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Latest Celiac Disease News & Research:
Everything posted by mysecretcurse
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ARCHIVED Not Wanting To Attend Any Social Functions Involving Food
mysecretcurse replied to Shanmegjilal's topic in Coping with Celiac Disease
I got sick of the social awkwardness that comes with bringing your own food or having to explain, so I stopped going. I'm not really involved in much that would require me to go, (I don't do church or anything like that) so it's usually not a big deal for me. When I have social eating functions, I have them at my house and I cook everything. If friends want... -
ARCHIVED Does Super Sensitivity Exist?
mysecretcurse replied to weluvgators's topic in Super Sensitive People
Yes, skin issues are probably my number one symptom other than mood/behavioral issues. The tiniest cc exposure to gluten (even a washed pan) and I get large, extremely painful cystic acne like lesions all over my face and sometimes scalp and even my neck. Along with that I get very disorientated, dizzy, nauseated (sometimes vomiting) hot/freezing flashes... -
ARCHIVED Does Super Sensitivity Exist?
mysecretcurse replied to weluvgators's topic in Super Sensitive People
Yes I don't understand that either! What is the difference between those who becomes less sensitive and those who become more and more sensitive? I wish we could pinpoint what is different about us verses them... is it that we are lacking something? Some deficiency? Is it that our intolerance was worse somehow or that we had more damage by the time we found... -
ARCHIVED Does Super Sensitivity Exist?
mysecretcurse replied to weluvgators's topic in Super Sensitive People
Super sensitivity definitely exists.. I've been gluten free since 07... discovered my other sensitivities and finally got my situation under control in 09/10... (other sensitivities: soy, dairy, corn, and all other grains even rice).. found it was too much trouble reading labels and went entirely unprocessed/high raw in 2011. My home is allergen free... -
ARCHIVED Problems With Support Groups
mysecretcurse replied to Wise's topic in Introduce Yourself / Share Stuff
Okay, that just makes me mad, and is ABSOLUTELY untrue. You cannot speak for others in this way. I almost DIED because of my condition. I have no doubts. -
ARCHIVED Problems With Support Groups
mysecretcurse replied to Wise's topic in Introduce Yourself / Share Stuff
I agree with this. Not all of us had any sort of medical insurance or money. I was working part time minimum wage and barely surviving during the time I was figuring out my gluten intolerance (which based on the symptoms I am 99.99999% sure IS celiac disease). I trust my own process in figuring this out and my own intuition and I don't like the idea that... -
ARCHIVED No More Eating At Restuarants
mysecretcurse replied to raindrop's topic in Super Sensitive People
I believe it's been about two years now since I've eaten out at any restaurant, including when I did a road trip across America and back. I simply brought my cutting board and other tools and stopped at grocery stores along the way and made really big salads, plus eating bananas and other fruit. I'm mostly a raw foodist anyway, so restaurants just aren... -
ARCHIVED My Stomach Is Killing Me!
mysecretcurse replied to jenngolightly's topic in Food Intolerance & Leaky Gut
Holy crap some people are far too sensitive... That wasn't even being mean. Go look at the history of my posts and all the people I have offered my time to try and help here before you call me rude or mean. I wont try and help people here anymore if they don't want to be helped. No need for me to bother wasting my time if I'm going to get snapped at in response... -
I've been following (and relating to) your posts and some of your feelings for awhile now and I just wanted to say I'm sorry you are feeling so bad. I wanted to know if you've ever tried EFT...(emotional freedom technique). I'm pretty energetically sensitive and I pick up on a lot of anger, discouragement and doubt (disbelief that healing is actually possible...
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I second the shampoo comments. My scalp DH didn't go away until I stopped using shampoos that contain chemicals and what not.. even if they didn't say "wheat" on the label anywhere I had the same reaction. Now I use Desert Essence Organics Green Apple and Ginger gluten free shampoo... it smells amazing and my scalp is perfect!
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ARCHIVED Are There Levels Of Sensitivity In Celiacs?
mysecretcurse replied to sandsurfgirl's topic in Coping with Celiac Disease
Yes, there are many different levels. I can't even touch gluten without a violent reaction. -
ARCHIVED Help With Whole Foods Diet?
mysecretcurse replied to gfinchandler's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hey there. I'm on a whole foods diet myself. Best thing I ever did for my body. Processed food is nasty and contains so many chemicals and other things. I used to be just gluten free but still eating processed food but then I stayed sick for a long time and eventually figured out that processed foods almost always contain something that bothers me. Figuring... -
ARCHIVED Toxic Grains
mysecretcurse replied to kayakgal's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I agree. Its disturbing. What's even more disturbing to me is the way things like wheat, corn and soy are marketed and pushed on us as "health" food when the truth is far from that. Scary. I don't know if its a big evil conspiracy or if companies are just that stupid/dont care but yes, imo we ARE being poisoned. It seems like everything pushed as healthy... -
ARCHIVED What Can I Do To Help Speed Recovery?
mysecretcurse replied to sandsurfgirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Girl, its been years for me and I'm still healing. It takes time. A lot of time. Even healing to where you feel better in a few weeks wont compare to the healing you see overall in the next months, years of your life! Its amazing, but a hard journey too. For some immediate relief I suggest eating mostly green smoothies for a couple days, with some food fat... -
ARCHIVED Just Found Out That I Have Celiac Disease
mysecretcurse replied to chsteele's topic in Coping with Celiac Disease
You dont need any special products or "replacement" foods. Just stick to whole, unprocessed foods you make yourself. Meats, veggies, fruits, rice, good oils, avacado, nuts. Etc. -
ARCHIVED Hypothyroidism Or Super Sensitive Gluten Reaction?
mysecretcurse replied to butterfl8's topic in Coping with Celiac Disease
Yes, breathing it in seems to hurt me worse too! Ugh... its awful. Terrifying. I won't be somewhere with flour in the air. Period. Good news is the thyroid thing DOES heal! I used to be so sick... literally shivering and unable to get warm at 70 degrees... I spent an entire winter sore all over my body from the constant shivering and having to soak in... -
ARCHIVED We'Ll All Be Eating Gluten In About 15 Minutes...Sorry
mysecretcurse replied to camprunner's topic in Coping with Celiac Disease
Thanks Ravenwood for saying just what I wanted to say... These people don't seem to love you very much, OP... I'm very sorry for that and very sorry for your pain and you have every right in the world to be angry. My family and friends have been noting short of wonderful and supportive to me. There were times in the beginning that they didn't understand... -
ARCHIVED My Stomach Is Killing Me!
mysecretcurse replied to jenngolightly's topic in Food Intolerance & Leaky Gut
Have you read the thread about the specific carbohydrate diet? Might be of some help for you... its in this forum. -
ARCHIVED My Stomach Is Killing Me!
mysecretcurse replied to jenngolightly's topic in Food Intolerance & Leaky Gut
I didn't mean it to be harsh... think of it as tough love... Really, I didn't mean to come across mean, I was just trying to get you to see the reality of eating a bag of chemicals and then complaining of a stomach ache.. and connect the two. Ya know? Really, I wish you the best, thats why I post, if I didn't care, I wouldn't post. I do hope you stay... -
ARCHIVED My Stomach Is Killing Me!
mysecretcurse replied to jenngolightly's topic in Food Intolerance & Leaky Gut
Thank you for saying what I was going to say... I don't mean to be mean but this post made me laugh also. Anyone who gives a rats a** about their body wouldn't put something like that into their stomach. Maybe you just don't know how bad all that crap is for you so I apologize for being hard on you, just trying to wake you up hun... you just ate a bag of... -
ARCHIVED People Who Don'T Understand The Seriousness Of Celiac
mysecretcurse replied to sandsurfgirl's topic in Coping with Celiac Disease
*Hugs* You've come to the right place.... I'm so sorry for the pain you are in now... we've all been there in one way or another. I am only 27 now but it took 25 years of suffering for me to figure out what the problem was so while it isn't as long, I understand that frustration. The good news is NOW YOU KNOW. Which means now you can begin healing and be... -
ARCHIVED Cultural Aspects Of Food
mysecretcurse replied to sandsurfgirl's topic in Coping with Celiac Disease
You are in the grieving phase and thats ok... give yourself time to grieve. We all understand. Life is still going to be okay. I haven't gone out to eat with people I love in like 100 years it feels, and yet my life doesnt feel any less good. Something to remember is that there are a lot of experiences in life. More than we would ever have time for in one... -
ARCHIVED What To Do When It Seems Like It Just Isn'T Worth It
mysecretcurse replied to MagpieWrites's topic in Coping with Celiac Disease
We have a lot in common. I also almost died from an oral infection! The only difference is I already have my superhero powers! Hang in there girl... <3 -
ARCHIVED Dairy Again, Ever?
mysecretcurse replied to OptimisticMom42's topic in Food Intolerance & Leaky Gut
Really? I'm pretty sure its casein for me... because low lactose/lactose free stuff or whatever like goats milk did the same thing to me... will it last forever? -
ARCHIVED Dairy Again, Ever?
mysecretcurse replied to OptimisticMom42's topic in Food Intolerance & Leaky Gut
I'm in the same boat, also want to know. Id never eat crap like ice cream or milk again but I REALLY miss greek yoghurt... last I checked I wasn't even able to tolerate goats milk either, which is supposed to be easily tolerated by people with dairy sensitivities... but nope. One bit of goats cheese and I broke out in huge cystic acnes all over my face.....