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pele

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by pele

  1. Ali Thanks for the reply. Most of what you say is either in the book or on the website. My beef is that no scientific evidence is given to support much of this conjecture. I accept the basic premise of the diet--monosaccarides that are easy to digest and will not leave behind leftovers to feed the bad bugs, but many things in the book and on the website...
  2. I have a feeling your doctor has a lot of experience putting people on strict diets, so I appreciate hearing what he has to say. I wonder what he would advise for probiotics for someone who is casein intolerant.
  3. Don't forget there is apparently a very high rate of false negatives in blood work. Your tests may come back negative, but that does NOT rule out gluten intolerance or celiac disease.
  4. I often wonder how much of Elaine's worrying about hidden starches and sugars apply to decades old manufacturing practices and have nothing to do with what we should be worrying about today. It would be nice if someone would analyze all of these things for us. Kay, is your son feeling better on the diet? Will he start adding fruits and more veggies? Is...
  5. Hey, I don't have an autoimmune disease. It's the food supply that's diseased, not me. But that's another topic for another day. I like the gut bacteria hypothesis. I hope some clever scientists get to work on this. And speaking of antibiotics: last year one of my animals had a stubborn infection. He was on 6 different types of antibiotics over a 4...
  6. My Nurse Practitioner uses Diagnos-Tech. I too was skeptical. The NP laughed at me at one point and said everyone who comes to her practice is skeptical of pretty much the entire medical field, having been, shall we say, abused by the system for so long. Anyway, 6 months after the saliva testing, during which time I hadn't followed her advice, I got...
  7. Thank you Shay! What is NEEM?
  8. Kay, I am going to pick on you. Please don't take it personally. It is not my intention to offend anyone! We're all here together trying to get well. I have issues with BTVC and SCD, even though I am on the dang diet and have been since early April, so allow me to rant a bit. IMO, Elaine's diet was in part based on conjecture, not science. I have this...
  9. I am also wondering how long it takes for the diet to work. Why should it take a year or two? Seems like a month would kill off any bad bugs in the gut. Anyone have any input on this? I have noticed that my guts are grumblier since the onset of summer fruit season. I can't stay away from berries, mangoes, peaches, plums. I should probably be eating steamed...
  10. Hi Kay I don't think I've ever seen no-sugar bacon. Is there a name brand? Is it chemical-free? I picked up some coconut oil and it has helped. It is saturated fat.
  11. Welcome to the forum. You will find many members here with multiple food issues, such as those in your family. Whenever I or my gluten-eating husband tried to bake with wheat flour, I got glutened. The stuff gets in the air and if you open your mouth, it gets in. My suggestion: don't try it. Get rid of all gluten containing flour. You can make your own...
  12. Hi Ali I don't know how many people are reading this thread, but I'll bet you've rung a lot of bells when you talk about healing the gut and then being able to tolerate gluten. My question to you is this: How does one know that gluten is tolerated? Gut symptoms are only one sign of gluten toxicity. What about the effect on the nervous system, endocrine...
  13. Hi everyone Thought I would chime in quick just to say that we have had a parade of houseguests, gluten-eaters and celiacs among them, and I have managed to stay on the SCD despite ubitiquous pots and bowls of rice, potatoes, chocolate munchies, ice cream, etc. So I must be feeling better on the diet. Here's to green beans
  14. pele

    ARCHIVED What Would You Do?

    I've been thinking about this topic a lot since I replied to it a couple of days ago. I think most people assume no news is good news. For years when I had yearly checkups, I got a letter a few weeks later telling me everything was normal. If something was wrong, like an odd pap smear result, the doctor's office called me. So I respectfully disagree...
  15. You are not alone. I could have written most of what you say. We are surrounded by people with "indigestion" who take OTC meds and avoid things like raw onion or apples because it upsets them. It took me forever to figure out my digestion was not normal. Commonplace, maybe, since there are so many gluten intolerant gluten eaters out there, but not normal...
  16. pele

    ARCHIVED What Would You Do?

    Just out of curiosity, what do doctors do in the case of a patient not coming to receive test results when the tests show the patient has cancer?
  17. It is a little strange if you are expecting soda pop. I think of it as unsweetened fruity fizzy yogurt. Just wondering how it fits in with the SCD and celiac.
  18. Hey, if we keep this up. we're going to overpower the omigod thread. Ali- Here's a breakfast suggestion-I have been making my own breakfast sausage. I'm using ground turkey thigh, but any ground meat will do, then season to taste with sage, savory, thyme. marjoram, cloves, ginger, black and red pepper, salt. I make them into 2 ounce patties and freeze...
  19. Hi everyone Boy am I happy to see so many new posts. I have been feeling very alone out here. Ali, welcome back. I missed you! You always have something good to tell us about the research you have been doing. And Brenda, thank you for the words of encouragement. I feel, in general, like the diet is working for me, but since the begining of summer...
  20. Hi Mftnchn How do you pronounce that anyway? I've had a bad week. Lots of stress and my digestive tract has been waking me up way too early in the morning. I'm not sure if it's something I ate (citric acid in dried fruit maybe) or emotional stress from having to deal with a couple of different issues. I don't think I was glutened, but CC in the kitchen...
  21. Yes, I would say it seemed at first that things were going through kinda the way they left my mouth after chewing. I wonder if this is in part due to the lack of gooey, gluey grain in the diet. But, it seems less so after 4 months. Hmm. Maybe my digestion is improving. Sometimes I chew more thoroughly, but not always. I tend to wolf down my dinner. I am...
  22. The first two weeks were really hard. I went through chocolate and sugar withdrawal. It was an amazing feeling when I stopped craving them. There is half a Dagoba chocolate bar sitting in the cupboard and I don't care. I still eat a lot of dried fruit and honey, but mostly because I am hungry, not craving sweets. It seemed really strange at first to not...
  23. Hi there. I am happy to see this thread pick up again. I know there are others out there on the SCD. If you read through the entire thread, I think you will find that yes, some people do experience "die off" of bad bacteria, yeast or whatever. I've been doing the diet for close to 4 months now and my digestion is the best its been in years (but still...
  24. Hey Shay Looking at your new signature line, I would say you are free--free of processed food substitutes. I am on a similar diet and have never enjoyed food so much.
  25. You are not alone. Many people experience immediate relief upon going gluten-free then begin to experience more distress. It takes time to heal. I, too, experience digestive problems at night which cause insomnia, but it's way better than it used to be! It sounds to me like you are still learning the finer points of staying gluten free. Coffee blends...
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