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GFinDC

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Everything posted by GFinDC

  1. Well, two X-ray techs in one thread! We'll have to start wearing lead vests when read the forum.. Good to have you both here!
  2. Hi Jason, Nope, it's not an allergy reaction on the dairy. A RAST test will not detect it. RAST is looking at IgE immune reactions only. There are other kinds of immune cell reactions that it does not detect, IgA, IgG, TTG. The IgE immune reaction is the cause of allergy type symptoms, red eyes, hives, difficulty breathing, swelling face, sneezing...
  3. You are right, doing the biopsy that long after going gluten-free is a waste of your money and time. If your symptoms have improved that is.
  4. (((Hugs Adleaide!))) Well, shoot, sounds like some more diet adjustment but at least you have practice with that stuff. Wondering if it is the cucumbers or the pickles? Maybe you could make cucumber chips in the oven to use them? And maybe we can find a good carob source for you that is gluten-free. It may not be the exact same taste but it works...
  5. Hi Dugudugu, welcome to our little corner of the web! You may not test positive for celiac, but many people here didn't test positive and yet improved greatly after going gluten-free. The celiac tests are not perfect, although positive tests are almost always right, the negatives results have a poor accuracy. One term used for people who have problems...
  6. Welcome sorairobara, it's good to see new faces! HI Kaitlyn! Welcome also. Yep, we ate around, we just don't stick out real well in a crowd after going gluten-free anyway. Since you are both new, I'll share some threads that many people like for info and stuff like that. Some starting the gluten-free diet tips for the first 6 months: Get...
  7. Hi Jason, The next step is to hang out on this forum and ask questions and read, read, read! Endscopy at this point would be quite an ordeal for her to go through with needing to eat gluten for 2 or 3 months and damage her insides enough to be seen. I wouldn't do that to a kid myself. The big payoff for having an "official" gold standard biopsy...
  8. Hi Amberlink, Some of us develop additional food intolerances after going gluten-free. Lactose, casein, nightshades, soy, etc etc can all cause GI and other symptoms. So that's something to check on. There aren't manyhtest for food intolerances though, an elimination diet is the way to go.
  9. Hi Brookvale, I am sorry you are having health issues still. One thing to remember is that people can have more than one health issue going on at the same time. So, just because the doctor says there is a pancreatic duct issue doesn't mean celiac has gone away. You did say in your original post that you had symptoms improve after going gluten-free right...
  10. HI NST, Here are some more threads with info. Celiacs have to avoid wheat, rye and barley. They all have very similar proteins in them and all cause reactions. Some starting the gluten-free diet tips for the first 6 months: Get tested before starting the gluten-free diet. Don't eat in restaurants Eat only whole foods not processed foods...
  11. Right, no degrees of celiac, it is an autoimmune disease, and the immune system is not very forgiving to enemies. There are cases where people have no GI symptoms, and they are called silent celiacs. But that doesn't mean the damage isn't being done. Symptoms for celiac can be all over the board, in any organ of the body, not just the gut. That's one...
  12. Hmm, well it was nice to get out of the house for awhile? And that big gluten-free cake they made for you while you were gone sure must have hit the spot. And those homemade gluten-free cookies, yum-yum! Sorry it wasn't a little more meeting-ey. Around here, one of the local groups meets at a Whole Foods sometimes. Whole Foods is very supportive...
  13. The corn bread probably has wheat flour in it if it was a mix? Ah well, something to watch out for later. Quite a few people do end up without a formal diagnosis. The testing process just isn't really perfected yet. We still don't have the Star Trek tricorder available. May never for that matter.
  14. Hi, The nightshades that bother many people are potato, tomato, peppers, and eggplant. You may react to all of them or just some.
  15. Open Original Shared Link By Open Original Shared Link June 18, 2012 - 03:49 pm ... The allergy concerns people throughout the Commonwealth who have been bitten by the Lone Star Tick. People who are affected have found themselves totally unable to consume red meat. ... Just posting a snippet but full story is at the link. Seems...
  16. Sounds like you may have DH (dermatitis herpetiformis), the skin condition associated with celiac disease. They can biopsy the skin next the lesion to check it for gliaden antibodies. I think you need to have an active reaction going on for that. A gastroenterologist is a specialist in conditions of the digestive system and would be a better choice...
  17. Hi, Your progress sounds pretty normal to me. It isn't a quick fix diet for us, there is damage to heal in our gut and that takes time to heal. Plus the changes in diet take a while for our bodies to adjust to. It seems to me that we do react to many foods at first not so much because they are a particular problem for us but because our GI systems...
  18. Hi Megan, Are you being treated for your Hashimoto's thyroiditis? People with Hashimoto's may need thyroid supplements to maintain adequate thyroid hormone levels and metabolism.
  19. Well, I hope you get a clear result. If it is positive you are all set, stay gluten-free. If it is negative, you otter stay gluten-free anyhow since the false results are not always right. You can always do a gluten challenge after a month or two and see what happens. But since you are feeling better without gluten it is best to avoid it IMHO.
  20. Sounds like a smart doc to refer you here! There are not many food intolerance tests available. Food allergies are different and the do have tests for them. Skin prick testing is probably the most reliable for food allergies. Food intolerances they can test for are lactose intolerance and fructose intolerance. Maybe there are more but I haven't heard...
  21. You've probably seen this list of threads b4, but just in case here it is again. At first I made big piles of rice every weekend with different combos of veggies and meat. Froze most of it and then nuked it when hungry. Do a different version every weekend and pretty soon your freezer will be full of various choices that can be reheated quickly. Some...
  22. Hi Cathleen, The linoleum cases are 30% more likely to.. ok making it up, better stop now! We are all different of course, so healing can vary. There are several members who report having no symptoms before diagnosis though. Silent celiac is the term for that. Some research shows healing can take up to 18 months. But many or most people here...
  23. Good deal Roxie! Here's hoping you score a 100!
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