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nasalady

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Everything posted by nasalady

  1. nasalady
    Hi again, I forgot to mention that it's very possible to have more than one autoimmune disorder at a time. I'm a great example of that! The good news is that many people have said that the gluten free diet has helped most or all of their illnesses go into remission, although it takes time. You do have a puzzling set of symptoms and I wish...
  2. nasalady
    Here is a gluten free apple tart recipe that is delicious, from one of my favorite gluten-free bloggers, Erica (aka RissaRoo). She is a member of this board but hasn't been around recently.... Open Original Shared Link My family loves it! Hope it works for your daughter!!
  3. nasalady
    It'll be OK....I went gluten free 3 days before Thanksgiving and I made everything I usually do, but gluten free (stuffing, pies, gravy, etc). I just used recipes I found here or elsewhere on the Internet to help me convert my recipes to be gluten free! It was all delicious!
  4. nasalady
    I'm so sorry.....I didn't mean to scare and depress you too! We do need a "crying" emoticon. It is true that anemia can be caused by hypothyroidism and celiac disease too, which we both have! So you don't necessarily have lupus! (((hugs))) JoAnn P.S. I'm totally with you on the "I wish I had known all of this about 30 years earlier...
  5. nasalady
    Hi and welcome! Sorry to hear about the circumstances that bring you here though! It's so difficult to suffer from multiple unexplained symptoms for years....I hope you get your answers and feel better soon! Some of your symptoms, such as being hypothyroid and early menopause, do sound like they could be celiac-related. I'm not certain about the others...
  6. nasalady
    Hi there...welcome to the board! I'm sorry to hear about your diagnosis and symptoms....celiac disease can actually mimic other diseases, so it can be difficult to ascertain if you have celiac alone, or celiac and something else too. If you want to be tested for lupus or any other "rheumatic" or connective tissue disorder, you'll probably have to see...
  7. nasalady
    P.S. I have celiac, and both of my pinkies end well below the final joint of the fourth finger.
  8. nasalady
    There was a poll on this topic (short pinky fingers) which was started a couple of years back: https://www.celiac.com/gluten-free/index.php?showtopic=38402 If you've never voted in it, please do so to improve the statistics!!
  9. nasalady
    Thanks Gemini! I hope you DON'T have lupus; glad to hear you have no symptoms! I don't know.....maybe there's no point in pursuing this since I'm already on immunosuppressants? I don't really know what the treatment is for lupus; is it basically the same as for other autoimmune disease?
  10. nasalady
    I don't know if there are any experts out there on blood work relating to lupus, but if so, please help! I saw my rheumatologist recently and got the following results; is this serious or not? CREATINE KINASE, TOTAL: 71 (Reference Range = 29-143 U/L) ANACHOICE SCREEN : POSITIVE (Reference Range = NEGATIVE) ANA TITER AND PATTERN ...
  11. nasalady
    Me too! It just means that you have the less common celiac gene. There are more DQ2s than DQ8s that have celiac....but DQ8s can definitely have celiac too.
  12. nasalady
    We just got back from the pediatrician's office.....Emma (3 years old) has grown a full inch since May!! She went gluten free in January; subsequently gained nearly two pounds in 5 months (that was about 10% of her starting weight at the time). Unfortunately today we were told she has now lost about 1/3 of a pound since the May visit, but we think that...
  13. nasalady
    That's wonderful! So glad to hear about all of the improvements in your daughter! This must be a big weight off your shoulders! We just got back from the pediatrician's office where we found out that Emma, our 3-year-old failure-to-thrive daughter, has grown a full inch in height since May! Unfortunately she lost about 1/3 of a pound (0.15 kg), but...
  14. nasalady
    Someone on this site who is a biochemist said that if you wash things with a strong bleach solution, this will denature the gluten, which is a protein. So that should make your old pots and pans safe. Good luck with everything! JoAnn
  15. nasalady
    Please take a look at the following wonderful gluten-free cooking blogs: Open Original Shared Link Open Original Shared Link Not all recipes will be free of milk, eggs, and meat, but both Elana and Karina have a number of Vegan recipes. Karina has discovered over a period of a few years that she is sensitive to a number of foods and has eliminated...
  16. nasalady
    Hi again, As I said in my reply to your previous topic, https://www.celiac.com/gluten-free/index.php?showtopic=61915 my husband has had it almost everywhere.....but I didn't actually specify his feet. He has DH on his feet right now, on the top of them extending onto his ankles. Where does your husband have blisters? On the tops or bottoms...
  17. nasalady
    I'm SO sorry that you're going through this....and boy, do I know where you're coming from!! All of the autoimmune diseases that I've developed over the years due to a lack of a diagnosis of celiac disease..... Truthfully, I don't know if I'll ever be "well". I guess I've been just hoping to be significantly better. My Hashimoto's thyroiditis wasn...
  18. nasalady

    ARCHIVED Dh?

    nasalady replied to TEaglefeather's topic in Dermatitis Herpetiformis

    P.S. I don't know if you can post pictures here, but many people post them somewhere else then post a link to the pics here.
  19. nasalady

    ARCHIVED Dh?

    nasalady replied to TEaglefeather's topic in Dermatitis Herpetiformis

    Hi and welcome! Blisters are a hallmark of DH, as you probably know since your husband already has a diagnosis of celiac disease....that's terrible that they appear on his feet! My husband has had DH pretty much everywhere at one time or another.... Do your husband's blisters turn purple when they begin to heal up? If so, do the purple spots...
  20. nasalady
    Jason, It very likely has to do with the glutening of the week prior....as I mentioned in my earlier post, it is common to have elevated liver enzymes with active celiac disease. jerseyangel also said that her enzymes rise when she is glutened. Did you read our replies?? I hope I didn't worry you with my mention of autoimmune hepatitis! ...
  21. nasalady
    Hi and welcome! Sorry about the circumstances that bring you here, though. Yes, it's very common to have thyroid issues with celiac disease. Please be aware that if you do have celiac disease, you're far more likely to have or develop other autoimmune diseases as well. Lots of us have Hashimoto's Thyroiditis or Graves Disease, which are both...
  22. nasalady
    Sorry you're having these problems! I can relate, unfortunately. I'm starting to think I need to avoid ALL grains (rice, corn, sorghum, millet, etc...). I've heard this from a lot of people on this board, especially the people on the Specific Carbohydrate Diet. You might be interested in this....it's the diet people have turned to when the gluten-free...
  23. nasalady
    FYI, going gluten free can be a bit of a challenge, because gluten can be anywhere.....you may have already realized that you'll have to replace a lot of your kitchen utensils, pots and pans, toaster, etc. Or you could buy a set for him and set up a gluten-free area in your kitchen where no gluten is allowed. That's harder (having both gluten and non-gluten...
  24. nasalady
    My Emma is the same, except she has only been gluten free since January. She is 3 years old and only weighs 22 pounds. I have had the entire house on the gluten free diet since January since all 4 of us turned out to be either celiac or gluten intolerant. But I'm slowly beginning to eliminate ALL grains from our diet, along with sugar, refined food...
  25. nasalady
    It sounds VERY much like celiac disease: chronic diarrhea, weight loss, bloated stomach, hair loss....these are some of the classic symptoms. I'm so glad he's being tested, but please be aware that the tests have a high rate of false negatives, especially in small children. My own granddaughter Carly had to be biopsied twice before they found any damaged...
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