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MDRB

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by MDRB

  1. MDRB
    Hi, I guess it depends on how sensitive you are and how much gluten you had. I had to go back onto gluten based meals to get an endoscopy done and became sick about half an hour after ingesting some normal bread. However, if I get CC'd or there is gluten hidden in a sauce or something, I usually go on blissfully unaware until the following morning.
  2. MDRB
    I once read something on this forum that helped me, maybe it can help you too: Learn to eat to live, rather than living to eat I'm sorry you are having such a hard time. If it makes you feel better, I am only 23 and can barely run around the block without being exhausted. You are right, you do have a lot to be grateful for I hope you feel better...
  3. MDRB

    ARCHIVED Celiac Fitness

    MDRB replied to MDRB's topic in Sports and Fitness

    Hi, Thanks for replying! I went for a run this morning. I use the term loosely as I actually walked most of it that is how unfit I have become. I feel ok...quite tired and a little dizzy. The big C has always been more of a problem for me than the big D so I haven't had any problems in that area, actually I think it may have helped a little. I think...
  4. MDRB
    Oh dear, I was once in the hospital for low potassium, and my mother in law once had to stay in for a week for extremely low iron. So although my situation is not as dire, I do have some idea of what you are going through. Amost everyone has 'the family problem' when they are diagnosed and it can be really tough especialy with kids. When I went gluten...
  5. MDRB
    Hi, I'm 23 and found that my stomach symptoms started to go away within about a month and I gained about the same amount of weight as you have. Having said that, my lethargy etc has not yet one away. I think if you are younger you may not have as much damage to your villi, and therefore may have healed quicker. As long as you stick to 100% gluten free...
  6. MDRB
    Hi, Firstly I'm sorry to hear that you are not well. To answer your question, celiac disease is a not just a gluten intolerance but a gluten intolerance that causes damage to the lining of the intestine (villi). It is also possible to have a allergic reaction to wheat, barley or any of the grains that contain gluten. Your symptoms (flatulence etc...
  7. MDRB
    I can understand your desire to keep your child gluten free. Unfortunately, celiac disease can't be detected if there is no damage to the villi. You can keep them off gluten and never really be sure if they actuallly are celiac, or you can give them gluten and wait to see if they get sick. It sounds horrible I know. The other option you have is to get...
  8. MDRB

    ARCHIVED Celiac Fitness

    MDRB replied to MDRB's topic in Sports and Fitness

    My doctor says that I must still be healing, or getting gluten somewhere in my diet. But I'm so carfeul!! I had blood test to check my iron levels etc the other day and haven't heard back from my doctor yet. I kinda get the feeling that she thinks I'm complaining about nothing. I also take a multivitamin every day, but maybe I'm still not getting what I...
  9. MDRB
    I have only been gluten free for about 6 weeks and I have been so darn depressed lately. I think it has only hit me recently that this is a complete life change. Combine this with feeling sick all the time and not being able to exercise. I have heard people say that depression symptoms ease with the gluten-free diet, I guess I'm just waiting for that to...
  10. MDRB

    ARCHIVED Celiac Fitness

    MDRB posted a topic in Sports and Fitness

    Hi, I used to be a big runner, but haven't done much exercise for a year and a half because I've been so sick. I have been gluten free for about 6 weeks, my stomach symptoms have mostly gone but I am still quite lethargic and getting the brain fog. I am itching to start running again, my questions are: Is it safe for me to start running again? Is...
  11. MDRB
    Hi, I'm sorry to hear that you are having a hard time. Testing is always tough, and often inaccurate. The gene testing is only definitive if you do not have the genes. If you don't have the genes then you can't develop celiac disease but may still have ann intolerance. If you do have the genes, then it doesn't mean that you will or have developed celiac...
  12. MDRB
    Hi and welcome! I guess the main thing to tell the GI is that you have been gluten free for a while. Most tests will be inaccurate if you have not been eating gluten. My GI put me back onto gluten for a month before doing an endoscopy (worst 4 weeks of my life!) Also let the GI know that life has been easier since going gluten-free. You didn't mention...
  13. MDRB
    Wow thats really fast. I am about 6 weeks in, my stomach symptoms have mostly disappeared but my lethargy comes and goes as does the brain fog. However I think that I have accidentally ingested gluten a couple of times, I'm in Australia and the food labeling laws out here make it difficult to eat anything processed and be sure that it is gluten free. So...
  14. MDRB
    Sorry but oats usually contain gluten! There has been a lot of debate about this but most celiac resources say not to eat oats. However if you are after gluten free breakfast ideas, 'lowans' brand rice porridge is really good, as is 'basco' brand honey rings, both should be at your local supermarket
  15. MDRB
    Well, I live in Australia, so the labeling laws etc might be different here. However, in Australia maltodextrin is most definitely derived from wheat and therefore has gluten in it. If you are not sure, call the company and ask.
  16. MDRB
    I went gluten free for about 6 months before getting any tests done. My doctor told me that the tests should still be accurate, however they came back negative. I then went to see a gastroenteroligist who told me to eat at least one meal a day with gluten for at least a month before having an endoscopy (which came back positive). Tests can be inaccurate...
  17. MDRB
    Hi! I'm in Australia too! I recently missed out on two really important exams at uni because I got 'glutened', so I feel your pain! I had a medical certificate for the day before the exam, but the lecturer didn't believe that I could still be sick from eating: in her words 'a tiny little bit of wheat'. Grrrrrr I find that I am usually sick for at least...
  18. MDRB
    Yeah, she still could have celiac disease. Biopsy and blood tests are often not accurate in adults, but it is even worse with children. The best indicator is if she feels better on the gluten free diet. As for the lunch box ideas, you could do a rice salad, gluten free pasta salad, or chicken sticks (bake slices of chicken breast coated in egg , gluten...
  19. MDRB

    ARCHIVED Menstruation

    MDRB posted a topic in Related Issues & Disorders

    Ok, I have a question but there is a lot of information so bear with me. I have always had extremely bad menstrual cramps, so bad that I used to vomit or pass out. I was told that I may have endometriosis and put on the pill when I was 16 to improve the symptoms (which worked). I have been on the pill for seven years and am ready to come off it. A few months...
  20. MDRB
    Yep, most gluten free breads taste like a kitchen sponge. I found that the gluten free breads that you get from the supermarkets are the worst. The best ones that I have found have been at little bakeries, so you could try calling a few of the bakeries in your area and seeing if they offer any. Good luck
  21. MDRB

    ARCHIVED Feet?

    MDRB replied to MDRB's topic in Dermatitis Herpetiformis

    Lol, Well I don't eat seafood and I cut out most processed foods when I went gluten free. I really appreciate the advice, its good to know that I'm on the right track
  22. MDRB
    I'm so sorry that you have been so sick. You certainly may have celiac disease. While it is inconvenient at first, eating gluten free will quickly become second nature. I can relate to the crying and feeling frustrated. The worst for me was when it I asked for a gluten free meal at a restaurant and was served the most bland, tasteless meal I had ever had...
  23. MDRB
    Oh dear, the life of a celiac. lol Brushing his teeth before kissing is a good place to start. As for the...ahem... other issue. He most likely touches that area at some point during the day with gluten covered hands which as odd as it sounds, could be a source of contamination. It may be too much to ask for him to have a shower before sex, but you could...
  24. MDRB

    ARCHIVED Lymphoma And Celiac

    MDRB replied to blackbeltmom's topic in Doctors

    Well, it is certainly a possibility. Most celiacs have a family history of the disease. Unfortunately there is just not enough awareness about celiac disease and it is extremely under diagnosed. Even today many people do not get diagnosed until the disease manifests itself as cancer. I was diagnosed a while ago and am in the process of trying to convince...
  25. MDRB
    I agree with what has already been said. If you stick to foods that are naturally gluten free such as rice, potatoes, meats, etc you will actually save money, especially if you shop at a fresh food market rather than a grocery store. The only gluten free processed foods that I buy are snack things such as gluten free muesli bars. Good luck
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