
Scott Adams
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Scott Adams
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Normally your tTg levels should be trending downward if your diet is 100% gluten-free. Do you eat outside your home, for example in restaurants? If so, this is a very common source of contamination. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):
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CELIAC DISEASE AND POLYCYTHEMA VERA
Scott Adams replied to SamIPD's topic in Related Issues & Disorders
This thread might be helpful: -
Is Gluten Withdrawal a Thing?
Scott Adams replied to Lawster's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Many people go though gluten withdrawals which can make one feel pretty bad. Were you diagnosed with celiac disease? Also, be sure there is no hidden gluten in your diet. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.): -
I agree, at this point do you need an official diagnosis for any purpose, or is it just your doctor who, for some reason, feels that they need it? If you know that gluten causes you health issues, and you feel better and have recovered on a gluten-free diet and have no issues being on the diet, I'm not sure it would make any sense to go through a gluten...
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Have you been diagnosed with celiac disease? If so, is your diet 100% gluten-free? The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium. Unfortunately many doctors, including my own doctor at the...
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Blood Test Result
Scott Adams replied to Berkan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I suspect that you have celiac disease, which is why your antibody levels are still high, even after a month gluten-free. If you had been eating gluten daily for 6-8 weeks before the test, then your levels would likely have been much higher. Celiac disease is an interesting autoimmune disease because once you remove the culprit--gluten--normally your symptoms... -
Vitamin supplements
Scott Adams replied to NanceK's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
For many B vitamins you can take more than the RDA. Vitamins and Minerals Generally Safe in Excess of Recommended Daily Allowance (RDA): Vitamin C (Ascorbic Acid): Excess vitamin C is usually excreted in the urine and is considered safe in higher doses. However, very high doses may cause digestive upset in some individuals. Vitamin B1... -
This seems to vary greatly from person to person, and it also depends on how well you maintain a 100% gluten-free diet. I noticed some relief within 1-3 weeks, but my diet wasn't ideal and I continued to eat out often after my diagnosis. I don't think I felt like I was fully recovered until around 2 years after my diagnosis. This study indicates...
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Blood Test Result
Scott Adams replied to Berkan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree, and talk to your doctor about whether or not you need more testing, or should just start a gluten-free diet. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.): -
Does this sound like celiac disease?
Scott Adams replied to JAD75's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you get an endoscopy for celiac disease you'll need to be eating gluten daily beforehand. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day: -
Seems like I can't tolerate any sort of PPI
Scott Adams replied to BeccaBees's topic in Super Sensitive People
Have you tried probiotics and digestive enzymes? Also, some of the symptoms you've described may be associated with nutrient deficiencies, which are quite common in those with celiac disease. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9... -
China Lily Soya Sauce
Scott Adams replied to Nancy333's topic in Gluten-Free Foods, Products, Shopping & Medications
China Lily soya sauce does contain hydrolyzed wheat, which has the gluten removed and may make this soy sauce test under 20ppm, however, it's probably best to pick a soy sauce that is naturally gluten-free (Tamari), or one that says "gluten-free" on its ingredients, for example San-J and Kikkoman make gluten-free versions. -
Bovine Colostrum
Scott Adams replied to Charliexxx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Others on this forum has used colostrum: https://www.celiac.com/search/?q=Colostrum&quick=1 Are you concerned that it may not be gluten-free? It should be naturally gluten-free, but be sure to check the ingredients. -
It looks like Spectrum Ogranic oils are naturally gluten-free, and they do not include wheat in their allergen warning, so they likely do not make wheat products in the same facility where they are made: https://www.spectrumorganics.com/ For example, their avocado oil includes an allergen warning for peanut oil and sesame oil--but not wheat.
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That's interesting, thank you for sharing. Another thing that can help you sleep and has been shown to be helpful is tryptophan. Tryptophan is an essential amino acid that serves as a precursor to serotonin, a neurotransmitter that plays a role in mood regulation and gastrointestinal function. While tryptophan itself doesn't directly "heal" the gut,...
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NYE party horns/noisemakers
Scott Adams replied to jj442434's topic in Gluten-Free Foods, Products, Shopping & Medications
I've seen some that are plastic, and some that are cardboard, it seems like the cardboard ones where that part goes in your mouth could use a gluten-based glue. Although it seems unlikely, it does seem possible. -
Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The...
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Food labeling regulations in the United States are governed by the Food Allergen Labeling and Consumer Protection Act (FALCPA), require manufacturers to clearly state the presence of major food allergens, including wheat, on the product label. If a product does not contain wheat as an ingredient but is manufactured in a facility that processes wheat...