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Latest Celiac Disease News & Research:
Everything posted by mysecretcurse
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Hmm.. I personally don't trust Amy's. I ate a few of her "gluten free" things and didn't feel they were entirely gluten free, myself. I've had reactions to a lot of stuff from that company. Im also intolerant to chickpeas though, so it could be that too, I dunno. What I do is just cook everything from scratch. It's fun, and YOU get to be in control of...
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ARCHIVED Sick Of Getting Glutened
mysecretcurse replied to SGWhiskers's topic in Coping with Celiac Disease
Aww hun I feel you. It's so frustrating. Especially when a simple mistake does it, trust me, I've done it thousands of times, either from not knowing or just not being careful enough. Its so frustrating. It does get easier, but I've been at this awhile now and just somehow glutened myself the other day and have a huge p%$#@# cyst on my chin (thats what... -
ARCHIVED Backpacking South East Asia-just Returned!
mysecretcurse replied to mysecretcurse's topic in Traveling with Celiac Disease
PS- this isn't my picture, it's just a random pic I found on google but this is what Koh Tao is like: http://www.travelconnecxion.com/images/tao.webp Just a lil taste of the beauty of Thailand. -
ARCHIVED Backpacking South East Asia-just Returned!
mysecretcurse replied to mysecretcurse's topic in Traveling with Celiac Disease
Thanks! Yes, it was an adventure for sure, although coming back.. I dunno, sorta left me feeling comedown and hungry for more! I am planning on finding work somewhere later this year and doing some hardcore saving, and then a friend and I are planning to head down to central and south america next summer hopefully! It's supposed to be wild and dangerous down... -
ARCHIVED Any Vegetarians Who Became Meat Eaters After Diagnosis?
mysecretcurse replied to foodiegurl's topic in Coping with Celiac Disease
I went back and forth over this for a long time. Your body craving it means something. You should listen to your body, IMO. -
ARCHIVED Your Daily Vitamin Regimen?
mysecretcurse replied to foodiegurl's topic in Coping with Celiac Disease
Yes! Good for you! That's great. Fast food is disgusting. Not only ingrediant wise, but just in concept. I consider eating to be a spiritual experience, and that experience includes everything, including creating something from raw ingrediants. If I had my own land (and one day I hope to) Id like to extend that experience to include growing my own food... -
Hi Rachel! First of all.. grrrr. It REALLY rubs me the wrong way when I see these post about people husbands or wives not supporting them, not believing them or other things like that (I even remember a post about a womans husband constantly trying to talk her into eating gluten or something like that- WTF!). Your husband should respect and trust...
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ARCHIVED Your Daily Vitamin Regimen?
mysecretcurse replied to foodiegurl's topic in Coping with Celiac Disease
Yeah, absorption is an issue, but I don't know if we absorb all of whats in the vitamin pill either. I'm mostly against taking multivitamins. For whatever reason, I don't have a good feeling about taking them and I almost feel they do something bad to me, Im not sure what. Even the gluten free ones. They kinda irritate me or something, maybe its some filler... -
ARCHIVED Backpacking South East Asia-just Returned!
mysecretcurse posted a topic in Traveling with Celiac Disease
Hello everyone, this week I finally returned from South East Asia back to California! It's good to be home. I learned a lot on my big adventure, had some scary close calls (food-wise, and otherwise!) So I wanted to come here and share everything I can so those who have a passion for travel, like I do, won't have to let celiac hold them back. ... -
ARCHIVED Your Daily Vitamin Regimen?
mysecretcurse replied to foodiegurl's topic in Coping with Celiac Disease
I personally don't take vitamins much, I believe that we should concentrate more on a healthy diet. I used to take tons and tons of vitamins and supplements every day. But after a certain point, my intuition I got from listening to my body began telling me that vitamins aren't particularly good for me, even the gluten free ones. I don't think the body... -
ARCHIVED Thailand, In 3 Days! :)
mysecretcurse replied to mysecretcurse's topic in Traveling with Celiac Disease
Hello everyone, I have returned from Asia! I only was glutened a few times, and I did get very ill with aomebic dystentary and thought my life was over when I was actually freaking kidnapped in Phnom Penh, but that's another story lol. I am safe and at home, and it's late, but tomorrow I will write a big new post with all my notes and tips about food... -
ARCHIVED I Never Thought Travel Would Suck
mysecretcurse replied to Mother of Jibril's topic in Traveling with Celiac Disease
Oh man, I feel so bad for you. I am gluten free but not free of all those other things. I was going to suggest sushi and ice cream (my airport food) but then I saw you are way more limited than I am... I really only have learned how to be gluten free... So I'm so sorry I don't know how to help I just wanted to offer *hugs* and positive energy and to... -
ARCHIVED Any Vegetarians Who Became Meat Eaters After Diagnosis?
mysecretcurse replied to foodiegurl's topic in Coping with Celiac Disease
Hello. I used to be a vegetarian, for three years. I also began craving meat at some point after going gluten free. I started having this inner instinct that for whatever reason, my body needed meat again. I tried to ignore it and be in denial for a long time.. my health was still suffering and I was having difficulties getting all the gluten out of my diet... -
ARCHIVED Thailand, In 3 Days! :)
mysecretcurse replied to mysecretcurse's topic in Traveling with Celiac Disease
Thanks, I will eat as much fruit as I can + maybe plain rice and hopefully I can find some good meat or fish here and there. Nuts are a good idea, especially if I can buy a bag and much on them to keep energy up throughout the day. Thanks again! -
Hey everyone. I'm leaving in 3 days to travel Thailand! I'm hoping for the best when it comes to staying gluten-free. Was wondering if anyone had any last minute tips for me. For instance, any good staple meals that are usually pretty safe? I will be eating at a lot of street stalls and guesthouses with traditional Thai kitchens. Are...
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ARCHIVED Gluten Free: How Long To See Dh Improve?
mysecretcurse replied to JenR's topic in Dermatitis Herpetiformis
It takes me about a month off of any gluten, chickpeas or any other irritants, to fully clear. -
Um.. troll this discussion? I'm not a troll, I'm a member of this forum and have been for some time. I'm simply trying to help by offering the information that I know. If that's "trolling" then I guess this place isn't what I thought it was. (a support group) Yes. I'm aware of this. I also consider myself to be intelligent and I do my research...
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No... for me eating gluten can kill me. The last time I was glutened my thyroid shut down and I was nearly hospitalized. It would be better for me to not eat at all than eat gluten. Id stand a better chance.
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No.. I can't say cheating has ever been a problem for me. I despise gluten and everything that it does to me. I'd never consciously eat it and can't comprehend doing so. You just have to take control over yourself.. I wish I had better advice but it really is that simple. Decide something, and stick to it. It's your health.. your life. You need to get...
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ARCHIVED Meat
mysecretcurse replied to mysecretcurse's topic in Gluten-Free Foods, Products, Shopping & Medications
It's required? What about the hidden gluten in things? Or do you mean that it's required for MEAT products only? Because that would be very good news. I bought a raw chuck steak last night, it didn't have an ingrediants list so I hope it was okay. I felt a little tired after eating it and I was sick last night but I've still been experiencing the reaction... -
ARCHIVED Just Curious! But What Do You Eat For Breakfast?
mysecretcurse replied to TiredofTums's topic in Gluten-Free Foods, Products, Shopping & Medications
I see a lot of people have already answered but I will do the same. Every day for breakfast I throw some different fruits in the blender and make a smoothie. I add spirulina to make it awesomely nutritious and a pretty dark green color. I also add hemp protein which is very nutritious also. One of my favorites is apple, pineapple, strawberry and kiwi... -
I totally hear you. I think our illness is our assignment. It's an opportunity to become stronger and to REFUSE to let anything hold us back. I want to travel too, although I doubt you want to travel like I do, as a hitchiking homeless person lol.. eating at restaurants isn't really even an option for me unless someone else pays. But anyway, you can...
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I'm really confused. I don't get how you got a "tolerance" from EATING gluten. Shouldn't it be the other way around. I also don't get how you couldn't remain gluten free in Italy. They didn't have any meat there? Or fruit? Or salad minus the dressing? Or cheeses? I mean there should be a lot of things you could eat. I understand accidental glutenings but...
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ARCHIVED What Can The Autoimmune Thing Do To Us?
mysecretcurse replied to utahlaura's topic in Coping with Celiac Disease
This is so true. I used to get colds that lasted MONTHS, literally. I'd be sick from like sometime in November and not get over it til mid march. People would always ask "What's wrong with you?" (thanks thats a lot of help). This winter was the first time in my LIFE I caught a cold, and got over it within about a week, like a normal person! Dear god, thank... -
These people sound like total SH*THEADS if you ask me. Pressuring you to have "just one bite"? WTF??? You don't need to go into shock for gluten to threaten your life. Make these people aware that damage from gluten CAN kill you. All my friends and family have always been supportive as possible. They don't understand it, and often times HAVE tried to...