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Scott Adams

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Everything posted by Scott Adams

  1. Scott Adams
    If you think you might have Guillain-Barre syndrome you should definitely seek medical attention, as it could be serious. Gluten ataxia is a condition that some people with celiac disease get due to nerve damage caused by eating gluten, but only a medical expert would be able to tell you the cause of your specific issues.
  2. Scott Adams
    It does get better, and I'm sorry to hear that you're so stressed out. It's hard to see the bright side sometimes, but in your case you've finally figured out the source of many years of misery. I went through a similar ordeal and it took me years of going to doctors before I finally figured it out. You main focus now should be staying 100% gluten-free...
  3. Scott Adams
    It looks very comprehensive...may I ask what you plan to use this for?
  4. Scott Adams
    If your symptoms are that bad, and you are sure that they are caused by gluten, then perhaps you don't need a formal diagnosis? You could just go gluten-free and see if your symptoms improve, and if so, stay gluten-free. I don't want to discourage anyone from getting a formal diagnosis, but unfortunately the only way to get this is to do further damage to...
  5. Scott Adams
    If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful: Also, you only need to eat gluten daily, lots of it, for 2-3 weeks before your endoscopy, so you may want to test out a gluten-free diet if you think it might be...
  6. Scott Adams
    I added the Fasano paper link within our article...thanks @RMJ!
  7. Scott Adams
    One week is definitely not enough time. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:
  8. Scott Adams
    Yes, all products labelled "gluten-free" are considered safe for those with celiac disease. My family regularly uses Trader Joe's gluten-free products without issues, including their bagels, buns, breads, tortillas, frozen pizzas, etc.
  9. Scott Adams
    Untreated celiac disease can cause such issues, however, if you've been 100% gluten-free for a long time and have recovered (and don't get regular gluten contamination), then these symptoms could also be related to nutrient deficiencies. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition...
  10. Scott Adams
    It's understandable to have concerns about undergoing an endoscopy, especially with occasional coughing episodes. Since your GP recommended checking with the endoscopy team, it's best to communicate directly with them to ensure that proceeding with the procedure is safe and appropriate for your current health status. They can assess your specific situation...
  11. Scott Adams
    I would not rely on that site for info, as I don't believe it is regularly updated. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of...
  12. Scott Adams
    Since you just recently started a gluten-free diet a bit over a month ago, it may take you longer to recover. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However...
  13. Scott Adams
    I agree, and the only meats you might need to worry about would be processed ones like lunch meats, salami, etc., that my have fillers in them which contain gluten. Fresh meats that are not processed with added ingredients should be safe.
  14. Scott Adams
    Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The...
  15. Scott Adams
    Many of your symptoms could certainly be related to gluten sensitivity or undiagnosed celiac disease, and it's unfortunate that your doctor didn't follow the testing Mayo Clinic recommended testing protocol for celiac disease and do a full panel, including total IGA. Since your doctor is convinced you don't have it, even though you have an uncle with...
  16. Scott Adams
    In general studies have shown that tTg-IgA levels have a correlation with villi damage in those with celiac disease, and your levels are in the "weak positive" range, which could mean that you are in the early stages of developing celiac disease, or that you haven't been eating much gluten before you took the test. I would consider trying a gluten...
  17. Scott Adams
    Has she had blood panels done for celiac disease?
  18. Scott Adams
    I'm sorry to hear about your experience with enlarged lymph nodes. It's common for lymph nodes to become reactive in response to various factors, including inflammation or immune responses. Since you've been gluten-free for two months and your blood counts are normal, it's a positive sign. Since your lymph node enlargement may not be related to celiac disease...
  19. Scott Adams
    I agree, and hopefully your doctor will contact you soon about the next step, which will likely be an endoscopy to confirm your diagnosis. Do you have celiac disease symptoms?
  20. Scott Adams
    If you were just diagnosed I can say that if you go 100% gluten-free should should see dramatic improvement of your symptoms over the next few months, but the hard part is to stay gluten-free. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):
  21. Scott Adams
    Yes, wheat is common in most soy sauces now because it speeds up the fermenting process.
  22. Scott Adams
    For the vast majority of celiacs it's probably safe, however, it seems that for those who are super sensitive it's best to avoid such products. It's fairly easy now to find brands that are naturally gluten-free, which is what Celiac.com recommends. You might finds this article interesting:
  23. Scott Adams
    This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):
  24. Scott Adams
    Have you tried calling the Celiac Disease Foundation about this? Their number is 844-593-8169.
  25. Scott Adams
    Only the manufacturer would know if it's gluten-free, so if it says free of gluten, then it is likely safe. This company makes a gluten-free line of cosmetics, and has been a sponsor here before: https://www.epilynx.com/
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