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SGWhiskers

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by SGWhiskers

  1. SGWhiskers
    If you were tested for celiac when you were avoiding most gluten (like on the lamb and potatoes diet), you would test negative. With that said, even people who test negative for celiac sometimes benifit from the gluten-free diet. A good friend of mine sees a rhumatologist who puts almost all of his autoimmune patients on the gluten-free diet to help ease...
  2. SGWhiskers
    You don't have an obligation to do anything, but if you would like to inform your birth mother, you could have your doctor's office mail test results with information on celiac disease to your birth mother's address with your written permission. I am estranged from my father, and I had a physician's office offer to send the request for medical history to...
  3. SGWhiskers
    I get neuro symptoms and these are the tricks that help me get through the pain. Tylenol PM caplets. They make me sleepy and probably don't help me function, but they help me get sleep and pain control while I heal. They also help with the vertigo I get from gluten. I usually only take 1/day for 48 hours or so. Hydration even though I usually don't...
  4. SGWhiskers
    If you are eating cafeteria food at the university, it could easily be cross contaminated. Lots of people have had problems with dorm food. Your reaction to the cake makes me think it could be possible cross contamination. Are the cake pans new? Did you use the same mixer that has years of flour dust impacted in the motor? Spatulas with gunk in the junction...
  5. SGWhiskers
    When people comment on how often it is diagnosed, I say "doctors have developed better blood tests in the past 10-15 years. It isn't occurring more frequently, just getting better diagnosed and at an earlier stage of the disease." I also address the fad diet concerns by saying, "Since a STRICT gluten free diet has such dramatic results for someone with Celiac...
  6. SGWhiskers
    Tamika, I'm sorry you are feeling so horrible. I understand the feeling of being 30 and thinking you must be dying. I'm glad you've found that making some dietary changes helps. Stick with it. You may also want to ask your doctor about testing you for other autoimmune diseases. If yo have not been to a rhumatologist, make an appointment. Celiac isn't the...
  7. SGWhiskers
    Aside from improved health, what positives came about as a result of going gluten free? I'm in the mood for some happy celiac thoughts. I'll give you 5 of mine. 1) I can make social plans and know I can keep them. No more feeling too exhausted to drag myself out the door. 2) I'm eating less processed foods and switching to chemical free hygine and cleaning...
  8. SGWhiskers
    I'm 21 weeks pregnant and I can't stop eating. I'm not sure what is pregnancy, what is celiac, and what is "eating for two." I've already gained the full 25 lbs including last months gain of 9.5 lbs. I've always been thin. On the gluten-free diet, I gained 20 lbs and then after 15 months started spontaneously dropping back to a nice in between weight...
  9. SGWhiskers
    I know of no reason why pregnancy would affect the results of the blood testing. There would certainly be no reason it would cause a false positive. Regarding cost, the blood testing is going to be the most cost effective means to a diagnosis. If ou can talk her into getting the testing done before the baby is born, there are a few advantages. 1) She has...
  10. SGWhiskers
    I'm not a doctor, but that sounds like a good plan. I think a similar question has been asked in the past, and there does not seem to be a lot of experience or research in this area. Good luck with the new diet and the baby making.
  11. SGWhiskers
    Depending on the severity, dehydration can occur in a few days. If your body likes it, drink Gatoraide or pedialyte or a non-milk based protien drink to keep your hydration and energy levels up. The good news is that I think a lot of the GI folks here found reasonable relief from the worst of their symptoms in the first few weeks of gluten-free as long...
  12. SGWhiskers
    Two extra thoughts: Post your lab results with reference ranges. It is possible that the doctor's office did a screening not a full panel and that is why the results are negative. Not all celiacs/gluten intolerent folks will react worse after reintroducing gluten. My reactions have gotten milder after going gluten free, but they are definately noticable...
  13. SGWhiskers
    I think we all had the nerves while waiting for the test results. Half of me was hoping for a diagnosis because I wanted an answer. The other half wanted donuts. I think when the results came in I was most excited about being validated. I had spent years in doctors offices as a depressed hypochondriac. It was nice to let some of that wash away. In the...
  14. SGWhiskers
    I could have written your post except I let those feelings go on for many more years listening to my family call me a hypochondriac. I especially related to your experience with oversensitivity to sensory information. There were 4 years before my diagnosis when my skin crawled from my husband setting his hand on my arm or giving me a hug or a back rub. It...
  15. SGWhiskers
    As one of the neuro celiacs here, I'll second Skylark's response. I didn't believe how strict I needed to be, but once I got rid of all cross contamination, my neuro symptoms started to improve.
  16. SGWhiskers
    I've take a dish of my own to restaraunts several times. I would rather have the social company than be left out of the fun. I make sure it is a single dish rather than a spread of food. I just pull it out and set it covered on the table after drinks are ordered and before dinner is ordered. When the server comes to me, I say I have severe food allergies...
  17. SGWhiskers
    A friend of mine just figured out her son is celiac too. She's tried a couple of bakery and store bought breads only to make paperweights out of them. Her son is 4 and probably wants something like wonderbread. She is also gluten free and probably wouldn't mind a few other recipies to try. (I've got nothing to offer because my other allergies make bread next...
  18. SGWhiskers
    To cut down on the shopping out of town stress, you could order some items ahead of time to be shipped to the hotel or relative's house. You could also ship some items direct from your pantry. This website looks pretty expensive, but it could take some of the stress off your husband if he has to rely on other family members to cook for your son Open Original...
  19. SGWhiskers
    Thank you Raven. You always have such good information.
  20. SGWhiskers
  21. SGWhiskers
    Heartburn is one of the symptoms of reflux. Reflux can exist without heartburn though. As the stomach contents flow back into the esophageus, the esophageus can have damage at the cellular level. PPI's have been found to be the most effective means of controlling reflux. Now with that said, there are lots of ways to manage reflux without medications and their...
  22. SGWhiskers
    It is not uncommon for a person with celiac to have some positives and some negatives. That is part of the reason for running so many different tests in the panel. If you are positive on one, you have celiac. It looks like you get to join the club and get rid of the IBS symptoms. Congrats. Good for your doc for at least getting you tested. At least he admits...
  23. SGWhiskers
    Celiac antibodies absolutely can damage the brain and cause neurologic symptoms. Google gluten ataxia. Many of us here have neurologic symptoms. A positive result is a positive result. Biopsies can miss the damage, or damage can be mild. Strict compliance with a gluten free diet can halt the progression of neuro symptoms. Some symptoms will likely improve...
  24. SGWhiskers
    I was thinking I had heard about those products, but I couldn't remember. What other crafty/building stuff should I avoid? Other adhesives? And there is left over grout caked on my bathtub trim tiles where my head rests. I doubt I'll ever get to enjoy a bath after baby is born, but is all grout a problem?
  25. SGWhiskers
    As an adult, I would say I had the same GI changes as your son, however, it took me much longer than a few days to see those changes.
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