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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Yes, if you have a positive celiac disease blood test AND a villous atrophy the cause is almost certainly celiac disease. A follow up biopsy and blood test 6 months to a year after going gluten-free would verify this--antibodies that drop, and villi regrowth.
  2. Celiac.com 02/20/2024 - Bob Moore, the visionary founder behind Bob’s Red Mill, known for its wholesome products and iconic packaging featuring his friendly, bearded visage, passed away peacefully at the age of 94, as announced on the c...
  3. It sounds like you need to focus now on your recovery, and that's why this site is here. Are you taking a good gluten-free multi-vitamin and mineral supplement? This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):
  4. This isn't the first time we've heard this story, and many with celiac disease are in fear of ever having to stay in a hospital, elder care facility, etc., as there are many bad stories that have been shared about such experiences on this site. As far as legal action goes, this would be a civil matter, and many states limit the time period that you can...
  5. Are you saying that years ago you were in a hospital that fed you gluten, even though they knew you had celiac disease, and you've had ongoing celiac disease symptoms ever since then? How long were you in the hospital, and how long ago was this?
  6. Not to seem skeptical, but I've seen similar articles published over the past 25 years, including ones that claimed a gluten-free diet might be a thing of the past once a drug got FDA approval. I'm still hopeful, but I'm also getting older! 😉
  7. Would you remain on a gluten-free diet no matter the outcome of the endoscopy? If the answer is yes, then why bother doing it? This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.): Many people with celiac disease, especially those who are in...
  8. Do the cough drops say they contain 5ppm, or that they are tested to that level? I suspect the latter, as 5ppm is typically considered the lower level that can be detected. Yes, I would say they are gluten-free if they are tested to the level of 5ppm.
  9. Your high antibody test still points towards non-celiac gluten sensitivity. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. Some experts believe that it is a precursor to celiac disease.
  10. The antibodies used in celiac disease screening are very specific to people who have an autoimmune reaction to gluten, so those without celiac disease or gluten sensitivity normally test at or near zero.
  11. Around 9% of those with celiac disease cannot tolerate oats, even the gluten-free versions, so you may want to try eliminating them for a while to see if it helps with your recovery.
  12. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:
  13. This site offers gluten-free men’s grooming products: https://beeyouorganics.com/products/organic-beard-balm
  14. If I understand your test results correctly, it looks like this one is positive: IGA ANTI-TTG ANTIBODY: 29.2 U/mL If the normal range is below 15.0. You are twice the cut off level for a positive test for celiac disease. Were you eating gluten daily before your blood test? This article might be helpful. It breaks down each type of test...
  15. I think the best way to determine whether or not you've been ingesting gluten would be to get a new celiac disease blood panel done that includes tTg antibodies. If your levels are elevated, then closely examine your diet to see if there might first be other ways gluten might be getting into your diet, for example, do you eat in restaurants?
  16. Celiac.com 02/17/2024 - In the quest for healthier alternatives to sugar, artificial sweeteners have become a ubiquitous presence in our food and beverages. Marketed as low-calorie or sugar-free options, these sweeteners promise to satisfy...
  17. If you'd like to read more about Lectins, we have several articles on the topic here: https://www.celiac.com/search/?&q=Lectins&type=cms_records2&quick=1&search_and_or=and&search_in=titles&sortby=relevancy
  18. I believe the ones sold at Trader Joe's and Costco say gluten-free on them, but double check.
  19. Are you sure your diet is 100% gluten-free? This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):
  20. You should re-examine your diet for gluten and be sure you're 100% gluten-free, and then the symptoms should go away. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.): It's best to find gluten-free treats, and this may be helpful:
  21. If your goal is to get the level near zero you may try a casin/milk-free diet to see if that works, as per the article I shared.
  22. I'm not sure what you mean by "I understand that you have been deeply invested in providing knowledge that you can find in under 30s on pubmed" as the articles I've shared with you were written for Celiac.com. I've also not discouraged you from doing a gluten challenge, but have merely mentioned that if you do get re-tested you would need to do one--it's...
  23. Most of us with celiac disease will thrive on a gluten-free diet, while some will need to eliminate oats too, and some corn, soy, dairy, etc. Those with celiac disease and ongoing symptoms will need to figure out their additional food intolerance issues to get healthy--and for a small minority this may be a grain-free diet. None of this changes the description...
  24. If you've seen a big improvement in your symptoms after going gluten-free, then you certainly can stay gluten-free if you like. As @trents mentioned, you need to be eating gluten to do blood tests for celiac disease.
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