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LDJofDenver

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Everything posted by LDJofDenver

  1. LDJofDenver
    Have you tried cream of buckwheat? I love it. The brand I buy is Pocono Cream of Buckwheat (yellow and blue box). Not at my regular grocery store, but at our "whole foods" store, and at a Natural Grocer. It's really good.
  2. LDJofDenver

    ARCHIVED Saw A Gi This Morning. . .

    LDJofDenver replied to ptkds's topic in Doctors

    Oh please! (throwing up is not a sign!) My poor son was throwing up his entire childhood, and I've spent my adulthood frequently doing the same, especially the older I got. Just blows me away at how little our front line of doctors know about this disease! When is this going to change? My GI doc ordered a CT scan of abdominal and pelvic areas, looking...
  3. LDJofDenver
    I'm kind of like NorthernElf -- I'm careful, but something sneaks in and gets me every couple of months. Usually not at home, as we're pretty on top of things in the homestead (I'm gluten free, my husband is not). Last time was at a friend's house, she was sure she made something "safe" (a crock pot dish with rice, chicken, squash and other vegetables)...
  4. LDJofDenver
    Good Lord, get a new GI doc! You may think she had no reaction to "these things" but many celiacs don't exhibit symptoms, all the while they are experiencing intestinal damage. One thing you can consider is genetic testing. Genetic testing will determine her risk of having celiac disease (and any other family members risk - don't forget, this is a...
  5. LDJofDenver
    I've read on this forum and elsewhere that testing children, on or off gluten, can bring mixed results, false negatives, etc. One thing you can consider is genetic testing. Genetic testing will determine your risk and your children's risk od having celiac disease, and this test is not affected by diet. It will definitively show which club you belong to...
  6. LDJofDenver
    I'm sure mine was there throughout childhood as well . Sounds like we're in the same boat (lots of celiacs in our boat!). My GI doc also had ordered blood work (re-test) at the 6 month mark, and even that wasn't normal yet. And I'm careful (not to say I haven't been occasionally glutened accidentally during that time). My levels had gone down, but still...
  7. LDJofDenver
    Hi all! I'd never heard of this before coming across this discussion on the forum. I did google it and read info about it. Also found an abstract on a controlled study done on it (oil pulling), as it relates to dental health: Effect of oil pulling on Streptococcus mutans count in plaque and saliva using Dentocult SM Strip mutans test: A randomized,...
  8. LDJofDenver
    Here are the ingredients, from the Starbucks website: Nutrition Facts: Ingredients: Calories - 290 Whole Eggs Total Fat - 16g Valencia Orange Pulp Saturated Fat - 2g Almonds Trans Fat - 0g Sugar Sodium ...
  9. LDJofDenver
    Me, too! They are fabulous. Very rich. Nice to pick up for a treat once in a while, I bought one for all the gluten and wheat free people in my life and they all loved it.
  10. LDJofDenver
    Absolutely get a new toaster. And for travel, you can buy these toaster sleeves (TOAST-It Bags) to practice "safe toast" at your relatives' or friend's homes. They're handy for that, but not cheap and only last a few toastings, so not practical for every day use at home -- cheaper to by a new toaster.
  11. LDJofDenver
    I'd also consider a different G.I. doc. And you may not have to go back on gluten for the endoscopic small bowel biopsy. I don't know how old you are, but I was 56 when diagnosed and everything doesn't heal in a couple of months (more like a year, possibly more when diagnosed later in life). My GI doc thought there'd still be plenty of evidence of...
  12. LDJofDenver
    Hopefully they've prescribed something like Prilosec for the GERD. Even if you don't experience the feeling of heartburn, the acid is still making its way into your esophagus (GERD) and you'll want to do something about that. I think about 10% of GERD people end up with Barretts Esophagus, and may be wise to check into taking action to avoid that -- bring...
  13. LDJofDenver
    Hmmm. Who told you the biopsy did not show signs of celiac? Typically, atrophied intestinal villi are an indicator of celiac disease. My GI doc said my small bowel biopsy showed flattened villi which, she said, confirmed the Celiac Disease. Perhaps pick up your pathology report and get a second opinion at another G.I. doc? Yes, sometimes even if you...
  14. LDJofDenver
    Nutritionists can be a bit of a crap shoot. My first one after diagnosis was wonderful, complete with lists and organizations and contacts, local restaurants, key words to look out for ("natural flavorings" "caramel color", etc). Went again about a month ago to a different one and I knew far more about it (celiac disease) than she did. She was totally...
  15. LDJofDenver
    I'm not a breadmaker user so no help on that issue, but I did want to say there are so may gluten free bakeries now days that make very good products. You may want to try a couple in your area. Do you have any whole foods grocery stores, or natural grocers. In CO we've got a couple that make great products: Udi's and Outside the Breadbox bakery. (I...
  16. LDJofDenver
    Maybe not sprayed with wheat starch, but very possibly processed on equipment that also processes wheat products. I've seen this on the label of almonds (and other nuts) at our local "natural" grocers.
  17. LDJofDenver
    People need to understand that this is a medically prescribed diet. Not something we can cast aside every time there's a birthday cake or pizza at the office. While, like the American Diabetic Association Diet (intended for Diabetics), it may be true that anyone (non-celiacs) adhering to this "diet" may experience benefits, the public needs to understand...
  18. LDJofDenver
    I can relate to getting butterflies before something like the endoscopy. I'm not that big a fraidy-cat but, let's face it, the preparation, driving there, changing into their hospital gown, anticipation of the I.V. needle ,etc. -- that all causes a bit of trepidation, even to the not-normally-so-nervous! But, really, it was nothing. And you FEEL nothing...
  19. LDJofDenver
    Well, if THEY say it is not on their Gluten Free list I'd definitely pass it by. Try the Progresso Chicken and Wild Rice, it's good.
  20. LDJofDenver
    I'm not a medical professional either but you usually hear about false negatives, not false positives. However, you DO hear about negative intestinal biopsies - they can be for a variety of reasons, including handling of the specimen, and the location where they actually took the tissue. Perhaps, if the intestinal biopsy comes back negative, go for...
  21. LDJofDenver
  22. LDJofDenver
    Here are a couple of links to sites listing "usual" symptoms: Open Original Shared Link Open Original Shared Link Open Original Shared Link Open Original Shared Link It's too bad we have present a case and prove to our doctor that it would be smart to test us for something, isn't it? I had the same experience, even though my adult son had been diagnosed...
  23. LDJofDenver
    Cool! Good to know. The Lancome makeup line and several of their lipsticks are also Gluten Free. They are also very helpful and will email you a list. Some of their skin care and cleansing items are not gluten-free.
  24. LDJofDenver
    First, on getting tested for celiac disease -- you have to be eating gluten before you do the blood work for this. Your body won't be producing antibodies in the absence of gluten (if you have celiac disease). So you may want to pursue that first, before restricting your diet. A warning about some products that you think are safe (organic corn flakes...
  25. LDJofDenver
    You will find there is more safe food out there than you realize. Many mainstream grocery items are gluten free. There are shopping guides available, too. These are an excellent resource (I don't know what I'd do without it!). I like the Cecilia's Marketplace grocery guide (Open Original Shared Link), but there is also one out by Triumph (Open Original...
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