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sbj

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Everything posted by sbj

  1. sbj
    Hi Cake is a lie: One thing I would recommend that I don't think anyone would disagree with is to read up on celiac disease, gluten intolerance, and wheat allergies. A well-respected book is Celiac Disease: A Hidden Epidemic by Peter Green , M.D. I didn't buy the book - I checked it out for free at the library. Please make a visit to the library a top...
  2. sbj
    I'm thinking that the doctors want to do all of those tests because they want to give you an accurate diagnosis? Symptoms like diarrhea, bloating, gas, weight loss, nausea, and so on can be caused by all sorts of things other than gluten intolerance. A doctor wants to be as sure as possible that you have celiac disease before s/he tells you that you can't...
  3. sbj
    Weight gain is common in patients who are compliant with the gluten-free diet -see this article: Open Original Shared Link A recent study from Northern Ireland (1) followed the weights of 188 patients on strict gluten-free diets for two years. Eighty-one percent of those patients experienced weight gain, 4% of patients maintained weight, and 15% lost...
  4. sbj
    I've had the same issues. It feels odd to have to get all wordy with people and explain it. It also feels strange to say 'disease.' Eyes tend to grow large and people take a step backwards! But I am sooo tired of responses like, "Oh - so you're allergic to wheat." Lately I am leaning towards: "I have an autoimmune disorder called celiac sprue. If I...
  5. sbj
    Glad to hear you are going ahead with the colonoscopy. I think it will help bring you peace of mind. I hope everything comes out swell and you get some answers. Please write again to tell us how things go. BTW: If you have any questions about colonoscopies just ask away. I get one every year. They're not fun but they could save your life. They found some...
  6. sbj
    You are not crazy and you are not mental! If you had positive bloodwork and positive biopsy nine months ago, and now they are normal, then these problems are not due to celiac. If you did not have positive bloodwork or biopsy nine months ago then it is possible that you never had celiac to begin with. (That's why it's a good idea to get a biopsy before going...
  7. sbj
    Hi Rachel: No, it is not normal to still feel bad so long after your endoscopy. I think you should call your doctor right away and describe your symptoms. I was never even unconscious during my endoscopy or colonoscopy, I was eating 1 hour later, and was exercising later that day in the early evening. I was back at work less than 24 hours later. You should...
  8. sbj
    Is the aspirin gluten-free? "Sometimes drugs or other intakes may be contaminated with gluten that may continue sensitization." Not sure but I believe there are some who always register positive via blood tests even when eliminating gluten entirely. Did your daughter have an endoscopy for diagnosis? If so, she could have another one now for comparison...
  9. sbj

    ARCHIVED Doctor's Just Don't Understand

    sbj replied to Green Eyes's topic in Doctors

    Jennifer - that's great! Congratulations. No medical professional should ever discount your pain as being in your head! Does this mean that celiac caused a misaligned spine? or does it mean that the sciatica was not related to celiac?
  10. sbj
    There are plenty of good reasons to have an endoscopy. Here's a link to an article that provides some reasons (https://www.celiac.com/articles/978/1/So-Why-Do-Celiacs-Still-Need-Biopsy-By-William-Dickey-PhD-MD-FACG/Page1.html). Biopsies are necessary when blood tests are negative. Biopsies are necessary where false positive blood tests may occur. Biopsies...
  11. sbj
    Count me as another silent celiac who was diagnosed while looking for something else entirely. I never had any symptoms and after going gluten-free I don't notice any differences. I haven't cheated yet - I am tempted - but I won't. Even a tiny bit of gluten can trigger an auto-immune response, and that can lead to damage in any number of places. If your auto...
  12. sbj

    ARCHIVED Me Too!

    sbj replied to mmmSmores's topic in Coping with Celiac Disease

    Hi Smores: You sound a bit like me - not sure because you don't give much detail. Perhaps you could flesh the first post out with some more info about any symptoms you have? At any rate, I was also diagnosed after getting an endoscopy for something completely different. I had no outward symptoms whatsoever but my biopsy showed damage and the bloodwork...
  13. sbj
    BTW, Jason. IMO, the tube down the throat is no big deal at all. They don't just look for celiac diease signs, either: "The endoscopy not only allows examination and biopsy of the duodenum but also a look at the esophagus and stomach. Sad fact of the ageing process is that you start to collect diseases like trading cards, and just because you're celiac...
  14. sbj
    Hey Jason: It sounds as if you are getting yourself all worked up over what might happen. And you are imagining only the worst - "I might get some other auto-immune disorder. I might die young. I might [insert bad thing here]." I think this is called negative self-talk and it does you no good whatsoever. Why not imagine some other things that might...
  15. sbj
    It is a bit scary, isn't it Justin? I had similar questions and the answers, unfortunately, aren't cut and dried. In my case I am what is called a silent celiac. I don't get outwardly 'sick' in any respect (no diarrhea, cramping, vomiting, etc.) but I do test positive via bloodwork, had a positive biopsy via endoscopy, and have the genetic capability. I also...
  16. sbj

    ARCHIVED More About Dr. Kenneth Fine

    sbj replied to Gentleheart's topic in Doctors

    For Patti and jestgar: "Who cares? We still all have to eat the same thing." This strikes me as shortsighted, simple-minded, flip, and potentially dangerous as advice. Must I remind that the actions one takes when diagnosed with celiac are NOT the same as the actions one might take when self-diagnosing (or 'diagnosing' via Enterolab) as gluten intolerant...
  17. sbj

    ARCHIVED More About Dr. Kenneth Fine

    sbj replied to Gentleheart's topic in Doctors

    You have to wonder why no Dr. Fine defenders have responded to Momma Goose's post that links to an article that shows the stool test does not work. You have to wonder how many posts on this forum are by Dr. Fine himself or one of his two cohorts. You have to wonder how someone could possibly claim that those who critique Enterolab aren't routinely villified...
  18. sbj
    I advise you to not mess around with your health. If you are/were having symptoms then you really owe it to yourself to see a medical professional. A single doctor's visit is going to cost you less than these other tests you are thinking about. I think you are jumping the gun, trying to confirm your own diagnosis. (In other words, you have already diagnosed...
  19. sbj
    Somwe off the top of my head ideas: How about a gluten-free boyfriend? Betcha that would do the trick! Picture of a diseased/damaged small intestine on the fridge? Some box lunches to bring with her that are actually better than the school food? She's picky but you never know - how about one of those fancy Japanese boxes to go? Or something trendy...
  20. sbj
    When you asked whether you should be concerned about physical damage to intestine it sounded as if your doctors hadn't already checked for that. By scoping you from both ends they were looking for physical damage so you might be okay. Also, the celiac blood panel usually correlates to villi damage as well. So it sounds to me as if your docs have already looked...
  21. sbj
    Hasn't your gastro already checked you out for intestinal damage? Haven't you had an endoscopy or colonoscopy yet? If you have been complaining for three years and have had every test under the sun but your gastro never checked with celiac blood panel or endoscopy/colonoscopy I would get a new intern and gastro - quick! Your docs haven't been doing their...
  22. sbj

    ARCHIVED Doctor's Just Don't Understand

    sbj replied to Green Eyes's topic in Doctors

    I went to see a neurologist yesterday because of pain in my left leg. He has determined it is probably my sciatic nerve. When I asked if it was related to my celiac he said "no." Hey Green eyes - I can sympathize with doctors not always being correct. In their defense they are probably just going with the usual causes. Your doctor might be right. In...
  23. sbj
    Have you considered some likely causes other than glutening? Viruses? ... Viral diarrhea spreads easily. Bacteria and parasites? ... Diarrhea caused by bacteria and parasites can be common when traveling Medications? Many medications can cause diarrhea. The most common are antibiotics. Lactose, fructose, or artificial sweeteners? Hope you...
  24. sbj
    Hi Li'l Voice: Perhaps you could write a bit more about your story so that the smart ones here can provide a bit more help. Your post confused me a little bit - probably because you had to leave out some detail. Please come back and provide the detail - we're interested! Why are you seeing a gastroenterologist right now (at 22 months)? It sounds like...
  25. sbj
    Hey Fiddle: I'm confused about the direction this discussion has taken. Are you suggesting that people never get tested for anything via blood because it carries risk? Are you suggesting that if your doctor fears colon cancer that you not get a colonoscopy because of the risk? Do your cautions apply ONLY to testing for celiac? It sure seems as if digestion...
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