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ChemistMama

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Latest Celiac Disease News & Research:

Everything posted by ChemistMama

  1. ChemistMama
    No cetaphil lotions are gluten-free, only their gentle face cleanser. All Vaseline products are gluten-free except for those in the yellow containers (they contain oat protein). Most neutrogena lotions are gluten-free. Take your cell phone to the store and call them, they will confirm that the product you're looking at is gluten-free or not. All...
  2. ChemistMama
    Have you thought of asking your store to order something for you? Arrowhead Mills sells a gluten-free baking mix, and if your store already stocks items of that brand, you could have them order you a case or ask if they could stock it. It's worth a shot!
  3. ChemistMama
    gateau au mais. Fancy name for rich cornbread. Open Original Shared Link Contains sugar, salt, cornmeal, eggs, and butter. That's all! Very rich but super yummy. Lots of raves for this one at the local celiac meet-up.
  4. ChemistMama
    My son was diagnosed at 18 months, in the fall. After I was eating low gluten for about 6 months, it was spring, and me and the husband would sit on the porch and have a beer after a long day with the kids. Guess what? I increased my gluten intake, and lo and behold I got skin problems, which would eventually be diagnosed as DH. If I were you, based on your...
  5. ChemistMama
    I know what you mean! I'm on dapsone but am going off it because it makes my muscles really weak. I have secondary dermatitis from itching so much, and sarna sensitive lotion seems to help, it has a topical painkiller in it. From what I've read, it'll take lots of time, maybe up to a year, for the gluten to get out of your system and reduce your outbreaks...
  6. ChemistMama
    The previous poster is correct; you'll have to go completely gluten free. You can't take steroids or dapsone while pregnant. Be patient; we DHers take a long time to heal after you have an outbreak. How long were you not gluten-free? It can take months for all the gluten to get out of your system and to reduce your outbreaks. My suggestion is to get a big...
  7. ChemistMama
    Also get him tested for food allergies. I know a liitle one who lived for months with a scaly itchy face, and after they took out certain foods it cleared up. This can be done with a blood test. What is the test you're waiting for? An endoscopy? if he 'failed' the blood test, I take that it means that his celiac test came back positive? If so, hang in...
  8. ChemistMama
    You need to contact the government agency in the UK that's in charge of controlling food labeling; in the US it's the Food and Drug Administration. Make sure you understand the food labelling laws, and if they're voluntary or not in the UK. If you want to be sure something is gluten free, contact the company that makes the product and make sure that they...
  9. ChemistMama
    A relative in IL said that their Monicals have gluten-free pizza, I'll have to call mine to see if it's here yet! Open Original Shared Link
  10. ChemistMama
    Thanks for the tips!! As for cravings, a bowl of ice cream beats starchy carbs (pasta, rice) anytime. Wal mart has their 2009 calendars on super clearance, I bought one with enough space to write down my calories every day. I actually grow Stevia every summer and dry it in the microwave to use in iced tea. I'm a tea junkie (but a purist, please...only sweetener...
  11. ChemistMama
    These are people who are diagnosed celiac, not allergic or 'avoiding wheat'. Elizabeth Hasselbeck
  12. ChemistMama
    I have DH and was diagnosed in December. Before I was diagnosed the pain/itching was so bad I'd cry into a bowl of ice cream every night. After going gluten-free I didn't gain, but after I started my DH meds, they made me tired and weak and I've gained at least 8 pounds. I'm weaning myself off the awful medicine, fortunately. I have a nasty case of plantar...
  13. ChemistMama
    If you're in Florida, have you heard of this charity? Open Original Shared Link "...Kessler and her Delray Beach-based celiac support group have raised more than $9,000 to help those too poor to buy (gluten free) substitutes. She and the folks at the Celiac Disease Foundation of South Florida call it their Gluten Free Food Assistance Program. They...
  14. ChemistMama
    Dan, that is exactly what happened to me!! I kept a soaked bandaid on a spot for about 8 hours. the brown square where the gauze was stayed brown for another day, and then turned into a large square blister!!! Ack!!! All the DH lesions around it flared up, too. My biopsies were negative, too. Stay on the gluten-free diet and be patient. It may take several...
  15. ChemistMama
    Nasalady, Did your husband also get a script for bloodwork? He needs to have his bloodwork checked often if he's on Dapsone, oen of the side effects is that it can destroy your red blood cells. Ideally he should have gotten a blood test first to see if he's prone to the condition before going on the medication. Also, read the prescribing information...
  16. ChemistMama
    According to their website, http://www.teavana.com/c=faq/shop.axd/Static only one tea contains gluten, Utopian Jewel Oolong. Did you eat anything at the same time? If not, you may want to call them and ask how they process their tea. PS, FYI, I always Google the company and "gluten free" to find out if they have any info at all on their web...
  17. ChemistMama
    Did you only go gluten free? Usually if there's villi damage there may be some lactose intolerance. My Ped. GI Dr. said that for the first 6 weeks of going gluten-free you also go milk free, only lactaid milk and cheese. Give the villi a chance to heal. My son was super clingy before he was diagnosed and it took awhile (a few weeks) for him to be less clingy...
  18. ChemistMama
    Hi Skyblues= I went on dapsone because the secondary excema I got from scratching my DH was soo bad it wasn't healing. Dapsone is icky, you have to have blood tests weekly for a month then monthly after that. For me it's making my muscles really weak, no fun. I"m going to stay on it until everything is healed then get off it, the side effects are too...
  19. ChemistMama
    PS- Skyblues, my dermatologist told me that steroids do nothing to help DH, it only makes it flare up more after you go off them. If you're really desperate, talk to a dermatologist about going on dapsone. It's a scary drug with scary side effects (I have some), but going on it short term while gluten-free can help ease your symptoms and help you heal your...
  20. ChemistMama
    HI Skyblues and Mrs. Smith - I've read that it can take up to a year to fully get the gluten out of your skin, so be patient. The healing takes a long time. I suggest that each of you get a copy of Dr. Green's book "Celiac disease: the hidden epidemic" Open Original Shared Link I have some tips for you two: I was diagnosed with DH in Dec. but...
  21. ChemistMama
    I just went to a talk by Dr. Fasano from the U. of Maryland, he's one of the leading celiac researchers in the US. He's actually doing a clinical study right now to see if delaying giving your baby gluten can delay the onset of celiac. Open Original Shared Link He presented some preliminary results that suggested that waiting at least a year is best...
  22. ChemistMama
    Sometimes it takes awhile for the old stock to be sold out before the new gluten-free items cam go on the shelves. The Kroeger has the old non-gluten-free chexes, but the Wal-mart has all the new formulated gluten-free chex. BTW, here's a list from our local celiac group that states what Weight Watchers items are (or will be) gluten-free, confirmed by...
  23. ChemistMama
    in my gluten-baking days, I learned in a bread baking class that placing a pan of boiling water on the bottom rack a few minutes before you put in the bread gives a nice crust...it's how to make authenic italian bread with nice chewy crust. The new SChar bread mix actually makes a nice chewy crust, I'll have to use the boiling water method to make...
  24. ChemistMama
    psipsina- I"m a chemist (hence the username!) and your question nudged me on to see if I could find an answer ! Open Original Shared Link This is an entire book about Vitamin E, and on Page 16 it discusses types of tocopherols. Long story short, tocopherol acetate can be synthesized or can come from natural sources; the former is gluten-free, the...
  25. ChemistMama
    Don't forget to add tocopherols to the "Wheat" list. I like this statement from the Afterglow Cosmetics: "Your cosmetics contain Vitamin E. I thought that Vitamin E (tocopherol) was primarily sourced from wheat? Yes, most Vitamin E found in cosmetics is derived from wheat sources and contains gluten. Many manufacturers may not even know what their Vitamin...
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