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tom

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Everything posted by tom

  1. tom
    With a necessity for a yes/no, I'd be tempted to shift the question to "either I feel better gluten-free or I don't ".
  2. tom
    Oh look! A guy selling an alleged cc pill says that "given the ubiquity of gluten, it
  3. tom
    IMHO this Dr's a jackass & it's infuriating that this type of Dr isn't rare. With quotes like these I'm surprised I recently repeatedly have to defend the Drs who wrote "The Gluten Effect" for not being MDs. MDs who aren't up to speed on Celiac/gluten are all too common.
  4. tom

    ARCHIVED Validation

    tom replied to KMMO320's topic in Coping with Celiac Disease

    Boo! Original GI Yay! New Doc!
  5. tom
    This is somewhat ridiculous to put "according to Dr Vikki Peterson" as the subtitle when it's actually her comments on an article re: gluten-free published in the British Medical Journal. "Published just days ago in the British Medical Journal (June 21, 2012) from authors Sildorf SM,Fredheim S, Svensson J,and Buschard K out of Copenhagen University Hospital...
  6. tom

    ARCHIVED Celiac And Time

    tom replied to mike oord's topic in Doctors

    Yet you did anyway. It does appear to be a comparative arguing of merits, of some sort. "Beloved", "enamored" & a passive-aggressive, obviously insincere "they know best"? That's "courtesy" now? Above you basically called them ignorant dolts blind to the tyranny of no co-pay checkups or of not having to worry that just a little...
  7. tom

    ARCHIVED Celiac And Time

    tom replied to mike oord's topic in Doctors

    Unfortunately ppl can go a lifetime. That doesn't mean they, in hindsight, wouldn't have preferred being gluten-free for the last 50yrs, convinced that those yrs of being mostly functional & mostly fine may have been wonderful if gluten-free, instead of just fine, or "bearable". A long life doesn't necessarily equal a healthy life. My maternal...
  8. tom
    Every time I look, I find less. Stanford's GI head told me 1/2 slice/day.
  9. tom

    ARCHIVED Celiac And Time

    tom replied to mike oord's topic in Doctors

    A "fortune"? OT but I can't let this sit unchallenged. The US spends ~16% of its GDP on health care. Those other countries you refer to spend as little as half that, w/ better outcomes in every measure, from patient satisfaction to life expectancy. They spend from ~8% to ~11% of their GDPs. What you said is demonstrably false. Also the US is the...
  10. tom
    I've certainly read of ppl living in/near wheat-farming areas having problems at harvest time, so it's reasonable to me that wild oats could be a hazard. Haven't heard of it before but maybe (wise) others will chime in otherwise.
  11. tom
    Congrats on finding a better Dr 1st (so far so good at the not-laughing-at-your-med-problems part . ...us sick ppl & our high standards!) & 2nd for finding a healthier path forward. The "gluten-free from here on out" ending has a nice ring to it.
  12. tom
    Hehe not to diminish any seriousness but it made me think of a scavenger hunt for symptoms. Or Go Fish. "Nope, anyone got morning-only ataxia?" Is the ear thing both ears?
  13. tom
    I feel for ya, but did chuckle a bit seeing At least you didn't lose your sense of humor.
  14. tom
    Sounds good! Glad you added the update.
  15. tom
    Parmeisan's in Canada, so like every other 1st world country but one, there is no economic standpoint.
  16. tom
    I didn't know that, but it reminds me that I was surprised to see just this week two forum members said they were negative on blood & positive on endo/biopsy. Welcome to the gluten-free life!
  17. tom
    Thanks
  18. tom
    Wow I can really learn a lot in this thread. Codetalker, I think I saw the same show on epigenetics, or at least similar. It was fascinating. Skylark, that last link had the term "molecular mimicry" in the abstract. I've wondered whether when ppl dismiss "cross-reactivity" as (often rightfully imho) nutty, if a valid "molecular mimicry" possibility...
  19. tom
    Hehe I didn't notice we were replying at the same time! ******** Have you considered trying dairy-free and/or soy-free? If you do, give it at least 2 wks. I'd done soy-free trials of just 3-5 days 3x before a 2wk trial had near-miraculous results.
  20. tom
    There are decent rice-based tortillas, tho I need to microwave/steam 'em a little to get better pliability. And a teff-based style made by at least 2 companies gets good reviews, but some other ingred kept me from trying them. Any WhFds or Trader Joe's type stores by you?
  21. tom
    Makes perfect sense to me, & I'm sure same too many others here. I had to also go soy-free before getting the HUGE difference in wake-up mental state. Wondering which new great things might be placebo-ey(sp?) is a fun game.
  22. tom
    Hi RNEN80, Believe me, MANY here can relate to those symptoms! I bet there are loads of threads on this forum that can make you feel less lost in a hurry. I think you're in the right place. Good luck
  23. tom
    Ahh thank you Skylark, I wanted to comment on the OP's topic looking more trigger-related than post-disease gluten-related but couldn't have said it as well as you. All I could get was a vague "there's a difference between pulling a trigger & pulling a trigger after the safety is off." Regarding the OP, the area of celiac disease triggers doesn...
  24. tom
    Well Oscar, I'm not sure what "agenda" you could be referring to, beyond helping ppl whose problems aren't solved by their PCP's & GI's mainstream medical thought processes. Don't we see ppl on the forums every day who've been failed by their MDs? "IBS, here's a rest-of-your-life daily pill" "You're fine, but should maybe see a therapist" "Can't...
  25. tom
    Hi rml, I read your orig july5 post above which is now erased? I thought it was a good description of your situation, and well-written. I know the "can't be too careful" mindset, and that there's plenty of times i'd go 'overboard' by someone else's definition, but THEY don't know what it's like, do they? I say be as careful or overly careful as makes...
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