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fedora

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by fedora

  1. fedora
    wow, weird. so either parent 1's gene 0202 mutated turning into 0201 OR a mistake was made in the lab reading the genes and the parent really has 0201 or the kids really have 0202. seems like if it is a mistake then it is more likely to be a mistake with parent 1 rather than with the two kids.(because then the mistake happened twice) I am not sure...
  2. fedora
    you may want to see a physical therapist. They can evaluate you for misalignments. Mine causes pain in my left jaw(tmj), left side of back, left shoulder and left arm. I have all these exercises to do regularly and they help.
  3. fedora
    oh my, I haven't seen the one with the mom and baby. How awful did they have to kill the baby, that's so unneccesary. last night they mentioned a kid drowning in a tub, the writers must like that tragedy.
  4. fedora
    Mama Ruthie, HI. I have 2 questions. When you said your son had a gluten sensitive gene that is recognized as a celiac gene in Europe, What gene is that? two, your son's speech delays. How old was he when he said his first sentence? Did he says words? How old is he now? My son was slow to talk, he did not say a sentence at all till over two....
  5. fedora
    Hi again. I have the DQ0202 gene like you, but my other gene is DQ5
  6. fedora
    Enterolab says they can test for gluten intolerance for up to a year after not eating gluten, but I would NOT trust that. Lots of people have tested after being off gluten of months, but I would worry about a false negative with that too. Are your sons better on the diet. The genetic test can be valuable to determining their celiac risk factor. I...
  7. fedora
    I have had a few, but not many. This has been a topic on here before, it definately happens to people. Mine have been pizza mainly, but I did dream of a doughnut once too. As far as traveling, I do lots of research before I go. I found out if they have restuarants there with gluten free menus like pf changs, chili's, etc. I also find out where the...
  8. fedora
    Before giving up all gluten( I did not eat wheat) I had to watch out for gaining weight easily. After giving up all gluten I lost 6 pounds but now I have gained 4 back.
  9. fedora
    they don't know everything, the pain could be from celiac, it could not be. I had pain in my lower intestine when I ate gluten and a friend of mine gets pain in her lower intestine whenever she cheats(I try to convince her not to). have they checked his appendix?
  10. fedora
    mhb, I have looked and been unable to find information on why melanoma risks are higher in celiacs. I am very interested in knowing. My one theory is that the antibodies spread through the body and one place they collect is the skin. somehow the skin is very suspectible to the antibodies. I have half of the celiac gene only, DQ0202, BUT I have...
  11. fedora
    Hi.I researched this for weeks, so the Dq0202 gene you have is Half of the total celiac gene DQ2.5. The other gene you have is not the second half of the DQ2.5 gene. so you dod not have the total DQ2.5 gene. However, most celiacs have the genes DQ2.5 or DQ8, but in the celiacs without these genes the most common gene found is DQ0202 alone....
  12. fedora
    I saw it, love House. BUT the writers of the show got their medicine a little messed up. When they saw flattened villi and damaged mucosa when fixing an obstracted bowel, House said it was Whipple's disease. huh? Whipples does cause damage to the intestine but I don't think it causes flattened villi. Then when he had neuological systems they thought...
  13. fedora
    thank you, When I was telling him that I understood his curiosity, I told him that I found my dad's porn video when I was 12 and I watched it. I told him it was shocking and in many ways I wished I had not. He kind of chuckled and said he knew what I meant. I wanted him to know that I did not think he was a bad or disgusting person and that is why I...
  14. fedora
    thanks for the responses. so here is some background on this boy. We live on a dirt road in the country, thirty minutes from our tiny town. This boy lives thirty minutes PAST me. They have no phone, no satellite tv, and no internet. He is definately not exposed to those things often at all. He is not an expert, just an obnoxious curious pubescent...
  15. fedora
    yes, sadly I think that no one will be allowed to use the computer but us. I did find that our blocker had been turned off and not turned back on. It blocks all non rated websites(including this one) so I have to use a password. I turned it off and forgot about doing that, but it is back on now. How do you block the porn on your daughter's computer? ...
  16. fedora
    ugh yuck. so this boy is 12. He is spending the weekend with us. He can be annoying in that obnoxious 12 yr old boy way, but this is way too much. He was on my computer yesterday evening(alone) and I did come in to check on him a couple of times. Every time I did he was looking at a gaming website. He must have heard me walking up. Then I came up...
  17. fedora

    ARCHIVED Itchy

    fedora replied to bakingbarb's topic in Coping with Celiac Disease

    I am an itchy person too. Last winter I had started to eat wheat again some before I went totally gluten free. I itched constantly. It was horrible. But after going off gluten I am soooo much better. I do also itch if I eat too much sugar. I noticed that a long time ago. With sugar it would be on the inside of my thighs, But with gluten it would be...
  18. fedora
    I had blisters on my fingers and palms of hands. They ate half of my hand. They got so bad I could only use my index finger and thumb. I had to use steriod cream at that point to heal them. It was awful. I stopped eating wheat and they went away. I rarely get them now and if I do it is very minor.
  19. fedora
    just wanted to say I am sorry, hope you figure it out
  20. fedora
    hi. When I researched facet joint problems I found facet joint syndrome. It is degeneration of the cartlidge on the facet joints usually due to wear and tear in elderly people or an accident. Did your xray show damage to the facet joints or to the lumbar discs between the vertebrea? OR both? My Dr thinks it is my facet joints due to my description...
  21. fedora
    hi, have you had blood work for RA or anything. What tests have you had done? You mentioned Xrays I have facet joint problems too. My dr has put me on a regimine of yoga, chiropractor, and physical therapy. He wanted me to take anti infamatories but I don't. I having been dealing with this for awhile. The thing that is helping me the most is...
  22. fedora
    I am soooo sorry. I use to throw up horribly as a child. NOw I think it was from gluten. I do not any more thankfully. When my kids were vomiting from whooping cough(no fun) I treated it with a homeopathic remedy. With whooping cough, cough medicines do not work. IT sucks. So my daughter was coughing so much she would vomit. She vomited EVERY time...
  23. fedora
    anyone? please
  24. fedora
    hi, I am a huge avid reader. I just finished The Princess Bride by William Goldman(the 25th anniversary adition). I LOVED the movie AND I LOVED the book too! I read a lot of fantasy, but I read anything. The only thing I have never read is western. but I would. Last year I started a list on my computer of the books I have read. It is easy to do...
  25. fedora
    how touching...I am glad you feel you have healed. I hope things improve for her too. It is always so wonderful to hear of someone who survived hardship and feels blessed. take care
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