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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by MDRB
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Oh dear, I know how she feels, I am so so careful about my diet and I still managed to get 'glutened' a couple of days ago. How long it will take for her to heal depends on how much damage was done and what her immunity is like. I notice that you mentioned in one of your replies that you will me moving in together soon. You will need to be really careful...
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ARCHIVED Reactions To What Seems Like.. Everything?
MDRB replied to LakotaLegend15's topic in Coping with Celiac Disease
Hi, Celiacs really takes its toll on your body. A lot of celiacs find that they react to fatty foods and/or large amounts of carbohydrates until they have completely healed, which can take a while. Remember that your body is suddenly being bombarded with types of starches that it may have never come across before. Introduce them slowly allowing your body... -
ARCHIVED What Types Of Reactions Do You Get When You're Glutened?
MDRB replied to blondebombshell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I think everyone has slightly different reactions to getting glutened depending on the level of damage to the body. Some people are just more sensitive than others. Personally I get tired and a brain fog as well as stomach symptoms. I find that gluten free flour actually makes a really good pizza base if you mix in a couple of eggs and some lemonade... -
ARCHIVED New Celiac With Questions
MDRB replied to KristaleeJane's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you have made up your mind to get the biopsy: whatever you do, do NOT go gluten free prior to having the endoscopy! I went gluten free for six months before deciding to get tested. After seeing the gastroenterologist I was told that I needed to go back on the gluten for 4 weeks before the biopsy for it to be accurate. They were the WORST 4 weeks of my... -
ARCHIVED Australian Gluten Free Restaurants
MDRB replied to MDRB's topic in Introduce Yourself / Share Stuff
I went to 'crown pizza and ribs' in reservoir, I guess I should have just asked but I'm still getting used to being a pain in the ass. I've also been to 'silly waks' in northcote which is entierly gluten free and really really good. I tried a wagamamas restrant lastnight and although none of thier meals were gluten free, they were happy to cook something... -
ARCHIVED It's A Pain, But Not The End Of The World...
MDRB replied to mrsry's topic in Coping with Celiac Disease
It will come, it just takes some people longer to heal (as I'm sure you know). I guess you could try vitamins, probiotics and resticting your diet a little more which might help you heal quicker. I'm still looking quite thin, but have lot that zombie look you mentioned. I hope you don't get too down, I've been there and even though it can take a while... -
ARCHIVED The Varying Ranges?
MDRB replied to kitten37's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi, all the tests mentioned by 'happy girl' are a really good start. Remember that you will need to continue eating gluten in order to get an accurate diagnosis. I went gluten free prior to the seeing a doctor and then had to go back on the gluten to get tested. This is a really bad idea as my body had started to heal and reacted really really badly to... -
ARCHIVED Australian Gluten Free Restaurants
MDRB replied to MDRB's topic in Introduce Yourself / Share Stuff
Hi, thanks for replying! I live in melbourne and so far have found two gluten free resturants. Do you think that a resturant that offers gluten free pizzas alongside thier regular menu should be ok? I'm a little worried about them being cooked in the same oven and being prepared in the same area. Thanks for the advice about the celiacs society, I've been... -
Hi, I had a hair thinning problem before diagnosis but it is starting to thicken up again. Vitamin B deficiency can cause hair loss and it just so happens that vitamin B levels are often very low in celiacs. You can get a blood test to verify this and try a vitamin supplement (make sure its gluten free). Good luck going gluten free, remember that it can...
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ARCHIVED The Varying Ranges?
MDRB replied to kitten37's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi, Welcome to the forum. I'm twenty three and am fairly new to all of this as well. I've also been digging around a lot. I found that doctors journals are a really good source. Here are some things that I have found out. My understanding is that a wheat allergy can cause an anaphylactic reaction but that celiacs is an intolerance not an allergy and so... -
ARCHIVED What Are My Odds Of Gluten Intolerence?
MDRB replied to Glutenous-Maximus's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My doctor told me that celiacs is in 1-2% of the population, if a blood relative has celiacs it increases your chances to about 21 - 22% Also your test results would be effected by a gluten free diet as the damage to your body could have healed. I was told before my endoscopy that I had to eat gluten for a month before I would get an accurate test result... -
ARCHIVED How Long For The Gluten Reaction To Show Up?
MDRB replied to MELINE's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
My doctor told me that I would need to have at least one gluten filled meal every day for a month before the biopsy otherwise I could get an false negative. Even though a lot of people get stomach symptoms within minutes of ingesting gluten, it takes weeks for the damage to the villi to become bad enough to be noticeable on a biopsy. Had you been gluten free... -
Hi, I'm sorry to hear that you are not getting the support you need at home. I am a student and as such am also on a limited budget. I found that the processed pre packaged gluten free stuff was way too expensive so I started to make everything from scratch. It can be time consuming, so I did it all on the weekends and froze the meals. You can make your...
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ARCHIVED It's A Pain, But Not The End Of The World...
MDRB replied to mrsry's topic in Coping with Celiac Disease
I totally hear that! You and I probably look like twins. The worst for me is the weight thing. Because I'm a woman they just assume I'm anorexic, or if I'm scoffing down a huge meal they think I'm going to throw it up once I'm done. Sometimes it really feels like people are accusing me. Luckily I'm starting to gain a little with the gluten free diet. I... -
ARCHIVED It's A Pain, But Not The End Of The World...
MDRB replied to mrsry's topic in Coping with Celiac Disease
LOL, Last time I had an insensitive comment from a gluten eater I was having a really really bad day and I threatened to beat the hell out of him with the 2 kg bag of potatoes I was carrying. Perhaps not the most mature response but I'm sure he'll think twice before the next time he decides to pisses of a celiac with PMT. -
ARCHIVED Defensive Doctor
MDRB replied to Wonka's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
FIND A NEW GASTROENTEROLOGIST NOW! I think we've all had doctors like this. There is not enough awareness about celiacs amongst the medical community. I basically diagnosed myself before going to my GP and demanding tests and the name of a good gastroenterologist. This followed years of being passed around by doctors telling me one of three things: 1... -
ARCHIVED Question About Diagnosis...
MDRB replied to Panopticism's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Most doctors say that an endoscopy is the only way to positively diagnose celiacs. I was gluten free for about six months before I went to see a gastroenterologist. The Doctor told me that I would have to eat at least one meal a day that was gluten based, for four to five weeks before the endoscopy. Well, I followed this diet and was an absolute mess, it... -
ARCHIVED Fatigue And Joint Pain
MDRB replied to deb08's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I found that it took about a month to start feeing better. Having said that, I still had bad days for quite some time. I still get fatigue and stomach symptoms if I accidentally ingest some gluten. Bare in mind that some people take a lot longer to heal than others. Some celiacs start feelng better within weeks, others it takes years. I would try taking... -
ARCHIVED New To All This And Really Wondering
MDRB replied to sherie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I went gluten free for about six months before going to the doctor. I then had to eat at least one meal a day containing gluten for a month before the endoscopy. The gluten made me really really sick, much sicker than I had ever been before I went gluten free. I was a total zombie and I barely got out of bed. It also took me at least another month to start... -
Hi, I'm new to this forum and no sure if I am posting in the right place. I've viewed the international section and found that it was a bit of a jumble and hard to navigate. I just wanted to suggest that instead of having just one section for international users, it could be split into several sections: Eastern Europe, Western Europe, Australasia etc...
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Hi all, I'm fairly new to the gluten free game. I have the diet sorted but am still looking for safe places to eat out. Would appreciate any suggestions on gluten free or gluten free friendly restaurants anywhere in Australia. Also would welcome any product suggestions. Thanks for any help
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ARCHIVED Will My Test Be Accurate?
MDRB replied to danem's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I would ask your doctor about the medication as he may have overlooked it (doctors are still human and as such often make mistakes). Some doctors argue that the only way to diagnose celiacs is with an endoscopy. Before I was diagnosed, my blood tests came back negative. My doctor told be that I definitely did not have celiacs. I then did a bit... -
ARCHIVED Do I Have Celiac? Is The Question
MDRB replied to johnsoda2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I was gluten free for about 6 months before I went for diagnosis. My gastroenteroligist put me on a stick diet for one month, I had to eat at least one meal a day that was gluten based. I felt like I was dying after the first week which convinced me that I did infact have celiacs, this was later confirmed with the endoscopy results. It then took me at least... -
Hi there, I think we've all experienced this. I read a lot of doctors journals etc about celiacs and a lot of them suggest that gluten affects you on a neurological level, your body is addicted to gluten and it needs to detox before getting better. I found that once I cut it out, cold turkey, after a while I didn't even crave gluten anymore! I look...
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ARCHIVED It's A Pain, But Not The End Of The World...
MDRB replied to mrsry's topic in Coping with Celiac Disease
I think we've all had those comments. People are in general pretty ignorant about things they don't understand. I was probably just as ignorant before diagnosis. Personally I am happy not to eat gluten as I feel fitter and stronger than ever before. As far as the cake goes, try a gluten free cake mix (most are pretty good) or google 'flourless chocolate...