Jump to content

cassP

Advanced Members
 View Profile  See their activity

  • Posts

    1,569

  • Joined

  • Last visited

  • Days Won

    1

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by cassP

  1. cassP

    ARCHIVED I Got A New Doctor Today.

    cassP replied to aderifield's topic in Doctors

    ive gone thru all the different symptoms... but Constipation seemed to be the most common. big time!!! horrific sorry about the new doc
  2. cassP
    im sure a moderator will help clear this up for us. the starch is suspicious, but it could be from corn.?? also- a lot of us get intestinal gurgles from Sorbitol and Mannitol ive actually been getting more natural gum from whole foods that is also labeled gluten free... it's been a better experience for me.
  3. cassP
    7 days is not long enough. my GI had me do 2 weeks. others on here suggest up to 2-3 months. if i were you, as long as you're not feeling too ill- i would push the procedure to a little later so you can get a more accurate test and make sure they take 6 samples from different areas. good luck
  4. cassP
    why do you get upset when someone says "well what did you eat?" ?? it is possible to have other food intolerances & allergies... or it may be a food you're normally ok with- but maybe it points to one of your organs not working properly. im always asking people what they ate- im just trying to help them solve their puzzle
  5. cassP
    pain from cooked spinach?? & you're in your 4th month gluten free?? what else did you eat today??? for breakfast? and for lunch with the spinach??? did you drink coffee today? or have dairy? or use any artificial sweeteners? or chew gum with sorbitol?? its just hard to imagine cooked spinach to be a culprit. ??
  6. cassP
    why is it odd??? is my "thinking outloud" not coherent???
  7. cassP
    i MISS casseroles.... has anyone seen a gluten free cream of mushroom soup ??? i havent been able to find one yet ??
  8. cassP
    oops, forgot to address the ear question in my pm. i dont have ear reactions to any of my diet or disease issues- BUT- when i was 3- i DID have that procedure where they have to put tubes in your ears... in addition to a tonislectomy & adenoidectomy.... im now suspecting that they immune flair ups may have been the 1st signs of Celiac. but anyways- your...
  9. cassP
    lots of things for my birthday, my dad made DELISH meatballs with gluten free bread crumbs, a nice tomato sauce, and Tinkyada Rice Fettuccini
  10. cassP
    YUMMMMMM cant wait to try
  11. cassP
    good to know, since it's in almost everything
  12. cassP
    AMEN. HCL is identical to stomach acid. also if anyone ever juices BEETS- always mix it with other fruits and veggies- it is just as bad as stomach acid too! i ALREADY KNEW this- and still forgot one day- only drank the beets and burned my esophagus if you cant get to a doc yet, and want to aid in your digestion- try a little apple cider vinegar before...
  13. cassP
    just saw my GI today. he said "the medical community wants the positive blood test AND biopsy", but that he's confident with all my tests & symptoms that i have Celiac. i told him i would never go back on gluten for a biopsy, but just wanted my family to get screened. my dad is STILL brushing it off ( i single him out- cause he's the only one in the...
  14. cassP
    wow- how do you come to find out all the different parasites you have had??? really good health insurance & a very cool alternative doctor??? id love to have all that info. i was lucky to stumble upon an alternative doc who did the heidelberg test on me- which was GREAT to finally realize i had low stomach acid-> finally broke me of my 4 year Zantac...
  15. cassP
    idk, but it CAN be common for someone to have Celiac & Type 1 Diabetes..and gout can develop from diabetes... in Europe they already test for both if one is suspected.. and i think they're starting to do that here- maybe just for people dx with Diabetes 1. ???
  16. cassP
    i just went to my GI today- and he also is completely aware of common false negatives- im glad to see these docs are becoming more educated to the first poster- im not sure what your doc was exactly communicating-> but i can tell you- that many gluten intolerant people ALSO feel better off most grains. some are totally fine, but others like me feel...
  17. cassP
    i had my tonsils & adenoids taken out when i was maybe 3. i have Celiac, and im low on Iga. i dont know if there's a known link w/ this or apnea, but i wouldnt be surprised. you might want to have the doctor test his "Total Iga Serum"... it's not diagnostic of Celiac (even tho Iga deficiency is common in Celiacs)- but it would tell you if he has...
  18. cassP
    you both could yes. you never know really... and you cant always tell by the symptoms... you might as well BOTH get tested- it cant hurt really.. its better than not knowing and possibly getting really sick in the future. and even if you both come up negative- the fact that you feel better OFF gluten should motivate you. some Celiacs dont have any gut...
  19. cassP
    i really dont know??? but if you had issues in your descending colon- that could make your left side swell more than the rest of the abdomen. but idk. make sure your doc is ruling out everything and checking you're ok ?? ask him if you should have a colonoscopy to check the area... idk, best of luck to you:)
  20. cassP
    1st- skylark & mushroom's post just above just explained a lot for me- thanks, makes more sense now. 2- i HATE hate HATE MSG! it almost bothers me more than Gluten!!!! altho it's not as long lasting as Gluten's effects, i really dont appreciate looking like im 5 months pregnant for the rest of the day 3. some things i LOVE to help heal the...
  21. cassP
  22. cassP
    i havent tried Udi's stuff yet- nor do i know the ingredients.... but i DO know, whether or not you have a problem with grains & carbs- GLUTEN FREE specialty products have A LOT of not so great ingredients- a lot of calories, and a lot of problematic ingredients. i, personally feel better if i eat more natural foods & only eat the specialty gluten...
  23. cassP
    you're doing the right thing by having your doc check everything (your chest, your organs inc. spleen)..... im not your doc, nor do i have answers- HOWEVER, i can relate to pain the ribs and abdomen, etc.... im a massage therapist (for the time being)-> and not only do i have a ton of pain (muscular & fascia) thruough my trunk from work & postural...
  24. cassP
    you said on an earlier post that you had your gall bladder removed in the past- its very possible then, that your liver is tired and sluggish.... so i guess your doc needs to check your liver make sure everythings ok.... in the future, as long as your liver is healthy- those tinctures i mentioned can help.... or eating a lot of lemon & olive oil... apples...
  25. cassP
    i thought that they could not deny you anymore for pre-conditions??? im no expert on the Pseudo HCR bill that passed- but i thought that was ONE of the few things in it ???? and idk- if the situation in your family is pretty severe- you may just want to get all the testing done, and get on a payment plan?? sometimes it's just worth it you know?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.