sbj
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Latest Celiac Disease News & Research:
Everything posted by sbj
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ARCHIVED Gross Question..sort Of
sbj replied to givenupgluten's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Don't floaters mean you have a lot of fat in your stool? And one reason you might have a lot of fat is because you are not absorbing it properly (celiac). If you have celiac but are gluten free and still experiencing floaters, it might be because your diet is too high in fat. Even when you are absorbing fat properly if you eat too much you're gonna end... -
ARCHIVED Wheat, Barly, Rye; Why Didn't Our Ancestors Notice It?
sbj replied to dogle's topic in Coping with Celiac Disease
Why didn't our ancestors notice it? They did! "As far back as the second century, a Greek physician named Aretaeus of Cappadocia wrote detailed descriptions of celiac disease symptoms in children and adults, including diarrhea with fatty stools, gassiness, wasting, weakness, and pallor. Aretaeus called his patients by the Greek word koiliakos, which... -
ARCHIVED Is It Celiac Or Maybe Candida---or Both?
sbj replied to nikki55's topic in Food Intolerance & Leaky Gut
This may sound flip but I don't mean it that way. Why don't you go to your doctor and ask for a celiac blood panel? That would be a good starting place! -
ARCHIVED Does The Spouse Really Understand
sbj replied to Mally-bug's topic in Parents, Friends and Loved Ones of Celiacs
When you are first diagnosed celiac you should undergo a complete blood count, check all your vitamin and mineral levels, you should get a bone density test, and you should discuss with your doctor any symptoms you have that might be associated with some of the auto-immune disorders that celiac sufferers also tend to get. The bone density test, in particular... -
ARCHIVED Had The Biopsy
sbj replied to angelschick's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Depends, I suppose. For me, my gastro thought everything looked fine. He took only a single biopsy. Pathology came back a week later with results and my gastro was surprised that they had seen indicators of celiac sprue. I then took the blood test for confirmation, and later had genetic test for further confirmation. While I hope you get some answers... -
Yes, I would change your eating plan quite a bit. You should be eating three square meals a day - at about the same time each day - and you should finish up with a snack in the early evening. (I found that while losing weight I was actually eating MORE for breakfast than I had before.) You need to get your calories from the proper balance of carbs, protein...
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ARCHIVED National Post - Discovery Offers Hope For Celiac Sufferers
sbj replied to leadmeastray88's topic in Related Issues & Disorders
This article is poorly written. I found something much more clear: Open Original Shared Link Another nutraceutical being developed in Alberta may offer a treatment of sorts for a disease that -
ARCHIVED Help! Test Results...
sbj replied to beansmom's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I certainly hope you find some relief. Perhaps a second opinion on the blood test results? The mouth sores could definitely be related to celiac, but there are other possibilities you may want to investigate. HFMD (coxsackie virus), pemphigus, herpes virus, Crohn's disease, A reaction to medication, and other food allergies. -
ARCHIVED Help! Test Results...
sbj replied to beansmom's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
There's no need to be scared of an endoscopy! -
ARCHIVED Medication Costs Article - Amazing! Go To Costco!
sbj replied to leadmeastray88's topic in Gluten-Free Foods, Products, Shopping & Medications
Costco also has great prices on vitamins. I want to point out that the cost of name brand prescription drugs is not controlled by the cost of the ingredients themselves; the cost is controlled by the manufacturer's need to recoup their research and development expenses while showing a profit (which they owe to their shareholders). If the pharma companies... -
ARCHIVED Anyone Turn Down A Biopsy For Their Child?
sbj replied to EmmyLouWho?'s topic in Parents, Friends and Loved Ones of Celiacs
Hi Tall for a girl! You are, of course, correct. I hope you don't find yourself getting discouraged by those who distrust the medical community. I believe that doctors honestly have our best interests at heart, that most take their hippocratic oath seriously, that they have done far more good than harm, that they have saved countless lives and alleviated... -
ARCHIVED Angry Sister-in-law
sbj replied to elspeth's topic in Parents, Friends and Loved Ones of Celiacs
Thanks for the Tom Sawyer suggestion. I may try it after I exhaust the flours I already have. I'm really trying to find a gluten-free flour that is less gritty and reasonably priced. Preferrably something that doesn't require xanthan gum but I guess that's a pipe dream. I've received suggestions for various mixes that include xanthan and so far it seems... -
ARCHIVED Anyone Turn Down A Biopsy For Their Child?
sbj replied to EmmyLouWho?'s topic in Parents, Friends and Loved Ones of Celiacs
Per the following article, I believe that a transglutaminase antibody level over 30 U/mL means there is a 100% chance your daughter has celiac disease and no biopsy is necessary for diagnosis. The results you post appear to indicate a level of 58 U/mL. However, I really would have the Down Syndrome specialist confer with your Ped GI. There is a chance... -
ARCHIVED Angry Sister-in-law
sbj replied to elspeth's topic in Parents, Friends and Loved Ones of Celiacs
Thanks! Next time I'm at Sprouts I'll try to find soy flour at a reasonable price. I used 2 total cups flour mix so the rice flour was less than 3/4 cup but I could still taste the grittiness. You don't think a cookie recipe would work without any rice flour? I had some packaged cookies from Sun Flour Baking Company (Lemon Shortbread) that were really good... -
ARCHIVED Angry Sister-in-law
sbj replied to elspeth's topic in Parents, Friends and Loved Ones of Celiacs
I hope everything works out okay with your sister in law. Sounds like an 'emotional' issue to me ... wish I could offer some constructive advice. Instead, I thought I'd ping you about baking. I made some cookies last nite - real good - but I am finding that the gluten-free flours can be a bit sandy/grainy/gritty. I am wondering if I am simply not using the... -
ARCHIVED Need Info Fast Befor I Make A Big Mistake
sbj replied to bknutson's topic in Gluten-Free Foods, Products, Shopping & Medications
Even if this did work it doesn't have anything to do with celiac disease. This treatment supposedly eliminates allergies. Celiac disease is not an allergy. -
ARCHIVED Anyone Turn Down A Biopsy For Their Child?
sbj replied to EmmyLouWho?'s topic in Parents, Friends and Loved Ones of Celiacs
Wow! You have seriously misread my post and my intent. I did not ridicule you - I disagreed with your actions (and anyone else who choses to ignore a doctor's reasonable suggestion). As far as tone let me say this: I have personal experience with a family member who apparently ignored a doctor's advice. It cost him his life. I make no apology for expressing... -
ARCHIVED Angry Sister-in-law
sbj replied to elspeth's topic in Parents, Friends and Loved Ones of Celiacs
"Can't we all just get along?" Moderation in all things is great advice. I'd like family members to be more sensitive and I don't feel that those who suffer with special conditions should get angered when the world doesn't stop just for them. No one should have to listen to a discussion of bowel movements during a meal - that is simply common courtesy... -
ARCHIVED Anyone Turn Down A Biopsy For Their Child?
sbj replied to EmmyLouWho?'s topic in Parents, Friends and Loved Ones of Celiacs
It's up to the individual, for sure. Best of luck to all who ignore their doctor and instead trust their own instincts. I urge people to listen to their doctors. It is NOT common sense to avoid testing that a medical professional recommends because your own layman's common sense or a community forum tells you different. When it comes to your health you can... -
ARCHIVED Bad Mood Swings
sbj replied to Wall3424's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Please don't be offended by my well-meaning response. Mood swings and unexplained irritability are hallmark symptoms of bipolar disorder. I have some experience with this and the way you are describing this really does sound like bipolar disorder - although I am not trying to diagnose you. Do yourself a favor and read up a bit on it to see if anything... -
ARCHIVED Cleaning Of Intestine
sbj replied to MBOLARSEN's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I had my colonoscopy and endoscopy done on same day - I think most people do the same. So I 'cleaned' out my intestine for the two days previous. My biopsy results were positive even after the 'cleansing' so this is not an issue in any way. You can't 'clean' away damage to the mucosal layer of your duodenum. If we could I suppose we wouldn't need this diet... -
God grant me the serenity to accept the things I cannot change; courage to change the things I can; and wisdom to know the difference.
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ARCHIVED About "natural Flavors"
sbj replied to mr. moore's topic in Gluten-Free Foods, Products, Shopping & Medications
Pei Wei Asian Diner has a gluten-free menu and they do not add MSG. -
ARCHIVED Gluten Exposure From Other People In Your Life.....
sbj replied to Ellenor Whitty's topic in Coping with Celiac Disease
Nominated for Post of the Year (comedy) -
And if you don't feel like spending money on books just try your library! I found a ton of books at my main branch and even at the smaller local branches. I found the dietician to be quite helpful but I would speak to him/her BEFORE your appointment to make sure they are prepared. I found mine to be helpful but there is no way that I would have spent...