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GFinDC

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Everything posted by GFinDC

  1. GFinDC
    Some more info (speculation?) on lectins in wheat causing problems. Open Original Shared Link
  2. GFinDC
    Hi pghkid, If you think it is a problem caused by diet, then the thing to do is fix your diet. Try eating very simple meals for a while, with no processed food at all. Your diet is something you completely control, so you can fix it. You could fry some chicken breasts and eat them with peas, green beans, onion or some other veggies. Some pro-biotics...
  3. GFinDC
    Hi pghkid, You could get some Morton Lite salt at the grocery store to use. It is 50% potassium 50% salt. Might help. Avoiding packaged/processed foods for a few months would probably help. Also avoiding eating in restraunts. Have you checked your vitamins for gluten? Also any medications you are taking need to be gluten-free.
  4. GFinDC
    I'd be getting quotes from other hospitals for the endoscopy if it were me. And challenging the cost for the first one. If you ask for quotes, get them in writing, and specify that they include all costs, including lab work and medications. But, no, you don't have to get an endoscopy for her. If her blood work is positive, and she responds positively...
  5. GFinDC
    Hi, Some psyillium husks might help, and pro-biotics. I don't think you need a colonoscopy at this point. Your gut is healing and that takes time. The auto-immune attack takes some time to taper off also. Is the kettle corn gluten-free and dairy free? That might be something to try not eating for a few days.
  6. GFinDC
    Hi, Celiac disease is not an allergy. It is an auto-immune disease. So if the doctor tested you for allergies, that don't worky. I agree with Karen, you need to get copies of the tests and the normal ranges for the results. The ranges vary by the lab that does the testing. The other test they do for celiac disease is an endoscopy of the upper...
  7. GFinDC
    Hi BKBoerst, It is probably going to take a while for his gut to heal. Months to a year or more. I suggest you take it easy on the processed gluten-free foods at first. A simple diet of whole or minimally processed foods is much easier to digest and less likely to be irritating to the gut. It is also simpler to avoid gluten if you use whole foods...
  8. GFinDC
    Hi S, Yes, your symptoms do sound like celiac disease. You should get blood drawn for a full celiac antibodies panel. Be sure to keep eating gluten (wheat, rye, barley) until your celiac disease testing is complete. Other tests you should consider are a bone density scan and vitamin and mineral levels.
  9. GFinDC
    Once a month sounds possible. I'm in.
  10. GFinDC
    Hi, Hard cheeses are mostly casein. So if you can eat cheese without symptoms then it is probably a lactose issue. Another thing to try is lactaid type milks, or take lactose digestant pills with regular milk. That basically works out to the same thing. You are pre-digesting the lactose (dairy sugar) with the pills so it is not a problem. But there...
  11. GFinDC
    I hope it works out well for them Diane. What this article implies is that the right bacteria strains can help resolve symptoms in the mind. So your friend might want to try various pro-biotics as well to see if they help.
  12. GFinDC
    @Colleen, well thanks! @Spud, Thanks to you too Spud. Another possible issue is the gut generation of serotonin. Serotonin is important for regulating mood in the brain. But the gut makes even more serotonin than the brain does. You can find more info by searching for "gut brain serotonin". There was an article in the New York Times...
  13. GFinDC
    The article describes mice with leaky gut like condition and behavior issues that are improved by a bacteria. From Scientific American site: Open Original Shared Link ... Doses of a human gut microbe helped to reverse behavioral problems in mice with autism-like symptoms, researchers Open Original Shared Link today in Cell. The treatment also...
  14. GFinDC
    You are welcome Spudinator! I don't know if you have read about the so called leaky gut issue and the possible zonulin influence on it? In celiac disease the intestinal barrier works differently than it does in non-celiacs. There is a tendency for larger particles of proteins to get through the gut layer. Those particles can wander around and affect...
  15. GFinDC
    Hi Felps, NCGI shouldn't cause lactose intolerance and malnourishment. At least as far is known now. Inflammation is not nothing, regardless of what your doctor said. Did you get a copy of the tests they did and the results? Someone might be able to interpret them if you post them here. A gene test for celiac genes might be helpful also. if...
  16. GFinDC
    Hi Felps, I already responded to your question in the other thread, but now that your thread is moved I'll paste it in this thread. https://www.celiac.com/forums/topic/105380-strugle-abdominal-muscle-cramps-lactose-intolerance/ Hi Felps, I used to have gut spasms when I first went gluten-free. I also had muscles twitching at times. It wasn...
  17. GFinDC
    Hi Mum, If your symptoms went away when you took an anti-histamine (which you did), then it may mean your reaction was an allergy. An allergy test should show that. But, you can have both an allergy to wheat and have celiac disease, they are not mutually exclusive. For some people (like me) my allergy type symptoms (hayfever) went away after going...
  18. GFinDC
    Hi Spud, NCGI may be an immune response, but not the same type of immune response that is active in celiac disease. Very little is really known for sure about NCGI. The studies referenced in the articles below say that the symptoms of NCGI and celiac are the same. Why and how they get to be the same is not known. We may know a lot more about NCGI...
  19. GFinDC
    Hi Mac, As others already said, dairy is often a problem for people newly diagnosed. But if it is not bothering you, then go ahead and eat it. We are all a little different, and my suggestion are for the majority, but don't fit each individual every time. Actually, some of us are more than a little different! But that's what makes people interesting...
  20. GFinDC
    Hi, Since she is off gluten, it is going to be important to do the endoscopy right away. The damage will be healing and the tests are not any use if there is no damage to test. If it is going to be more than a few more days, I suggest putting her back on gluten for now, until the tests are completed. Some reasons to consider going ahead with the...
  21. GFinDC
    Hi Felps, I used to have gut spasms when I first went gluten-free. I also had muscles twitching at times. It wasn't a direct reaction to exercize though. Just because you didn't get a positive on a test, doesn't mean you don't have celiac disease. The testing process is not perfect. Your intestines may be inflamed and irritated. That might cause...
  22. GFinDC
    Hi, Casein is a protein in cow dairy. Eggs don't have it, or meats. It is unlikely for a casein reaction to stop being a problem. It may be possible to tolerate it in small amounts, but it is not something you should eat regularly if you are having a reaction to it IMHO. Daiya makes a dairy free cheese sub that is ok.
  23. GFinDC
    Hi Mac, Whole foods are the opposite of processed foods. Processed foods are things that come in a box, or can or are made up from multiple ingredients in a food factory. Pizzas in a box, or cereal or store bought bread are examples of processed foods. Whole foods are foods like a chicken, or a potato, or an apple, food in their natural, whole state...
  24. GFinDC

    ARCHIVED About Done

    GFinDC replied to w8in4dave's topic in Coping with Celiac Disease

    Hey Dave-waiter, If you are doing a colonoscopy, may as well get an endoscopy too. The endoscopy is what is needed for celiac diagnosis. If is less expensive to have them both done at once, or at least it should be. Can save another trip and appointment too. Since you aren't eating gluten, the endoscopy can't be relied on for celiac diagnosis now...
  25. GFinDC
    Oh, that's awful Tonalyn! Some people just don't understand the importance of a good bubble! Wow, I don't know how you stand it, what a bunch of maroons there! Next thing you know they'll be wanting to get inside your bubble and light up! Can't remember where I got my bubble, but here is a site that sells them. Open Original Shared Link
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