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MDRB

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by MDRB

  1. MDRB

    ARCHIVED Feet?

    MDRB replied to MDRB's topic in Dermatitis Herpetiformis

    Thanks so much for replying! I'm pretty sure that it is starting to go away, I have had it for a while but just always assummed it was some sort of super resistant fungal thing, but since going gluten free it is definetly clearing up. I don't eat a lot of salt, are there any other foods with lot of iodine that I should try to avoid? Thanks again
  2. MDRB

    ARCHIVED Feet?

    MDRB posted a topic in Dermatitis Herpetiformis

    I have celiac disease and have been getting a blistery looking rash that consists of clumps of really tiny (about pin point sized) puss filled blisters (sorry to be so graphic). Also it seems to be getting better the longer I am gluten free. My doctor told me that DH usually occurs on the elbows, knees and buttock. However, my rash has occurred mainly on...
  3. MDRB
    I was getting 'glutened' from my local noodle place. I was always ordering rice noodles, but as I later discovered, they were cooking the noodles in chicken stock which contained gluten. It could be something like that, maybe stock or a sauce or seasoning. Could also be a cross contamination issue. I also agree with what the other posts have said about...
  4. MDRB
    I have never had a problem with feeding my cat regular cat food, my comment came from personal experience and I certainly did not mean to dismiss anything. I guess the thing is with cats, is that they (mostly) keep thier mouths to themselves where as dogs will lick floors and just about anything they can find. It all depends on your cat (indoor, outdoor...
  5. MDRB
    Yep, I had the mini burger and loved it! Even my fiance liked the food and he is neither celiac or vegetarian. I use 'tamari sauce' which is great, but a little expensive. Thanks for the suggestions on gluten free food in the city. I've been meaning to try that 'food cube' place.
  6. MDRB
    Doctors can be really frustrating at times. It can take some time to recover from the damage caused by an intolerance which could be why your daughter is still not well. Keep in mind that a common symptom of celiac disease is an inability to digest dairy. I would probably take her off the gluten. Wheat, barley and rye are not really nutritionally valuable...
  7. MDRB
    It can take a good few months to heal. Blood test are usually less acurate than biopsy, so I would probably wait until you have been entirely gluten free and without symptoms for a period of four months before getting re-tested, especially if you are worried about your doctors acting like... well... doctors actually Good luck
  8. MDRB
    You can add flax oil to just about anything. I used to have about a teaspoon a day. I personally like using it as a dresssing on salads or mixing it with some chopped fresh herbs for a pesto-like sauce. You can have some in smoothies, porridge, soups, pretty much anything. If you don't want to use it in your cooking, you can buy a flax supliment, I haven...
  9. MDRB
    If your daughter does have celiac disease and goes completely gluten free, she would have a significant improvement in her symptoms. However, a lot of the tests that are done to check for celiac disease become inaccurate if you are not eating gluten. I'm thinking that her doctor probably wants to check if there is any improvement in symptoms on a gluten...
  10. MDRB
    Hi, A lot of celiacs find that they can't handle dairy, this is because the lining of your small intestine that is damaged by eating gluten also is also the part of your body produces the enzyme that helps you digest dairy. Once your body has healed, you should be able to slowly reintroduce dairy into your diet as long as it is not an additional unrelated...
  11. MDRB
    I tried lord of the fries the other day and OMG is it good!!! I see what you mean about it being unhealthy. Also is great as I am a vegetarian as well as celiac and often find it very hard to eat out (usual response to celiacs seems to be to offer me a giant steak ) Any idea about other restaurants in the (inner) city? I am currently very diassapointed...
  12. MDRB
    I agree with what has already been written but have a couple of things to add. A lot of celiacs have a problem with dairy, but only until their body has healed. I would try cutting out the dairy for a while and re examining your diet for sources of gluten (ie additives in sauces etc) a food/symptoms diary is a good way to pin point what might be making...
  13. MDRB
    Hi, I'm sorry to hear that you are having such a rough time. I wouldn't worry about cat food, just make sure you don't get any on the bench tops and wash your hands and any cutlery you use thoroughly. When I went gluten free I went through the house and threw away anything that had gluten in it and then went on a gluten free shopping spree. My partner...
  14. MDRB
    Yep, I feel for you. I think this is a really common experience for a lot of people on this forum. I went through 8 years (still a lot shorter than some people) of doctors telling me that I had some unknown virus, or was depressed, or there was nothing wrong with me. I diagnosed myself with a little research (being a nurse helped) before going to my...
  15. MDRB
    You poor thing! One month gluten free may not have been enough to feel significant changes. All of the symptoms you describe sound like common celiac symptoms (including the ones listed as dairy induced symptoms). My understanding is that when the villi are damaged with celiac disease, often the damage includes the part of the villi that produces...
  16. MDRB
    Thanks for all the advice! Its great to hear from an aussie as most of the product and places on this forum are american. I am going to the doctor again soon and will get her to write the letter I need to join the celiac society (any idea what is needed for that?) Will definitely try that place on flinders street as I am often in the city looking for...
  17. MDRB
    I'm sorry to hear that you've been having such a hard time. Its pretty normal to be feeling awful at this stage, it sounds like your body is going through withdrawal of a few different things. I went through gluten withdrawal pretty badly. I had awful fatigue, dizziness, itchy ears etc for about 4 weeks after my stomach problems lessened. It can take a...
  18. MDRB
    Its really tough at first but does get better. Soon your husband will start to feel better and living gluten free will become second nature. Its pretty normal for him to still be having symptoms. I found that it took 6-8 weeks for my symptoms to start subsiding. This varies a lot from person to person depending on the level of damage to the villi and their...
  19. MDRB
    How long have you been gluten free? A lot of celiacs find that they can't handle dairy, fatty foods or carbohydrate rich foods until their body has healed (and yes they could slow you recovery). I would suggest staying away from these things for a few months and reintroducing them slowly after that. Avoiding cross contamination in your house will certainly...
  20. MDRB
    Yep, I had my endoscopy a while ago and it showed enough damage to the villi for a diagnosis. My understanding is that there are other things that can cause slight villi damage and that the doctor might want to do another endoscopy after a few months gluten free to check that the damage is healing with the new diet. Having said all this, If I knew how sick...
  21. MDRB
    I know exactly what you mean. I also went through denial and learnt the hard way. Its so easy when you are feeling good to think that you can get away with a little gluten. I found that since going gluten free, my stomach is much more sensitive to gluten and I get much more severe reactions than before diaagnosis. Also I'm prettty sure that most processed...
  22. MDRB
    Lol, thats fine, I am not offended. I am aware of the proper term, however I use the term 'celiacs' as slang rather than typing out the entire 'celiac disease' everytime I post. I guess because this is a relaxed forum I feel that I can use slang as I would in everyday speach and that it is not necesarily appropriate to be uptight about grammer.
  23. MDRB
    Hi, Most doctors think that the only way to diagnose celiacs is with an endoscopy. When I had mine done, I had been gluten lite for about 6 months, as a result my blood tests came back negative. Before the endoscopy, I was told to eat at least one gluten based meal every day for one month otherwise the test would not be conclusive. From what you have said...
  24. MDRB
    Some celiacs developed an intolerance to the alternative starches they use once going gluten free. If you are sure that you are not ingesting any hidden gluten, you might want to cut out fatty or carbohydrate filled foods as this might help. Also try keeping a food/symptoms diary as this may help you pin point what is making you sick. If none of this...
  25. MDRB
    Have you gone gluten free yet? If so, are you still having symptoms. You should get your antibody and vitamin levels and checked. Also you might need to have an endoscopy, but you will need to be eating gluten to get this done. Gastroenterologists are usually the best doctors to see about celiacs as they are usually the ones to diagnose it. Ask your regular...
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