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sbj

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Everything posted by sbj

  1. sbj
    I thought it was a pretty good article fighting for our side. I rather thought the whole purpose of it was to point out that these are real conditions that are not taken seriously. "the most besmirched conditions patients wish would be taken more seriously." I think perhaps they use 'yuppy' here to describe the sort of person who actually gets diagnosed...
  2. sbj
    I apologize, farmer, for sidetracking your topic. I'll not do it again.
  3. sbj
    As Homer Simpson once said, "That's crazy talk." I'll not reply to you directly anymore other than to rebut the dangerous advice that cancer screening should be avoided unless one doesn't 'feel normal.' Have you ever met a breast cancer survivor? Did they suggest that they were happy they avoided doctors who 'coerced' them into recommended cancer screening...
  4. sbj
    Well there you go lizard00! My brother at age 46 had no 'pre-exisiting' conditions. He suffered from diarrhea and was losing weight. Cancer was not considered a risk factor. My brother died at age 48 from colorectal cancer - quite possibly because he did not trust the medical community to diagnose his condition (after all - he was only suffering from...
  5. sbj
    Hi TFG: I am a silent celiac - no symptoms other than osteopenia. Regarding production lines that also process wheat-containing foods: I might eat some chips or whatnot on rare occasions from such lines as a treat. I think what is important is to not eat this sort of stuff regularly, as in daily or several times a week. When I eat out, I gotta...
  6. sbj
    applesauce, low fat fruit yogurt, dates, prunes, raisins, navy beans, cream of rice, black-eyed peas, pudding, popcorn, tortillas, garbanzo beans, pinto beans, peas, lentils, root vegetables, cheesey poofs, trail mix, reese's cups, potato chips, rice crackers.
  7. sbj
    I just wanted to be sure I hadn't missed some report that said you had to eat 'massive' quantities. As you know, no one 'knows' how much gluten is required for a positive biopsy (some folks never test positive via biopsy anyways!) and we constantly have folks asking how much is required during challenge. The tone of responses had led me to believe that someone...
  8. sbj
    Don't quote me, but I believe high IgG antibodies means your body is fighting a bacterial or viral infection. Since bronchitis is usally caused by a virus, it means that your body is responding appropriately to bronchitis.
  9. sbj
    You should also ask that the tissue sample be looked at by a different pathologist. And I would file a report with your insurer about the GI. If you specifically requested multiple samples and he told you he would take multiple samples, then you have a legitimate grievance. Also, if you are still undertaking the challenge you might be able to get another...
  10. sbj
    I am so sorry that things did not go as planned. I know you had high hopes for a definitive diagnosis and that you also really liked this new GI. I wonder why things went so wrong? I wanted to point out one thing regarding 'looking fior celiac cells' versus villous blunting: they really look for both things. That is, they don't only look for blunting...
  11. sbj
    Why do many people keep writing that you have to eat A LOT of gluten before the biopsy? I have read that anywhere from 2 to 4 slices of bread per day was enough. In fact, prior to my own endoscopy, I was simply eating my standard diet, gluten with some meals, no gluten with others. I was only eating one small roll per day. Just wondering if eating a whole...
  12. sbj
  13. sbj
    This really gets my goat! I have Lynch syndrome and the average age that this strikes someone with cancer is 45 years old. 'Common sense' tells me to listen to my doctor and get an annual colonoscopy. "[After gluten-free diet,] a year later, same patient develops new symptoms of diarrhea, weight loss, whatever. We'll get a duodenal biopsy as part...
  14. sbj

    ARCHIVED More About Dr. Kenneth Fine

    sbj replied to Gentleheart's topic in Doctors

    Two points: I believe I can respond to any post that I'd like to whenever I want to. I am sorry if this seemingly upsets you - that is not my intent. I don't believe my posts here are rude in the least. I've already communicated with Gentleheart who, as her name implies, was very gracious indeed! We had a polite back and forth free of any admonitions...
  15. sbj

    ARCHIVED More About Dr. Kenneth Fine

    sbj replied to Gentleheart's topic in Doctors

    Indeed. As a scientist, Laurie, you are no doubt familiar with the scientific method. "a method of inquiry must be based on gathering observable, empirical and measurable evidence subject to specific principles of reasoning. A scientific method consists of the collection of data through observation and experimentation, and the formulation and testing...
  16. sbj

    ARCHIVED More About Dr. Kenneth Fine

    sbj replied to Gentleheart's topic in Doctors

    Actually, isn't this thread already about the reasons we don't trust DOCTOR Fine? (Or do you trust Dr. Fine only but not any other doctors?) Incidentally, does anyone else hear The Three Stooges routine - "calling Doctor Howard, Doctor Fine, Doctor Howard" - running through their head everytime they read a thread about Dr. Fine? I wouldn't personally...
  17. sbj
    There are indeed some other conditions that could be causing some of these symptoms. (OTOH, many feel that celiac disease can cause all of this and more.) You might want to inquire/read about allergic reactions, migraines, anemia, depression, kidney disorders, lack of exercise, or stress reaction.
  18. sbj
    I think there are two considerations here. First: you don't need a biopsy to diagnose celiac disease: "Biopsy Not Always Necessary for Celiac Disease Diagnosis Research in the most recent issue of Alimentary Pharmacology & Therapeutics shows that a transglutaminase antibody level can be defined which gives a positive predictive value of 100...
  19. sbj
    I was diagnosed through my doctor via blood test and biopsy. I have great faith in my diagnosis because it is backed up with physical proof. There are different ways to 'diagnose' celiac disease. For some doctors the blood work alone is enough. Others like to have the biopsy. Both are useful for future baseline analyses. Keep in mind that a positive response...
  20. sbj
    Hi Mark: You sound smart so why are you acting dumb? That's not meant to be rude but seriously - you know you have celiac disease and yet you cheat because you're asymptomatic? C'mon now - we don't need that sort of talk around here. Do you think you're supposed to be able to 'feel' small intestine damage or the early stages of intestinal lymphoma? Do...
  21. sbj
    This recent article at Newsweek should spark some lively discussion. My apologies if this has already been discussed. Open Original Shared Link A New Diet Villain Americans are spending about $2 billion a year on gluten-free products, which advocates claim can help with everything from autism to ADHD, but is the trend more about hype than health? ...
  22. sbj
    Hi Jen: Let me also thank your husband (and you by extension) for his service to our country. I appreciate it - and I support the cause. Insurance can be a problem but I hope that your doctor/insurer is at least willing to give you the bone density scan. I only found out I had osteopenia by this easy test and now I take both calcium and vitamin D daily...
  23. sbj
    Hi Roda: I just wanted to urge you to be very cautious on Wednesday. I have a coworker who came in to work after his colonoscopy with stitches on his forehead! Turned out he had fainted from lack of food. When I read that you will be up all nite prior, and then won't be eating, I got a bit concerned. So please watch yourself when standing up and be sure...
  24. sbj
    There definitely is conflicting information on here and out there and everywhere so be very careful. I did not look at your post as being offensive - why do you say that? Again, they don't contain hydrolyzed wheat -- the oil they are fried in contains a small amount of natutral beef flavoring which in turn used a bit of hydrolyzed wheat as a 'starting' ingredient...
  25. sbj
    Hey GlutenGuy - you really should do some of the research that was politely suggested. This was just friendly advice because you need to first understand what is meant by 'starting ingredient'. The fries and hash browns contain no measurable gluten. "McDonald
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