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Latest Celiac Disease News & Research:
Everything posted by cassP
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ARCHIVED Allergies Since Going Gluten Free?!
cassP replied to cassP's topic in Food Intolerance & Leaky Gut
its definitely food allergies- in the above incidences- the reactions started shortly after eating them- and it starts with my my stomach actually throbbing... then it gets kind of hot- then i know the HOT HIVES will be creeping up my neck and face and forearms it's very strange, cause like i said- i never had food allergies before. and its the evening... -
hi... im not sure how to present this question, but have any of you noticed that since you've gone gluten free, you now are having food allergies that you never had before???? im so confused, i thought i had things figured out. ?? i am one of those people who, while i had a sensitive digestive system, i NEVER had allergies, ever. i broke out in hot hives...
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ARCHIVED Numbness And Tingling....docs Dont Know...help Again Please!
cassP replied to Holly4's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
yes all those things (B12 & vit deficiencies, Thyroid disorders) can all come with Celiac. or they could all be seperate too. make sure you get copies of your results to understand them yourself- because like above poster said- your B12 could be "within range" but only be like 250 which is most definitely low enough to cause the numbness in your hands... -
ARCHIVED Got A Blood Test For Ttg This Morning. Is That Enough?
cassP replied to possiblyglutensensitive's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Aint that the TRUTH!!!!! -
ARCHIVED Got A Blood Test For Ttg This Morning. Is That Enough?
cassP replied to possiblyglutensensitive's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
no, it's not enough.... false negatives run so high, it's best to get a COMPLETE panel: TTG Igg AND Iga Antigliadin Igg AND Iga Endomysial Antibodies Total Iga Serum -
ARCHIVED Dairy And Soy Free Yogurt?!?!?
cassP replied to Rachel W's topic in Coping with Celiac Disease
i like the goat milk yogurt i get at whole foods -
i havent noticed it aggravating mine- HOWEVER- i only partake in lemons or lemonade. because im a believer in a certain diet (and because it always made me throwup in the past)- i always abstain from oranges & orange juice. so i cant help u there. the acidity in orange juice could be aggravating your stomach & pissin off your antibodies- but im...
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i agree with both girls above- i think you should get your Thyroid checked, and your vitamin levels (esp. b12) checked. as someone who has suffered Panic Attacks, Generalized Anxiety, and Shortness of Breath on & off for YEARS, but especially bad the last 5 years (when my Hashimoto's Hypothyroid probably kicked in)-> let me tell you- your anxiety...
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ARCHIVED Generic Drugs
cassP replied to bincongo's topic in Gluten-Free Foods, Products, Shopping & Medications
ya- it's probably best to call each company yourself about each particular med. im in the process of doing that myself... it can be quite complicated when you're using different pharmacies- and some brand names & some generic -
ARCHIVED How Many Family Members Have Celiac?
cassP replied to shezatrip's topic in Coping with Celiac Disease
im sorry and share your frustration -
ARCHIVED Changes In Reaction?
cassP replied to bk-63's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
oh yes! my reactions changed all the time when i was still eating gluten!!!! and towards the end when i had my "last gluten meal" - i had severe nausea & tachycardia- it was CRAZY... i had had heart palpitations or mild tachycardia plus sugar dropping & dizzyness before- but this last meal- my heart rate shot up to 160- i was mesmerized, and actually... -
ARCHIVED Please Help...celiac Panel And Genetic Test
cassP replied to DoogiePCT's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
dont let what others think dictate how you should eat. the Gluten Free Diet is NOT a weight loss diet- for me, and others, we HAVE lost weight.. but other people (with the classic "D" and dropping weight symptoms) will actually PUT ON weight. i would agree that after the biopsy you should try the diet- as long as you're eating fresh healthy balanced foods... -
ARCHIVED Sudden "d", Advice Needed
cassP replied to Free-CountryGirl's topic in Coping with Celiac Disease
in agreement with one of the above posters: sometimes Dairy "D" doesnt hit me till the next day. soy doesnt give me "D"... but bloating and gas chocolate is fine usually, but SOMETIMES gives me acid reflux. Corn gives me "gluten-like" symptoms. also- regardless of whether u have FM or not-> a lot of those fake fats & fake sugars in different... -
ARCHIVED How Many Family Members Have Celiac?
cassP replied to shezatrip's topic in Coping with Celiac Disease
OY- most of them will not get tested i have 2 DQ8s- one from both mom and dad. i 100% believe my Dad has it- and he wont get tested ((((( he's had psoriasis for YEARS & anxiety. both his parents ended up with dementia- and i dont want my dad to Mom's got Hashimoto's and is at least Gluten Sensitive. Sister is gluten free, and brothers are... -
ARCHIVED Seeking Advice/insight
cassP replied to concernedmamma's topic in Parents, Friends and Loved Ones of Celiacs
in my opinion, and from what ive been reading- you can still be getting glutened or having physical issues even when your numbers are in normal range- my numbers were pretty "normal" and low- and i was having quite a bit of intestinal & mental issues. i read a recent study too- where they were testing these children for GLO something ??? something... -
ARCHIVED Could This Be A Symptom Of Celiac Disease?
cassP replied to MYJC's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
ya- totally sounds like the classic symptoms... whether you test or not or get any kind of dx- i think you should definitely consider eliminating gluten to see how your body feels- definitely worth a try in the end -
i had a SEVERE allergic reaction to a frozen meal made by Conagra (hives & stomach throbbing)... i called them- and they were very knowledgeable and nice- located the product i had, and reassured me there was no product form wheat, barley, or rye in there. so they knew what they were talking about. my reaction had nothing to do with gluten but just from...
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try adding a big tbsp of Maple Syrup to your gluten-free version of the Toll House Recipe- it makes everything stick a little better (and i dont know what flour you're using- but i prefer certified gluten-free oat flour and maybe a little soy flour.... i thought Coconut flour would be a good idea- but it was a CRUMBLY messsss
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ARCHIVED Come On...balsamic Vinegar Too? I'm Eating Like A Rabbit.
cassP replied to lucky97's topic in Coping with Celiac Disease
every balsamic vinegar ive gotten has been safe- i also have a Blue Cheese Yogurt salad dressing at home - i forgot the brand- but it's labeled gluten free. ive had a honey mustard dressing that was gluten-free too- it gave me a little reaction- but thats because i have issues with fructose & high fructose corn syrup. good luck -
ARCHIVED Lots Of Questions....please Help!
cassP replied to Holly4's topic in Coping with Celiac Disease
i dont understand why your doc would say you didnt have it when your ttg was "extremely" high, and your Deamidated Antigliadin was high as well- plus you are describing the tingling/numb hands and feet- which so many Celiacs get. i assume they get it from a deficiency in B12- have you had your B12 levels checked??? maybe your doc is just unsure because... -
ARCHIVED Calling All Scientific Minds!
cassP replied to Ox on the Roof's topic in Coping with Celiac Disease
OMG ! a GALLON of milk????? that much??? i can handle small amounts of milk- but a GALLON- i dont think you would need a breath test with a gallon- im pretty sure the "D" would be imminent -
ARCHIVED Wikileaks And GMO Corn
cassP replied to mushroom's topic in Gluten-Free Foods, Products, Shopping & Medications
ya- its enraging!! i follow a lot of natural news people on twitter & such (GreenMedInfo, Natural News, GMO dangers, etc)-> they've been posting Wikileaks stuff for weeks and it is so so so so so awful.. Our government has been bullying Europe & Africa hard with the GMOs.. we all know our government & others are corrupt-> doesnt matter... -
ARCHIVED Does This Rash Ever Go Away?
cassP replied to catarific's topic in Dermatitis Herpetiformis
Open Original Shared Link that's what i bought. i dont know about that website, i got mine at whole foods. -
ya- and people really have no idea how much else there is to eat out there!! wheat is only ONE freakin grain out there... there is so much more healthier foods that noone ever eats.. i love my Quinoa and Basmati Rice.. and BEEF!!!!!! it just takes a little more preparation
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ARCHIVED Does This Rash Ever Go Away?
cassP replied to catarific's topic in Dermatitis Herpetiformis
is it DH??????? ive had just about every skin manifestation from Celiac- Psoriasis & Excema & Dandruff disappeared fairly quickly for me after going gluten free... even just gluten lite- like in a week or two- But DH took about 4 months to go away after going 100% gluten-free- this Ionized Silver Ointment from whole Foods really helped- took...