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Canadian Karen

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Everything posted by Canadian Karen

  1. Canadian Karen
    Here is the link to the thread when I thought I had refractory celiac..... I think you will find much of it very familiar to what you are going through..... Open Original Shared Link Have a great day! Karen
  2. Canadian Karen
    First off, you sound so much like me..... I was in your shoes not too long ago, thinking for sure that I had refractory celiac disease, as my system was just not responding to the gluten-free diet. Even when I was gluten-free, lactose free, sugar free, caffeine free, the diarrhea just continued to be uncontrollable.... It has literally been years since...
  3. Canadian Karen
    Hi Deb, I'm doing fine, although the medication for the collagenous colitis is not working in any way, but I still have to finish the full 8 weeks. I think the next stage is budesonide (sp?)..... I have just sold my house and bought another, so it has been hectic for the last few weeks.... We bought outside of the city a house that is the same size...
  4. Canadian Karen
    Hi! My sister has a friend who is a naturopath and she suggested I use hemp hearts. Here is a website about it. It sounds really interesting... Also, for those with energy problems (Medaka, me, etc.), this sounds like it could really help.... Open Original Shared Link Let me know what you guys think...... Thanks! Karen
  5. Canadian Karen
    I also get them, and even though I use Pantene, which is gluten-free, I find they don't really go away..... It also doesn't have anything to do with the time of year, either, they are pretty much there year round.... I especially get them most often by the temples and up by the forehead.... Karen
  6. Canadian Karen
    I also saw the thread on Delphi and was wondering is it only gluten-free in the States, or is it okay in Canada too? Thanks! Karen
  7. Canadian Karen
    Hi Terri, I wanted to first of all welcome you here to the site. You will find a bunch of incredibly supportive, knowledgeable and wonderful people here..... The gluten-free diet can be so incredibly overwhelming at first. All I can tell you is that you will get used to it. You will get so used to it that you just do it naturally.... It takes time...
  8. Canadian Karen
    Hi! I'll start by welcoming you to the forum!! There is a great bunch of people here who are really supportive, knowledgeable, and helpful...... My story is a bit different from yours, my bloodwork and biopsy showed without a doubt that I had celiac, but from all the posts I have read here, it is not uncommon at all that the bloodwork came back negative...
  9. Canadian Karen
    Hi Maxwell, I would first like to welcome you to the forum. You will always find great support and advice here. Everyone is really supportive, and when you first find out that you must go gluten free, you can use all the support you can get because it can be incredibly overwhelming.... Your story sounds alot like mine. I have had permanent diarrhea...
  10. Canadian Karen
    Hi, Well, here's the scoop: He has decided to start treatment with the least toxic, working our way upward to the most toxic. He has started me on 2 tablets of Pepto-Bismol four times a day for 8 weeks. If that doesn't work, he will start me on Bodesonide (a mild steriod) which would be 3 times a day. If that doesn't work, then we go with the...
  11. Canadian Karen
    That's a deal. November 12th is marked on my calendar to send good thoughts you wife's way!!! Thanks! Karen
  12. Canadian Karen
    I go back to see the doctor today to start treatment for the collagenous colitis. My appt. is for 4:30 p.m. I will post how it goes.... Everyone wish me luck, please....... Thanks! Karen
  13. Canadian Karen
    Oh, and I forgot to mention, I am the Number One Leafs Fan!!!!! Go Leafs Go!! (That is when they get around to playing again!!!!) Karen
  14. Canadian Karen
    Hi Lisa, Welcome to the forum and you will receive much support from us, as I have since I have joined.... It is incredibly reassuring just having someone who can empathize with your situation, especially considering the fact that you are lacking the support of your family, which never ceases to amaze me..... Many of us are still suffering symptoms...
  15. Canadian Karen
    I have decided not to try for now.... I am too worried that it will be too hard on my already ravaged bowels... And now that I found out I have collagenous colitis (I start treatment this week for it....) I have decided to see if this treatment will improve my bowels in any way..... I really hope so..... Thanks for your reply, the whole cleanse thing...
  16. Canadian Karen
    I don't know about Campbell's..... I do know that V8 juice is gluten free..... I guess you will find out soon enough, eh? Good luck! Karen
  17. Canadian Karen
    Wow! I have them too! I can't believe how many of us have them..... Mine also get puffy, and it drives me nuts!!!! Everyone keeps asking me "Why have you been crying?" Have a great day! Karen
  18. Canadian Karen
    I use the following website quite often and find it very helpful, www.glutenfreedrugs.com I'm not sure if the drug you mentioned is on there,but it is worth a try.... Have a great day! Karen
  19. Canadian Karen
    Hi Nailehead, Welcome to the forum. You will find a great bunch of people who are here to help you navigate through the gluten free world..... In regards to your misdiagnosis for years, unfortunately, this is all too common in bowel diseases. Personally, I started having my problems in my early 20's, and didn't get properly diagnoses until 31. I...
  20. Canadian Karen
    He was the cutest thing I have ever seen (and still is....) The breeder called him Lump because he was the biggest of the litter and now he is a 2 yr old "horse"!! This dog is huge!! When our previous golden died when I was pregnant with the twins, my oldest daughter was devastated... I promised her when the twins turned two, we would get another golden...
  21. Canadian Karen
    Thanks celiac3270! Actually, I feel pretty positive about being able to deal with this! One of the articles I read is that the people who do best in controlling collagenous colitis are the ones who keep a postivie attitude.... Blows me away that only 2 out of 100,000 people get this, and I have to be one of them!!!!! It really does make a lot of...
  22. Canadian Karen
    Just testing to see if this works.... I hope so, because the picture is identical to my golden Buddy when he was a puppy!!!!! Karen
  23. Canadian Karen
    Hi Gillian and Medaka, Thanks for the support and Gillian, it is good to know someone else is here who has this - from what I have found so far, apparently it is only 2 out of 100,000 people who get this!!! I don't know what treatment plan he will start me off on, from what I have read, there are several possibilities..... Medaka, at your next dr...
  24. Canadian Karen
    Hi Linda, The separate toaster for gluten free bread is an ABSOLUTE MUST!!!! I learned that the hard way..... Also, make sure you have separate pots and pans for gluten free food if the surface is porous - teflon holds in the gluten and transfers it to the gluten-free food being cooked in it..... I have learned a very valuable lesson - I didn't...
  25. Canadian Karen
    Good Luck from Canada! I can remember the last time I had that done, they didn't even use drugs, they just sprayed my throat with something that made it numb. The gagging feeling only lasted a few seconds, then you can relax.... I imagine that now that they give drugs, it would make it that much more tolerable.... Good Luck! I will be thinking of...
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