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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
    The number of genes associated with celiac disease is more than two, but there are two main genes that are commonly tested for celiac disease susceptibility. These genes are HLA-DQ2 and HLA-DQ8. HLA-DQ2: The majority of individuals with celiac disease (about 90-95%) carry the HLA-DQ2 gene. HLA-DQ8: Around 5-10% of individuals with celiac...
  2. Scott Adams
    Welcome to the forum! I saw in your other thread that you are gluten-free now. Were you diagnosed with celiac disease recently? You likely already know that celiac disease causes malabsorption of nutrients, and the question you raise here is a very interesting one--can it also cause malabsorption of medications? Untreated celiac disease can...
  3. Scott Adams
    Thank you for the tips, and for sharing your story! How long have you been on a gluten-free diet? You mentioned 25 other items you had to restrict from your diet, that sounds very difficult. Do you still have to restrict so many things?
  4. Scott Adams
    It's definitely a possibility because celiac disease can cause so many nutrient deficiencies. To be on the safe side I'd still recommend running this symptom by your doctor. You may also want to get your nutrient levels checked. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include...
  5. Scott Adams
    I did not realize that there is salt available with potassium chloride included. Would this also be helpful for those with high blood pressure?
  6. Scott Adams
    For the psyllium, be sure to get one that says "gluten-free" on the package, or certified gluten-free, as we've heard that psyllium can be cross-contaminated with wheat, depending on where it is grown and milled.
  7. Scott Adams
    A very interesting new study on multiple sclerosis (MS) and wheat. Attenuation of immune activation in patients with multiple sclerosis on a wheat-reduced diet: a pilot crossover trial https://journals.sagepub.com/doi/10.1177/17562864231170928
  8. Scott Adams
    No, for genetic tests it does not matter whether you are eating gluten or not, it won't affect the results.
  9. Scott Adams
    It may be too late for this article, but it may be helpful:
  10. Scott Adams
    It took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues. You can see the link in my signature block to the supplements I take. A...
  11. Scott Adams
    If it is clear to you that gluten is causing your severe health issues, then a formal diagnosis may not be the best way for you to go. Additionally, getting a formal diagnosis can make private health and/or life insurance more expensive, and harder to get. This article has some detailed information on how to be 100% gluten-free, so it may be...
  12. Scott Adams
    I think this is a great topic for a Celiac.com article. I’ve always had issues with, and have avoided sugar alcohols and artificial sweeteners.
  13. Scott Adams
    You would need to get a bread knife: https://www.amazon.com/s?k=bread+knofe&crid=2N0J7RE4Q15Q7&sprefix=bread+knife%2Caps%2C140&ref=nb_sb_noss_2
  14. Scott Adams
    Some celiacs won't eat such products, and some will. In the USA all products must include a warning on the ingredient label if there is a danger of cross-contamination with wheat, and it would be at the end of the ingredients and look like this: allergens: wheat. Some celiacs will only eat certified gluten-free products, but many products happen to be...
  15. Scott Adams
    I suspect that most canned fruit brands are naturally gluten-free, for example Dole and Del Monte, and if there were any chance of wheat contamination they would be required by FDA regulations to include wheat as a potential allergen on their ingredient label. https://www.delmonte.com/products/fruits
  16. Scott Adams
    If a formal diagnosis is not in your medical file it's possible that future follow up care may not be covered by insurance, for example follow up antibody tests to see if your adhering to your diet and recovering properly, tests for vitamin deficiencies and treatment if you have them, etc. That said, I live in the USA and have what would be considered...
  17. Scott Adams
    I also had no issues with this, and for most people they simply wake up afterwards and don't recall a thing.
  18. Scott Adams
    In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive...
  19. Scott Adams
    Thanks for the correction! It's great that your tTg-IgA levels have gone down so fast--good job with your gluten-free diet!
  20. Scott Adams
    Welcome to the forum. Were you eating ~2 slices of wheat bread a day for at least 6 weeks before your blood test? If not, it's possible that your tissue transglutaminase test was a false negative, and your DGP-IgA result would have been higher. It looks like your DGP-IgA (Deamidated Gliadin Peptide) test was positive, and you are not IgA deficient...
  21. Scott Adams
    I eat pure seaweed sheets as snacks to get more iodine in my diet. Just be sure they don't include soy sauce and are just pure seaweed and salt. I try to get brands that are made in South Korea or Japan, and here in California they are sold in large packages on snack pack sizes in Costco.
  22. Scott Adams
    If your results were tTg-IgA: 247.6 and the positive level for the test is >15, then you are well over 10x the positive level. In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According...
  23. Scott Adams
    While it's true that the Codex Alimentarius threshold for gluten-free foods was initially established based on the detection limit and repeatability of tests, it's important to note that the 20 ppm threshold is considered by regulatory bodies as a safe level for the majority of individuals with celiac disease. Different people may have varying sensitivities...
  24. Scott Adams
    I'm not a medical professional, but I can offer some general suggestions that you may consider discussing with your healthcare provider: Consult a Pediatric Gastroenterologist: Since your daughter has been on MiraLAX for an extended period and constipation persists, seeking a second opinion from a different pediatric gastroenterologist is a good step...
  25. Scott Adams
    Let us know how it goes!
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