Jump to content

WW340

Advanced Members
 View Profile  See their activity

  • Posts

    311

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by WW340

  1. WW340
    I think I would just say something like "hey, I notice you are not on the gluten free diet right now, so can we relax the rules at home for now?" Or, "now that you are taking a break from the diet, I am going to relax the rules at home. Just let me know when you want to go back to a safer kitchen." Or something similar. The point being, let him know...
  2. WW340
    It means you have had Mono at some point in your life, but not recently. Here is some information about it. Open Original Shared Link IgM to the viral capsid antigen appears early in infection and disappears within 4 to 6 weeks. IgG to the viral capsid antigen appears in the acute phase, peaks at 2 to 4 weeks after onset, declines slightly, and...
  3. WW340
    My son had this problem. He does have celiac, and it does run in families, but I do not know of any celiac relationship. The pad and bell worked wonderfully for us. It was like a magic cure. You have to work with the program by getting up with the child and washing their face and completely waking them up, but after several times, they get it and start...
  4. WW340
    I would have a really adamant response to this situation. Your daughter has been diagnosed with a chronic condition which requires a specific treatment as given by her doctor. If her treatment is not carried out by all involved with her, she can face life long repercussions, with vitamin deficiencies, week teeth and bones, just to name a few. Failure...
  5. WW340
    I really try to avoid buffets. Even at our large family gatherings, we have all the celiacs get their food first to avoid getting contaminated food. And that is with a large group of people trying to keep from contaminating the line, yet it is easy for them to make a mistake. I always try to order the most likely to be safe item I can find on the menu...
  6. WW340
    My original numbers were very high. My GI said he would not be retesting those in the first year because they could fluctuate for a while and I would likely get frustrated. It was actually longer than that before I was retested, because I didn't feel the need. I know I am staying as gluten free as possible. You might look at how many gluten-free prepared...
  7. WW340
    I have experienced this as well. I think there may be a physiologic explanation for this. I think it is possible that the body is trying to make up for lost nutrients. I think I was starving myself for so long by not absorbing, that my body is trying to prepare for the next famine, or replete what has been lost. My appetite stays in overdrive. There...
  8. WW340
    Being hungry is not uncommon when starting the gluten-free diet. You need to increase your protein to help with the hunger. If you can tolerate eggs, this is a good protein choice. If not, increase meat, chicken, nut butters and cheese if tolerated. The hunger will subside.
  9. WW340
    My vitamin D level was 17. I was prescribed drisdol 50,000 IU 2 x week for several months. My levels went up to the 60's. I was told to take vit. D 3 5000 IU per day. I have dropped back down to 39, so I suspect I will have to go back to the prescription med., since I have osteoporosis and they are trying to optimize my vitamin d while I am on forteo...
  10. WW340
    I am not sure why people that have celiac disease or gluten intolerance feel the need to produce proof to friends and family. I was "classically" diagnosed, however, I have never shown any family member or friend my results. It never occured to me that maybe someone would not believe that I had it. How many people with various food allergies are expected...
  11. WW340
    I had scalloping on biopsy, and it was celiac. There is a high prevalence of celiac disease in crohn's disease. They recently found the genes have a relationship. Here is a link. Open Original Shared Link When my doctor tested me for celiac, he also tested me for crohn's. I have the genes for both, but I do not have active crohn's.
  12. WW340
    You might still see a GI doctor. There is a disease called Eosinophilic Gastroenteritis that can show increased eosinophils in the blood. This can also be gluten related. It is rare, but does occur.
  13. WW340
    It is not unusual to feel hungry on the gluten-free diet initially. To counter act that and any hypoglycemia you need to add more protein to the diet. The hunger will go away once your body adjusts. In the meantime you need loads more protein for the body to feel satisfied. Eat more frequently throughout the day and add which ever of the following you...
  14. WW340
    Yes, the multiple concussions can impair cognitive function. This is usually a short term problem, as in post-concussive syndrome, or long term effects that are currently being studied. I also had very low blood pressure most of my life. I had occasional episodes of passing out. It was not unusual for me to have a bp of 60/40 and feel completely normal...
  15. WW340
    Dr. Donovan is the only peds GI in Tulsa. What kinds of problems are you having? What are you needing? Monitoring, diet advice?
  16. WW340
    New Grist is my favorite gluten free beer. I can drink Redbridge also. I am not fond of Bards, but I don't really care for the darker beers. There is a beer from Spain that is made like regular beer and then the gluten is removed. It is called Estrella Daura. It is great tasting, but I am very sensitive and felt slightly ill from it. It does taste...
  17. WW340
    Almost my entire family and extended family are gene + or double gene positive. Of those, 4 have been antibody positive, including myself and my son. Two other family members are having their biopsies this month. Two others were biopsy negative. We have only had one great nephew that was totally negative. My Mother and her brother both died of intestinal...
  18. WW340
    We actually save money on food now, and eat better since going gluten free. I don't use prepared foods. I cook everything from scratch. We use corn tortillas a lot, along with lots of chicken, hamburger, potatoes and veggies. Rice is a great substitute for pasta. I also buy pasta in bulk from amazon or use asian noodles (cheap). I use corn starch...
  19. WW340
    Count me as one of the lucky ones, too. My husband has been very supportive and reminds others about the cross contamination issues. He is great about making sure we go to places that offer gluten free choices when we go out. We actually enjoy eating good food at home more than going out. What a change for us, but I like to eat, so I had to get very...
  20. WW340
    Oven roasted pot roast with carrots, onions, potatoes. I put lipton onion soup in the water, and made gravy with potato starch. I made a brussel sprouts casserole with dried cranberries and almond slivers.
  21. WW340
    I have had a nickel allergy for as long as I can remember. I can only wear yellow gold. I had to have all the amalgum taken out of my teeth and root canals, because I had such a terrible bone and tissue reaction to it. Here is some information on nickel. Open Original Shared Link
  22. WW340
    I second the Udi's bagel. I think they make great hamburger buns.
  23. WW340
    I agree with the protein shakes. I use Jay Robb shakes. They are whey protein and gluten free, msg free. These can be mixed with cream or ice cream to increase the calories. I personally like to mix them with cream. I would use these between meals to increase calories and protein. I am so sorry you are having these problems.
  24. WW340
    I had to see a corneal expert last summer due to constant corneal tears that happened at night during my sleep (recurrent corneal erosions). He feels my problems are probably celiac related. He said celiac sets off lots of other autoimmune problems. He said I have an inflammatory issue with my eyes it could be sojourns or rosacia of the eyes. He said...
  25. WW340
    Here is a link to a simple explanation. Open Original Shared Link Basically: no grains, pasta, noodles, cereal, bread, etc. no potatoes,dairy, sugar, salt no beans including string beans, peas,lentils, peanuts, snowpeas Do eat meat, chicken, fish, eggs, and fruit. Think of things our ancestors would have...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.