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Lisa16

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Everything posted by Lisa16

  1. Lisa16
    Here goes. It is hard if you don't specify exactly what you want to say. I would say something like this. No puedo comer nada que tenga gluten. El gluten es una proteina que se encuentra en la avena, el trigo, la cebada y el centeno. No puedo comer nada que se elabore con estos ingredientes... ni siquiera puedo estar en contaco con la harina de trigo...
  2. Lisa16
    BC= befgore celiac AD= after diagnosis Some events make you measure your life in terms of "before this event" and "after this event." Tomorrow will be one year for me. Lisa
  3. Lisa16
    Here is what I have found that works for me. I have lots of topical reactions, even to hypoallergenic products. These are organic or natural products-- many do not have SLS, dyes (Lush does sometimes-- you have to watch them) or synthetic fragrances. This list was a long time in the making. Shampoos: Lush solid shampoo bars Burt's bees Desert Essence...
  4. Lisa16
    Oh yes-- I looked and looked. SLS is bad news for me too. Plus I have an allergy to sulfa drugs AND sulfites/ sulfates (so no wines or dried fruits). I think Sulpher can be super toxic. You want: Burt's bees (super shiny, color keeper-- look at labels) Desert Essence (all are gluten-free, SLS free) and LUSH! Lush is great. They have solid...
  5. Lisa16
    Hi Coldnight! My pain was gone after 1 day of gluten free-- that pain that wakes you early in the morning and keeps you up until you start getting sick first thing in the morning. The D took about 4 days to go away, but it went away for good (barring an accident). It took me quite a while to figure things out too-- I made some mistakes during the first...
  6. Lisa16
    It is frustrating because IBS is really a dead end "diagnosis"-- it is just a convenient label for a group of symptoms doctors "can't explain." I was diagnosed with it at 17 and finally diagnosed as celiac at 41. I say dead end "diagnosis" because doctors tend not to do further testing once they see it on the record and they tend to attribute everything...
  7. Lisa16
    I have the DQ7 and am a diagnosed celiac (positive bloodwork, postive DH biopsy and postivie response to gluten-free diet.) I also carry the DQ6 gene. The DQ7 is a gene associated with narcolepsy and nerve problems. And in addition, it appears to confer some protection against mad cow disease. Go figure. Lisa
  8. Lisa16
    You are protected under the ADA. There is currently a thread on this in the gluten behavoir section with links to the law. People use the ADA to make sure their kids get safe lunches. You can use it in a case like this too. Sorry. Lisa
  9. Lisa16
    Thank you thank you thank you thank you ! I missed everybody.
  10. Lisa16
    Two words come to mind: Persian rug. Yep.
  11. Lisa16
    I am also a professor at a large public university and there is a lot to be said for having that kind of job. In fact, if I did not have a job where I could set my own schedule and spend the time I am not teaching at home, I would be in very big trouble indeed. You might say I even choose my job based on that freedom. And you can't beat having summers...
  12. Lisa16
    Great thread! All of the above for me too-- including the parking lot at Orchard Beach in Maine (off season). Not a field or bush was spared. Panicked in West Texas because there was no cover. Knocked on doors in desperation. Used leaves and napkins and museum tickets and train tickets and receipts and theater programs and whatever paper was in...
  13. Lisa16
    Bless your heart, Finally Diagnosed. You must be pretty stressed out. Of course the relevant section is to be found under ammendments. That I know, the ADA does not have a comprehensive list of disabilities, but celiac certainly falls uder that part that reads (and I have pasted this): major bodily functions (e.g., "functions of the immune system...
  14. Lisa16
    We are covered by the ADA in the US. Here are some links: Open Original Shared Link Open Original Shared Link Employers must make reasonable accomodations for us. I bet we could ask for things like a gluten-free microwave or even gluten-free public spaces. Not to mention bathroom access and special considerations (even hand soap, if i understand...
  15. Lisa16
    I wonder about this very thing vis a vis "meal" meetings. For example, sometimes we will have a candidate in and want to do part of the interview over breakfast, get to know them over lunch and then there are the dreaded dinner meetings. These always take place in restaurants. I have only been gluten-free for about a year now, but I have had...
  16. Lisa16
    Here's the thread: Open Original Shared Link
  17. Lisa16
    Thank you Irish Daveyboy! You have the best recipes and I always appreciate your posts. Lisa
  18. Lisa16
    Maybe you also got a bum test strip. That is another possibility-- and more likely, I think. But if there are bum strips, then that is not good from our point of view either. BTW-- I asked my dad (a PhD in chemistry) about why you would have to use these on food items only. He said that the test would work for non-food items, but because the test is...
  19. Lisa16
    Unfoprtunately this disease means that you are going to have to protect yourself this way too. It is true many doctors do not know. There is, however, a list of gluten free drugs online that is pretty handy-- just google it. It might not be up to date, so if your drug isn't there, call the manufacturer. One generic company (the name escapes me right...
  20. Lisa16
    For sensitivity in that particular area, I would use an unscented, undyed simple glycerine soap. You can usually get these at a health food store or places like target. I would get one with the most simple ingredients possible. It should be almost perfectly clear. If you cannot find one like this, neutrogena makes some in boxes that are more expensive...
  21. Lisa16
    Thank you ShayFL.
  22. Lisa16
    My apologies for not seeing the part about the plan, Mike M and ShayFL. What a noble experiment! Thank you both for incurring this expense and checking this product out for all of us. ShayFL-- when you post the results of your control test, could you also please take a minute to explain why the test wouldn't be valid for non-food items as well? I...
  23. Lisa16
    For me this transcends reading the label. Peper plates have no label. Shampoo labels won't tell you if the tocopherol is from wheat and if there is gluten in there or not. Sometimes "natural ingredients" have gluten. I have an idea. Mike seems to be worried about posting the negative results here-- I understand because I have posted email responses...
  24. Lisa16
    Mike M-- if you are still out there-- is there a way you could either post some of your results or provide a link to a place where you publish them? I would really like to know what you found. I am not a doubter. I got glutened from cranberry juice once. That just should not be. Also, it seems to me, like if enough of us got together and tested some...
  25. Lisa16

    ARCHIVED Gluten Dreams

    Lisa16 replied to Lisa16's topic in Related Issues & Disorders

    Cave canem indeed! With barley no less. How hideous. Thank you so much for your empathy!
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