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Latest Celiac Disease News & Research:
Everything posted by ShayFL
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ARCHIVED Specific Carbohydrate Diet (SCD)
ShayFL replied to AliB's topic in Food Intolerance & Leaky Gut
Those enzymes dont sound SCD legal. If you try the Neem, note that it might get a little worse before better for 3 or 4 days. But hang in there. It is a great anitmicrobial and cannot hurt in that respect. But keep on with the SCD and the probiotics as well. -
ARCHIVED Questions About Test Results
ShayFL replied to Cuba's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Diagnosing Celiac is complicated at best. The fact that you are "gluten lite" can make you have a FALSE NEGATIVE on your biopsy. Since you are going that route (biopsy) (and I think you should), you need to really start eating gluten. Every lunch should be gluten laden....pasta....pizza....big hoagie rolls, beer, etc. Every morning stop somewhere on the... -
ARCHIVED Specific Carbohydrate Diet (SCD)
ShayFL replied to AliB's topic in Food Intolerance & Leaky Gut
NO...the essential oil is not for consumption. I took this brand: Open Original Shared Link There is a thread about Neem somewhere on the forums. Others had success with bloating using other brands as well. I liked these because they were small and I only had to take one a day. I took mine in the morning (empty stomach) with George's aloe (... -
ARCHIVED Dental Problem
ShayFL replied to Amber M's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I've been studying Ayurveda lately with some success in tweaking my diet for my dosha (Pitta dominant). I am now trying "Oil Pulling" for my teeth and gums. Google it. I will let ya'll know how it goes. I just started. -
ARCHIVED Specific Carbohydrate Diet (SCD)
ShayFL replied to AliB's topic in Food Intolerance & Leaky Gut
Ironically, your BS can go up even if you fast. The liver spews glucose when it gets low and for some people their livers "overreact" and you get higher BS readings. I used to have "bloating" all of the time and I dont anymore. It wasnt the SCD that got rid of it. It was NEEM. I felt like poo inside for 3 or 4 days but then the bloating went away and... -
ARCHIVED Maybe Not Celiac?
ShayFL replied to minton's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you still have the DH or it is coming back....get it biopsied. Super easy and not painful. 10 minutes at the Dermo. Genes mutate. You could be the first one if EVERYONE else has been genetically tested in your family and dont have Celiac Genes. PLUS a very small % of people have GOLD STANDARD DX Celiac without either DQ2 or DQ8. So I wouldnt rule... -
ARCHIVED Specific Carbohydrate Diet (SCD)
ShayFL replied to AliB's topic in Food Intolerance & Leaky Gut
Kristina....make sure you see your Gyno as bloating can be the only symptom of ovarian cancer. Not trying to scare you, but better safe than sorry. If you have already had that tested and posted and I missed it....sorry. But just had to mention it. -
ARCHIVED Just Found Out - Little Bro Has A Brain Tumor
ShayFL replied to ShayFL's topic in Introduce Yourself / Share Stuff
Thank you again everyone!! It is the waiting that is so hard. March seems such a long way off. If he needs the surgery that will be another hurdle as he lives in a very rural part of GA. Tallahassee would be the closest for him. I know how important a good surgeon is!! -
I posted this test on here about a month ago and several took it and failed. Let us know how supplementing goes!!
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ARCHIVED Does Anyone Have Sugar Cravings?
ShayFL replied to whitball's topic in Coping with Celiac Disease
You can find it at any health food store or online: Open Original Shared Link Stevia is sweet. One caveat is that if you use too much it will taste bitter. I like it. My daughter hates it. It is a personal thing. So dont buy in "bulk". Buy small to see if you like it. READ THIS. ALL OF THIS (head injury/sweet cravings related): Open Original... -
ARCHIVED Body Ph Imbalance - Low Stomach Acid
ShayFL replied to MELINE's topic in Related Issues & Disorders
This is what happened to me. -
ARCHIVED One Test Negative, One Positive, Do I Have Celiac?
ShayFL replied to Tom W's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Right. You either have it or you dont: Patients with a positive IgA Endomysial Ab or IgA TTG Ab should undergo small bowel bx. Bx should be obtained from 2nd and 3rd portion of the duodenum. I found that online. You should see about a biopsy. But even if the biopsy is NEG, you cannot assume you dont have it. Ask for a GENETIC test too to cover all... -
ARCHIVED I Want To Get A Test Done But Im Worried ...
ShayFL replied to mr. moore's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That's right. I was NEG for hypothyroid for nearly 15 years (because the lab ranges were WRONG). It WAS all in my head until I showed my doctor the correct lab ranges and got treated properly (and got better). So do not worry if you get a NEG result. Try the diet anyway. If it works for you, then you have your answer. Even if they still think... -
ARCHIVED How Much Of This Is Celiac, Or Could There Be Other Issues?
ShayFL replied to medic8r's topic in Parents, Friends and Loved Ones of Celiacs
If you are CERTAIN he is 100% gluten-free and no cross contamination at home/eating out/school/etc. Then you might consider eliminating DAIRY too. It may not be permanent. The tips of the villi digest milk and those were damaged based on what you have told us. Many Celiacs have to eliminate dairy at least for 3 or 4 months to allow their body to heal... -
ARCHIVED I've Figured Out What's Wrong...
ShayFL replied to QueenOfPain's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I had "no case" according to the labs. But responded to a 100% gluten-free diet with no more migraines, vertigo and neuropathy. Your doctor would have told me to eat gluten like it was going out of style with no concern. I'd find a new doctor. But then again....deep inside....I'll bet you know the answer. We just dont want to EVER change our diet... -
ARCHIVED Just Found Out - Little Bro Has A Brain Tumor
ShayFL replied to ShayFL's topic in Introduce Yourself / Share Stuff
Thank you everyone!! I just spoke with him in depth. He has to take the medication until March when they will do another MRI to see if the tumor is "shrinking". It is not a secreting tumor, it is just putting pressure on the pituitary and causing hormonal defects. Thank you for your prayers. We need em!!! -
ARCHIVED Just Found Out - Little Bro Has A Brain Tumor
ShayFL posted a topic in Introduce Yourself / Share Stuff
Hey everyone....I just found out my little bro has a brain tumor. It is on his pituitary and they suspect it is "benign" even though it has completely messed him up physically and caused depression. His hormones are a mess....so I dont see it as "benign". They are still running tests. They put him on medication immediately to "shrink" the tumor and it... -
ARCHIVED A Question For The Ladies
ShayFL replied to mmmSmores's topic in Coping with Celiac Disease
I agree. I have had tender breasts for years. But the doc. knows about it and I get checked out every year. Better safe. -
ARCHIVED Specific Carbohydrate Diet (SCD)
ShayFL replied to AliB's topic in Food Intolerance & Leaky Gut
How wonderful Chaty!! So glad you are feeling BETTER. -
ARCHIVED Specific Carbohydrate Diet (SCD)
ShayFL replied to AliB's topic in Food Intolerance & Leaky Gut
Carrots are VERY high in Fructose. Most people have a "cap" as to how much fructose they can absorb at one time. Seems like you went past your cut off. Open Original Shared Link I personally can only eat limited quantities of fruit or I **fart** non-stop. I eat about 2 - 3 servings of fruit per day tops! -
ARCHIVED Help, Symptoms Returning
ShayFL replied to minton's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You sound anemic. Anemia can cause headaches....migraine types. You cannot possibly be getting enough protein and iron from just "fruits and veggies". I have a Phd in Holistic Nutrition. I saw it time and time again.....strict vegans who became anemic and protein deficient. I was vegan myself for quite some time because I thought it might be healthier... -
ARCHIVED What To Do Now?
ShayFL replied to angelschick's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I see where you are coming from Amy. Mine used to be low too. If something prevents you from processing and digesting fats then it will be low. Gluten can do this, but so can other things. The fact that you improved symptom wise on a gluten-free diet is MORE telling. You can start noshing on tons of gluten for the next 3 months and get a FULL celiac... -
A lot of research is very interesting....but somethings in this article sound sketchy to me: The thyroid is also "responsible" for the development of autoimmune system diseases. They pulled the thyroid out of a hat here. Thyroid regulates metabolism, body temperature, etc. I am sure it has an indirect affect on the immune system, but I have never...
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ARCHIVED Sever Weight Loss
ShayFL replied to Durntootinnoglutin's topic in Related Issues & Disorders
Dairy is a problem for many of us. Could be that Carnation instant is part of the problem. Consider axing dairy at least for awhile. Eat plenty of healthy fats: nuts, seeds & avacado Complex carbs, veggies, fruits and whole grains (if you tolerate them). -
ARCHIVED Flavored Teas
ShayFL replied to SandyStPeteFL's topic in Gluten-Free Foods, Products, Shopping & Medications
"barley malt" is a dead giveaway. I had to toss a bunch of my "flavored" tea.