Jump to content

dhd2000

Advanced Members
 View Profile  See their activity

  • Posts

    36

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by dhd2000

  1. dhd2000
    No more panic attacks and no more terrible nightmares. Also a big reduction in migraines and this pain I had in my right leg is gone unless I accidentally get glutened! Dee in NC
  2. dhd2000
    It is emotional, it's really mourning the way things used to be! And if you're pregnant, you have double the emotions going on. So give yourself a break. There's a learning curve and you'll make mistakes early on, that's ok. But you really do have to stop eating things like regular toast for your protection and your baby's protection. Stock your pantry/fridge...
  3. dhd2000
    Hello and welcome. I had quite a few of the symptoms that you listed. Most have resolved on the gluten fee diet I think things would have been different for me too if I had been diagnosed earlier, but there's no point in looking back, so just focus on healing and improving now! I had extreme fatigue, mental fog, trouble concentrating, sores and a rash that...
  4. dhd2000
    The good news is that you know you can feel better! The bad news is that for most people, it's not worth it to take chances with cross-contamination or eating out at restaurants that don't offer gluten-free choices. It just takes some time to see what works for you, and you might need to adjust your typical meal plans. I eat a lot of rice, eithe with stir...
  5. dhd2000
    Have you thought about something like accupuncture? That has worked miracles for me in the past. Good luck and hang in there, you will continue to improve!! Dee in NC
  6. dhd2000
    Hi, my symptoms have definitely chaged over time. I used to have DH (the skin rash associated with celiacs), heart palpatations, anxiety, the big C... I don't get DH at all anymore, but now I can get stomach cramps, gas, bloating, the big D or C, anxiety... Strangely, it's not always the same symptom and I can't figure out a pattern. I have gotten much...
  7. dhd2000
    The tests for celiac disease are different from the tests for a wheat allergy. I don't know anything about duodenitis, but with the symptoms you're describing, you may want to go ahead and request the celiac testing, especially with the elevated antibodies. It's good to have the tests done before you go gluten-free so that you get accurate results. Good luck...
  8. dhd2000
    I don't know why, but I can't tolerate coke anymore either, and neither can my sister, both diagnosed celiacs. I think maybe it's the high fructose corn syrup that's just too much for intestines that are still healing??? I also can't tolerate diet-coke, maybe the artificial sweetners? Hang in there, the healing isn't quick, but it does happen.
  9. dhd2000
    It may be DH. When I had DH, it was incredibly itchy to the point of keeping me awake at night. And I have had it under my arm before, as well as other places. I also get the all over itchy, bugs crawling, anxiety feeling if I accidentally have gluten now. I can't imagine eating it on purpose now (2 1/2 years gluten-free), in fact I've had nightmares...
  10. dhd2000
    Hi, I was never an athlete until going gluten-free, I was always too tired and achy. Now gluten-free for 2 1/2 years I am really enjoying playing tennis and taking dance classes and long walks with the dog. I think as far as losing weight goes, if you replace the gluten in your former diet with lots of gluten-free bread products (muffins, cookies, bread...
  11. dhd2000
    I used to get DH on my face and once had a terrible outbreak on my lips. I ended up getting a blister on my knee biopsied for confirmation much later. If yours is DH, you can get outbreaks from iodized salt and ibuprofin products (like advil). I gave up both of those, along with most processed corn, like high fructose corn syrup, and my DH has been gone...
  12. dhd2000
    I had anxiety and panic attack problems before going gluten-free. Now, two years later, I rarely have those issues and when I do, I can easily trace it back to something I ate. I agree with the other posters about finding other things that your body does not tolerate. I get symptoms from artificial sweetners and processed corn, like HFCS or maltodextrin...
  13. dhd2000
    Yes, for the first year I was more sensitive, now two years later, I am less sensitive. Or maybe just better at avoiding gluten! Either way, I feel great. Dee in NC
  14. dhd2000
    Glad to hear you're feeling better! I'm gluten-free for 2 years now and feel like I have a whole new life. I also have three kids and two jobs, but I still have energy! I have been taking a dance class since October, and just signed up for tennis lessons this past weekend. It is amazing what a change in your diet can accompllish. I bet that as you make...
  15. dhd2000
    "May 14, 2009- My myoclonus is almost gone and I have started to sleep without waking up after switching to all unprocessed food in the past three days. " Hi Sylvieanne. I am not super sensitive, so I can't answer some of the questions, but I have reacted to Amy's, so I don't eat them any more. I also react to processed corn like High Fructose Corn Syrup...
  16. dhd2000
    The things that cause those horrible DH/acne reactions for me besides gluten are: iodized salt, corn syrup and ibuprofin. Have you considered any of those? Good luck getting it figured out, I'm miserable when I get them! Dee in NC
  17. dhd2000
    It's scary, isn't it? That happened to me once, before I was gluten free and the only thing I could connect it to was a medication. One that I had taken before and not had problems with. I never took it again and I've never had a similar reaction. Keep benadryl with you for awhile until you make sure it isn't something you're used to eating. Dee
  18. dhd2000
    Hi Bill, your DH sounds a lot like mine was, coming and going, sometimes severe, sometimes not, until I went gluten-free in May 07 and now am completely clear for more than a year. I had some intestinal issues as well, but after going gluten-free, those are much worse now when I do accidentally have gluten, but I no longer get DH breakouts at all!. I would...
  19. dhd2000
    One more quick tip regarding cost, our Super Walmart now carries some gluten-free things, like Gluten Free Pantry Muffin mix and brownie mix, (both are great and you can serve them to others who will not even know they are gluten-free) and Mi Del gluten-free Ginger Snap Cookies, both DeBoyles and Tinkyada pastas, corn tortillas for mexican night, many WalMart...
  20. dhd2000
    Hi Erin, I think that while you are healing (which can take awhile depending on the damage) things like MSG are just too hard on your delicate system. I know MSG is gluten free, but I can't tolerate it and neither can my sister, who also has celiac disease. I've been on the diet since May 07 and feel soooo much better now, but it did take awhile. The...
  21. dhd2000
    If he gets another breakout like the one with the spelt bread, you could get a skin biopsy. If that's positive for DH, he has celiac in addition to his allergies. Is it important enough to get a diagnosis that you would have him eat something with gluten? If he's already allergic to wheat and malt, the only additional things to avoid to be gluten-free...
  22. dhd2000
    I know from personal experience that advil can cause DH outbreaks on me. It seems like it's related to inflammation somehow. Read this: Open Original Shared Link That site has tons of good DH info in the Ask the experts section.
  23. dhd2000
    Is he going to a dermatologist? My celiac bloodwork came back inconclusive, but my skin biopsy came back positive for DH. I think the skin biopsy would be much easier to pursue than the intestinal biopsy. I do think you can have DH and negative bloodwork and int. biopsy. I've learned a lot from this site: Open Original Shared Link From what I've read...
  24. dhd2000
    I hope you get some answers! I agree that the not knowing is the worst. Dee
  25. dhd2000
    I would bet it's the iodine that's been bothering you. I am pretty sensitive to that as well. And if you are still using advil or ibuprofin, giving that up can help quite a bit. I do think other things can cause dh outbreaks, maybe not forever, but at least while you're still healing. I gave up maltodextrin, (which I think is a powdered corn product)...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.