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LDJofDenver

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Everything posted by LDJofDenver

  1. LDJofDenver
    Should your tests send you down the gluten-free road, there are lots of resources. Many free. And most manufacturers are happy to send/email you a list of "safe" products they make (like Heinz, etc.). Gluten can be hidden in lots of ingredients, can even be in salsa, ketchup, or (believe it or not) ice cream. Read labels. You can buy mainstream...
  2. LDJofDenver
    Well, you could still be tired, you've only been healing for two weeks. Depending on how long you've had it and how old you are, etc., could be 6 mos. to even a year to complete healing. I don't have a gluten free kitchen either (my husband is not celiac) but, aside from things that are "mine" (gluten-free) like cutting board, colander, even mixer, you...
  3. LDJofDenver
    I believe if not produced on dedicated lines that they must say "processed on equipment that also processes wheat (or nuts, or whatever). Personally, if I see a product that says gluten free and on the back it says it is processed on shared equipment, I pass it by. Have a lot of healing to do and was over 50 when diagnosed so I'm being careful. ...
  4. LDJofDenver
    A couple of years ago, before I was diagnosed with celiac disease, my doc sent me for tests and an MRI to rule out MS, since I was having a lot of neuro symptoms - numbness, pins and needles, brain fog, balance issues/ataxia, etc. Nothing turned up for MS (thankfully), and since I've been gluten free since last August all those neuro symptoms have disappeared...
  5. LDJofDenver
    I have my days, too, though they are few now (mostly just when I get glutened). Looking back there were many spells that I don't know how I got through, don't know how I managed to go to work every day, etc. From roving pins and needles (peripheral neuropathy), migraines, exhaustion, shingles, brain fog, stomach and intestinal upset . . . the list goes...
  6. LDJofDenver
    Found these numbers on the Celiac Sprue Association site, contacts for a Missouri CSA Chapter, St. Louis area: Hopefully they can give you some guidance. CSA St. Louis Chapter #06 Barb Berger, Chesterfield 314/532-3075 Sharon Biondo, St. Louis 636/225-3947 Our Denver local chapter has a list of doctors that are known to understand, treat,...
  7. LDJofDenver
    Hi again, came across this (YouTube) and thought it would be of some help trying to go gluten free in Japan: That same person has a couple others as well, just search for "gluten-free Japan" in YouTube.
  8. LDJofDenver
    Oh my gosh, I feel for you! Your symptoms sound like mine, even down to the neuropathy. It's a tough decision as to whether or not to go gluten free now, then face a gluten challenge in order to get confirmed testing next year. But if you did it for a month and your whole world changed (for the better), you'd have your answer. There are places where...
  9. LDJofDenver
    All of the above! But one more thing, no one mentioned that there are grocery shopping guides out there to make your life WAY easier at the store: Gluten-Free Grocery Shopping Guides Open Original Shared Link Open Original Shared Link There another out that can also be downloaded to your PDA device, etc., by Clan Thompson. I bought the...
  10. LDJofDenver
    I know what you're saying. But my understanding is that, once you're all healed, the occasional accidental gluten encounter doesn't send you back to square one. However, I'm sure you know that even if you don't have a reaction, damage is still being done to the intestines. My house is not gluten free either, but we employ some safeguards (other than...
  11. LDJofDenver
    Here are a couple of links to gluten free beef jerky products. Just read, because most have several gluten free items, then several that are NOT gluten free. Open Original Shared Link Open Original Shared Link (smoked beef steak, beef pepperoni gluten-free) Open Original Shared Link (their beef stake nuggets are gluten-free, but other items are...
  12. LDJofDenver
    I just want to share a couple resources that really made my life easier. I was diagnosed just last August, so not even a year yet. I know how frustrating it can be, especially at first. It will get easier, and before you know it, you'll be an old hand at it. There are gluten free grocery shopping guides available, that list mainstream products and brands...
  13. LDJofDenver
    THis is a good source of information, it's University of Chicago Celiac Disease Center. Here is a link to the page that discussing recommended testing, it explains which ones and why, and some they don't use any more, etc.: Open Original Shared Link also the Celiac Sprue Association page on diagnostics: Open Original Shared Link Those should help...
  14. LDJofDenver
  15. LDJofDenver
    Here's a link to gluten free living, where it lists a description of maltodextrin: Open Original Shared Link And I've read on this forum that MaltoDextrin used in food in the US is derived from corn (or potato) and must be mentioned on the label if not.
  16. LDJofDenver
    Here's a link to a mainstream grocery shopping guide - they have a couple different ones, this one is Gluten-Casein-Soy Free. Open Original Shared Link I have the gluten-free one, don't know how I ever got along without it. For skin/hair products etc., you might search this forum for the word Neutrogena. I recently saw a posting of a huge list...
  17. LDJofDenver
    My GI doc retested me at 6 months (blood work) and it showed the levels had come down, but still were not normal (they were high). I'm very careful (when in doubt I just don't eat it), but get glutened every once in a while either at a restaurant (where I ordered something "safe") or at someone's house (where they tried their best to prepare something...
  18. LDJofDenver
    Even the Ezekial Bread website does not list that bread as gluten free. See for yourself: Open Original Shared Link Scroll down past the Ezekial bread, and you'll see Food for Life's section: Gluten Free (and that bread is not listed under that heading)
  19. LDJofDenver
    Just wanted to post a link for you for a mainstream grocery shopping guide, this one is Gluten, Casein and Soy Free products: Open Original Shared Link I have one that is just for gluten free products, and it made a huge difference in my shopping life, let me tell you. They're about $25 but worth it. I had no idea so many mainstream products were...
  20. LDJofDenver
    Here's a link with enough info (about complications of untreated celiac disease) to help someone take this seriously - especially numbers 4 and 5. Open Original Shared Link Personally, in addition to digestion and abdominal woes, I had a lot of the neurological problems -- pins and needles (neuropathy), balance, etc. All of which are either completely...
  21. LDJofDenver
    Hello Jason I've heard from many celiacs that they had less trouble eating gluten free in Europe than here in the U.S. Here is a link to an article on celiactravel that talks about visiting Brazil as a celiac. Open Original Shared Link And, I had a darling Aunt that had terrible arthritis all her adult life, yet she was always doing something...
  22. LDJofDenver
    Just wanted to post another gluten free makeup brand: Lancome. Their makeup (Absolu and Renergie) and several lipsticks (Color Design, Le Rouge Absolu, Le Lipstick, Le Crayon Contour) are gluten free. They are very helpful if you email them also. Many of their skin care products are NOT, however, gluten free. I love the Color Design lipsticks...
  23. LDJofDenver
    One thing you can do is genetic testing. I'm always hearing that blood work on children often has a lot of false negatives (and all the while damage is being done). Genetic testing will at least show you if you can completely rule it out (or not). You can do these in-home. Here's a link to celiac.com article "Ten Facts About Celiac Disease Genetic...
  24. LDJofDenver
    I forgot to mention...I have not been gluten free for quite a year yet, and I still have a tough time digesting nuts of any kind. I've kind of backed off on eating them for now, as a result.
  25. LDJofDenver
    You need to keep in mind that healing is a process, and you most likely are not all healed and back to normal in 6 months time (from all I've read, it would be highly unusual if you were). And have you scrutinized everything you ingest or use for hidden glutens - - like vitamins, lipstick, etc.? - - and other places where cross contamination may occur. ...
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