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fedora

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by fedora

  1. fedora
    vertigo can also be a symptom of a virus. I woke up with horrible vertigo one night years ago. BAD. There was a bug going around. I could not move at all or else the room would spin rapidly. I do not know how I made it to the bathroom. I walked with my head hung down but I still spun like that. I have been more likely to get motion sickness or dizzy...
  2. fedora
    lots of people get skin reactions. I get litte water filled blisters on my hands
  3. fedora
    hi, You have the celiac gene DQ2. Your children have a 50%chance of receiving this gene from you. Even if they do get the gene from you that does not mean the reaction to gluten will be triggered. It can be triggered early in life or later in life or not at all. You should tell your parents, you got the gene from one of them. According to the antibody...
  4. fedora
    ENF, I wrote this already, but you may have not read my earlier post, My daughter tested negative through enterolab. She also has no celiac genes at all. to everyone who responded earlier, I absolutely do not get offended easily and I was not upset. My belly sort of hurt due to the strong emotions and disagreements gone weird. I want us to all...
  5. fedora
    yes. you are DQ2 subtype 2 and DQ7. DQ7 is a subtype of DQ3, but is referred to as DQ7. the DQ types are DQ1 divided into DQ5 and DQ6 DQ2 divided into DQ2 subtype 1 and DQ2 subtype 2 DQ3 divided into DQ7, DQ8, and DQ9 DQ4 so I am DQ2 subtype 2 and DQ5( which is a DQ1) My daughter is a double DQ1. She is DQ5(from me) and DQ6(from dad...
  6. fedora
    wow, honestly this post sort of made my belly hurt. to answer the ORIGINAL posting: I tested postitive for gluten and tTg antibodies through enterolab MY dd did NOT. She tested negative on gluten, ttg and casien antibodies through enteroab. She has also had her total IGA levels tested(in a blood test) and is not deficient. For the tangent...
  7. fedora
    well. It is medically known the DQ2.2 and the correct alpha part from certain DQ7s make the whole celiac gene DQ2.5. I wonder why DR. Fine does not know this or does not care. Either way he does not report it to the people who have both DQ2.2 and DQ7. Of course in those cases, his DNA testing of only the beta parts is not effective enough. Then someone...
  8. fedora
    hi, yesterday I ran into a nutritional consultant(college graduate and licensed in california) doing consultations at a health food store. I went in to get lysine for my DD who has cold sores. She cultured positive for herpes simplex:( So we get to talking about my daughter. After discussing various things she hands me this book, the Mood Cure, that...
  9. fedora
    mine took 2 weeks and a couple of days. My daughter's took the full 3 weeks
  10. fedora
    hi Luciddream, The two halves of the celiac gene DQ2 are DQ2 subtype 2(which has the beta part) and some of the DQ7 strains(which have the alpha part). when DQ2 subtype 2 and the correct DQ7 strain are both present does it form the complete DQ2.5 gene. And of course DQ2 subtype 1 is the complete celiac gene. You may have half the celiac gene. The...
  11. fedora
    my enterolab test was positive, my diet results supported it. My daughter's test were negative, so they do not always come back positive.
  12. fedora
    There are several variations of each gene. You are DQ7 and DQ5. The numbers 0301 and and 0502 tell you the variations. There is a chart on wikipedia with the major variations listed. So you are DQ7(that is 0301) and DQ5(that is the 0502). DQ7 can cause celiac or gluten intolerance on it's own but very rarely. Have you had any blood work done? A...
  13. fedora
    Mine got totally regularly for four months then something threw me off big time. But my flow is the same, BUT my emotional PMS is sooooooo much better. I would get so mad and bitter and for those four months, nothing. When I got thrown off, I did get moody. I am about to get my period now and emotionally I feel fine. YEAH. Hopefully yours will balance...
  14. fedora
    I drink mint tea when my belly is upset. I drink lots of herbal tea, but I had to give up caffeine after going gluten free- no coffee at first and then no green tea either. Herbal teas have no caffeine so they are different than green or black tea which do have caffeine. Did you get the gene test also?
  15. fedora
    hi, did you get the gene test done too? also, when I first gave up gluten my digestion was crazy. My intestines were confused for sure. I did slow down with eating dairy then gave it up. I did not eat any for 7 months, then accidentally ate some. I was fine. Then I accidentally ate it again a week later. I was fine. So I have eaten a little every...
  16. fedora
    hi, I meant to post when I returned from my trip, but time flew by. It was my first trip and I was nervous...but things went well. In San Jose we ate at PF changs. Very very yummy. Even my son(not gluten free) who does not like chinese found something he liked. My DD and I had the singapore noodles and the the buddha's feast. OUr waiter was aware...
  17. fedora
    let us know how you are doing.... I found out about powdered gloves on here because I went to the dentist. I checked all their ingredients, but still had a horrible few days. I read on here that the powder on gloves can sometimes be from flour. Now they use unpowdered nonlatex(latex is not a problem for me either) gloves at the dentist. At home I use...
  18. fedora
    are you sure the nuts aren't dusted with flour or processed on shared equipment. yes, drywall compound can have gluten. so unfair. Do you wear latex gloves for anything? Any gluten in your house?
  19. fedora
    I eat Amy's Bistro Burgers. They are vegan and gluten free. I think they are yummy. My hubby has been a vegetarian his whole life. He does still eat his own bread, tofurky(fake turkey), and Gimme Lean fake sausages. He has his own area to make his food, keep his food, and his own cast iron. I keep most of the kitchen safe with the exception of the...
  20. fedora
    you absolutely need a total IGA level test done. This is run with even the most basic celiac tests usually. You can be a low producer of IGA or deficient. A tTg would be useful too....your dr. used some old tests.
  21. fedora
    hi, remember no test is perfect....... Just because your enterolab showed no fat malabsorption problems does not mean that you do not have any. They test one stool, not a bunch over time. Also you have evidence of malabsorption problems and digestive system damage.....B12 deficiency and lactose intolerance. So if you are up for it an endoscopy may show...
  22. fedora
    My doctor diagnosed me with diet alone. I went off gluten without any real knowledge about the testing. Then when I read about the test I refused to eat gluten again no matter what. I did the enterolab test to help verify it for myself. When I went to see my dr I had been gluten free for 4 months. I brought in a long list of all my symptoms that had...
  23. fedora
    Christie and others wondering, When you get Enterolab testing it only shows the beta part of the genes and not the alpha part. The DQ7 gene has the beta parts 0301, 0302, and 0304(according to wikipedia. There probably is a 0303 but it is rare). The DQ7 gene that has the correct alpha half of the celiac gene has the beta part 0301. So Christie your...
  24. fedora
    I agree with shay.... you can ask for a biopsy and try the gluten free diet AFTER the biopsy or try the diet. good luck
  25. fedora
    have you been to a physical therapist? I went to one finally and am so mad at myself for not going years ago. I have tried eliminating different foods, massage, chiropractor(which helped for awhile but then things would get bad again), and supplements. good luck
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