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pele

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by pele

  1. Hi John and Andrea I read through your posts and the replies yesterday, and later on thought of something. Probably not what you want to hear or consider, but is it possible your chldren ARE cheating, and lying about it? The reason I ask is I once was very close to someone who was a juvenile diabetic. His mother was very concerned and controlling about...
  2. When I go to the local support group meetings, there are always people there who would tell you they are in that 82%, but are still sick. So I wonder. It is discouraging to read that some people who eat gluten until the fifth decade of life or longer never really heal. Even though I feel better and better, I'd guess that a lot of damage was done that won...
  3. I'm fine --the stress was self-induced, the kind you get when you try to change something in your life and it doesn't work out. So back to the status-quo for now. Ali--you are naughty, but we are happy and lucky to have you here. Now I don't have to search all over the board for your posts.
  4. I say go for it. Soy isn't part of the SCD anyway, and you can do it without dairy, eggs or almonds. I only figured out I am dairy intolerant after about 6 weeks on the diet, and I have been happily dairy free ever since. I would miss eggs, but if I couldn't eat them, I'd have beef or chicken for breakfast. If you can eat peanuts, coconut, hazelnuts or pecans...
  5. I'm another one of those people who never eats out. I figure that avoiding gluten in a gluten-serving restaurant is like back in the old days avoiding smoke in the non-smoking section. Hah! What I don't understand is why there are not more 100% gluten-free restaurants. Looks to me like found money for a restaurant owner.
  6. Maybe right here on celiac.com https://www.celiac.com/articles/21688/1/Aty...ents/Page1.html
  7. It is nice to see the thread picking up again. Ali--maybe you can reverse type II diabetes on this diet. On another topic--I have had a very stressful two weeks, and without going into detail about my personal life, I will say that the stress hit me in the gut. I lost weight, I had stomach pain, and my poops looked like something from the pre-gluten...
  8. Open Original Shared Link educational video on celiac
  9. I heard it explained by a NP recently that by the time symptoms occur, your body has been struggling to cope with gluten damage for a long time. Symptoms just mean that your immune system can't take it anymore. Cheating is not worth it.
  10. I have heard there is a new test for gluten intolerance that measures a certain type of gliadin antibody in the saliva--can't remember the name, begins with a D. Demediated?? I have no first hand experience with it but it is supposed to be very accurate. You will likely need to go to a functional med doc or NP for this type of test. In my last post, I...
  11. Hi there, I'm going to be repititious and say that celiac tests are UNRELIABLE. Any doctor who says you don't have it based on a test does not know what he/she is talking about. Some people have had several endoscopies/biopsies done before a biopsy sample was taken from a damaged spot and turned up positive. Some pathologists call minor damage "negative...
  12. Hi GFL As Dawn pointed out, Elaine did not promote a strict intro. She said she could never make up her mind about how much intro was necessary and each edition of BTVC has different info. Are you following the intro from pecanbread? If so, remember that this is a site for autistic children rather than adult celiacs, although the recipes are great. I...
  13. Welcome GFLady and Mslee If you haven't already found breakingtheviciouscycle.info you might check it out. It is the official website. The first two weeks on the diet can be a difficult adjustment but stick it out and things will improve.
  14. Say what??? This is the simplest diet! No complicated grainy foodlike substances to worry about. Just plain veggies, fruits, meats, eggs, nuts, honey, yogurt, cheese, oil and spices. What could be easier?
  15. Dawn Is there a garden store near by? They can tell you what to plant and when. Or maybe a regional gardening book? I noticed when I visited the SE US one summer that people's gardens were nearly done in the heat of the summer, but they had planted early and had fabulous crops by mid July. And I know of gardeners in Florida who plant tomatoes in the fall...
  16. Hi Ken Welcome to the SCD thread. I read In Defense of Food a few months ago after I'd been on the SCD for a while. The book validated everything I had been thinking about. I believe that the elimination of processed foods is the key to the SCD success, even if Elaine didn't really know that. I also wonder how anyboby could read that book and go...
  17. Hi Laurie I have a lot of the same food sources that you do and feel very fortunate. The only fruit I bought all fall were bananas. I picked unsprayed apples off the neighborhood trees and had applesauce every day. Also picked pears and plums. I got about 60 pounds of pears off my own little tree. I spend my spare summer moments at the upick blueberry...
  18. I have no problems with the almond meal, peanut butter, dried fruits or raw nuts. from TJ's.
  19. If you do a lot of reading on this site, you will find a lot of frustration with celiac tests and with doctors. There is currently no drug treatment for celiac. The only treatment is a gluten free diet. Thus, no pharrma reps are hammering at doctors' doors reminding them to diagnose celiac and get their patients on a proftable drug. Plus, many doctors...
  20. Yow!! I buy almond meal from Trader Joe's for 3.99 a lb. I guess I'm spoiled. For breakfast today I had a big serving of cooked Kale and Chard that I picked out of the garden today. We covered the crops before the big freeze and snow in mid-December and they lived through it. I saw organic local kale at the store for $2.29 a bunch, I figure I must have...
  21. I suggest that you get paper copies of all of your test results and read them yourself. That said, you also should know that current testing is very insensitive, that is, many cases of celiac are missed. One study did bloodwork on known celiacs and the lab missed about 70% of them, an extremely high rate of false negatives. Conversely, false positives...
  22. It occurred to me after reading this that I can go into the big discount grocery store and buy 3 lbs of carrots, a lb of celery, a lb of onions AND a 2 lb bag of frozen peas for about the same price as one loaf of gluten free bread. Potatoes certainly are not any cheaper than these vegetables. Rice might be cheaper, but lentils, navy beans and split peas...
  23. I'm pretty sure that site is where I read that the maximum amount of cortef that a person should use is 20 mg a day. My NP offered me 5-7.5 per day which I dithered over for months, then tried. Once I got on that and DHEA I had enough energy to make halfway through the day! As soon as the sun starts to climb I am going to taper off. I forget to take it a...
  24. Sunshine Dairy sells it in the NW.
  25. According to Dr. Peter Green in his book Celiac Disease A Hidden Epidemic, the top reasons for continued illness are (besides ingesting gluten) dairy intolerance, overgrowth of bad bacteria in the gut, microscopic colitis, and lack of digestive enzymes due to pancreatic insufficiency. Sometimes years of eating gluten have caused a lot of damage and simply...
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