
Scott Adams
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Scott Adams
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Weight gain
Scott Adams replied to Kara Anne's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Many celiacs do gain weight due to the fact that they overeat because they can't absorb nutrients and always feel as though they are starving (which they are!). Here are some articles we've done on celiac disease and obesity: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/obesity-overweight-celiac-disease/ -
Help with lab testing
Scott Adams replied to Bob2022's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you were "virtually gluten-free" at the time of your tests then you would likely get false-negative results, even if you have celiac disease. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day: -
It's probably fair to say that Everlywell results are not as accurate as what you got from your doctor. It is possible for test results to fluctuate in celiacs who are still eating gluten, especially if there are variations in the amount of gluten they are eating. Many celiacs have no symptoms, so going by symptoms alone may lead to a missed diagnosis. I...
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It's probably too late for this article, but it may be helpful going forward: It sounds like you are super sensitive, so recovery could take several weeks.
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Without knowing a lot about what you're going through mentally it's difficult to make any recommendations here, and I forgot how long you've been 100% gluten-free (you can count periods where you got contamination), but as far as how long it takes to recover from celiac disease, this can vary greatly from person to person. This study indicates that...
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Longterm symptoms unbeknownst
Scott Adams replied to PA Painter's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
As far as dealing with family and friends goes, Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together... -
Technically speaking you should be eating about 2 slices worth of wheat bread daily for 6-8 weeks before any tests, so it's possible the lower levels were due to you eating less gluten. The fact that you had a positive test before is still not fully explained, and you could still have celiac disease and/or non-celiac gluten sensitivity. Approximately 10x...
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Also having vision issues
Scott Adams replied to Katanya's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Here is an older doctor from an MD that supports this idea: -
The next step then might be to eliminate dairy/casein for a couple of months and get your levels checked again, and/or get thyroid screening done, etc., for things mentioned in the article.
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Independent Livings and Assisted Livings
Scott Adams replied to Nikki2777's topic in Coping with Celiac Disease
I'm afraid that there is no easy solution for this issue. Finding safe senior independent living options for individuals with celiac disease can be challenging, especially considering the potential for cross-contamination in shared kitchen spaces. Here are some suggestions: Research Facilities: Look for senior living facilities that prioritize food... -
Also having vision issues
Scott Adams replied to Katanya's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you look at their profile they haven't visited since 2016, so it's doubtful you'll reach them, but you have your own thread now on this topic. Thank you for sharing your experience with us. It sounds like you've been through a lot lately, and dealing with health concerns can be overwhelming. It's great that you've consulted with multiple specialists... -
For people with celiac disease hidden gluten in their diets is the main cause of elevated Tissue Transglutaminase IgA Antibodies (tTG-IgA), but there are other conditions, including cow's milk/casein intolerance, that can also cause this, and here is an article about the other possible causes:
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Here is another link: https://www.atly.com/gluten-free-eats
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This app has lots of options: https://www.findmeglutenfree.com/us/ny/new-york
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Is it gluten in sorbitol, mannitol, xylitol??
Scott Adams replied to Lindquist's topic in Food Intolerance & Leaky Gut
Here is the article: -
You would just need to try it, as many people with celiac disease have different sensitivities to different things, but monkfruit is naturally gluten-free.
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- artificial sweeteners
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Fluctuating results - help
Scott Adams replied to eekunique's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
A positive result would be accurate, but there is more of a chance of false negative results in younger people because their immune systems may not be fully developed. Also, his total IgA seems on the low side of normal, which may also have an effect on his results (low IgA can cause false negative tTg-IgA readings, or readings that are lower than normal... -
Malabsorption
Scott Adams replied to djmu's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
In general the malabsorption caused by damaged villi in celiac disease will go away after this much time on a gluten-free diet, however, some people with celiac disease still have issues absorbing certain nutrients and need to take supplements (I am in that category). It's a good idea to do follow up blood tests from time to time to check your vitamin/mineral... -
Fluctuating results - help
Scott Adams replied to eekunique's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The tTg-IgA test is not ideal for younger people, and if his was positive it could definitely mean that he has celiac disease, especially given his symptoms. Was he ever scheduled for an endoscopy? Children should also be given the DGP-IgA and DGP-IgG (Deamidated Gliadin Peptide) blood tests for celiac disease, as they are more accurate in younger people...