13. frec
    I just saw my naturopath. He had me on a GI repair supplement. I finished the bottle and asked if I should stop taking it. He said no, I should take it the rest of my life, because celiacs, even if they remain on a gluten-free diet, continue to have some "continuing villous atrophy". I had suspected this for years (given the way I keep coming up short...
  14. frec
    Hooray! I just got some good news. I am 51 and got diagnosed with osteoporosis this summer. I also started menopause. I did not want to try any of the lovely pharmaceuticals because I have had lots of dental problems and jaw surgery twice. My naturopath put me on masses of supplements (vitamin K, 5,000 IU vitamin D3, calcium apatite, and a GI repair supplement...
  15. frec
    Hi--I'm sorry you aren't feeling better. One problem is that it takes a while for your intestines to heal. You might consider at least giving up dairy. Your intestines may still be too damaged to make the enzymes to digest the lactose in milk. There are lots of alternatives. You might avoid soy milk as a replacement though, because a lot of celiacs can...
  16. frec
    I don't know about DH, but my acne improved about 80% when I went gluten-free--a lovely bonus.
  17. frec

    ARCHIVED Lunch Ideas

    frec replied to frec's topic in Coping with Celiac Disease

    Wow. I am reading all these posts and making a shopping list. I shouldn't have gotten so discouraged, but the new soy allergy really threw me, and I've been busy with other health problems this fall. Thank you all very much!
  18. frec

    ARCHIVED Lunch Ideas

    frec posted a topic in Coping with Celiac Disease

    What do you eat for lunch at work? I can manage a celiac diet fine at home, but my list of lunch options is getting increasingly limited. I have very little time to eat at work. I am an elementary teacher and usually spend any breaks helping kids in the room or prepping my next lesson. In addition to gluten I can't have dairy, soy, corn, potatoes, or...
  19. frec
    Hey, don't give up. Your intestines are still recovering and still don't absorb all the nutrients you need. You might be anemic or something, and that would account for your fatigue. Your doctor could do a basic blood test to check your iron level. You probably need to take calcium, and that will absorb better with additional vitamin D3. Most celiacs...
  20. frec

    ARCHIVED Naturopath/homeopath

    frec replied to jmengert's topic in Doctors

    My naturopath has been enormously helpful. He helped me track down some additional food intolerance problems, helped my with my intestinal absorption problems, and put me on really good nutritional supplements to deal with adrenal fatigue, depression, and osteoporosis. He knows SO much about nutrition. So many of my health problems are nutritionally based...
  21. frec
    At least try going lactose free, which is easier than going entirely dairy free (no whey or casein as well). I react more obviously to dairy than I do to gluten. There are lots of good dairy replacement products--well, let's be honest, I've never found any decent cheese since I am completely dairy free, and there is casein in most soy cheeses--but there...
  22. frec
    Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) IgA Total Serum IgA This is the panel of blood tests for celiac disease. The test won't be valid if you have been gluten free for 6-7 months. I noticed that some of the food allergies they said you had contain gluten: wheat (obviously...
  23. frec
    Could he eat potatoes--nice plain baked potatoes with olive oil and salt, perhaps? Could he have cashew butter? I've seen it at Trader Joe's and other stores with alternative groceries. Could he eat hummus (garbanzo beans, garlic, sesame, olive oil) or some sort of canned pinto beans? I know legumes are hard for some people to digest but for some reason...
  24. frec
    Why don't mainstream doctors KNOW these things?! I struggled with depression and anxiety for about four years; nobody told me it was associated with celiac disease. I found out for myself online. My new doctor told me that serotonin, one of the neurotransmitters that are low in depressed people, is generated mostly by your intestines, not your brain. ...
  25. frec
    I had a follow-up endoscopy last summer to see if my intestine was healing all right. That evening, instead of perking up after the anesthetic, I had chills and a fever of almost 101. I called the gastroenterologist and he said I must have come down with flu right after the procedure, and it was just a coincidence. I was OK in about 12 hours. I still...
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