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sbj

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Everything posted by sbj

  1. sbj
    This is an interesting point and one with which I agree. In my own case, my Gastro ordered the genetic test only after a positive biopsy (via endoscopy) and positive celiac blood panel. He did this to help confirm his diagnosis. However, after the positive genetic test he did not request a referral to a genetics counselor. However, in a previous circumstance...
  2. sbj
    He did fake the data: "Confidential medical documents and interviews with witnesses have established that Andrew Wakefield manipulated patients
  3. sbj
    Wakefield faked the data! "For more than ten years, debate has raged over a possible link between the MMR vaccine shot and autism in children. The routine injection creates immunities for children against mumps, measles, and rubella or German measles, but some parents have refused to give their children the vaccine after a British study strongly suggested...
  4. sbj
    I know that Gemini is correct. Think about it. If we could all get glutened just by smelling certain cooking odors then we would all have to live in bubbles! If topical gluten bothers you then please avoid it, but you have to ingest gluten to prompt the celiac autoimmune reaction (that includes the DH skin response). The gluten 'molecule' is simply too large...
  5. sbj
    Maybe you don't have celiac disease? Perhaps you are gluten intolerant and that's what is causing your symptoms. If that is the case (you are gluten intolerant but do not have celiac disease) then you will never be able to get a diagnosis - it can't be diagnosed (yet). For validation ... you have all you need! You've responded marvelously to the diet...
  6. sbj
    Your doctor certainly is terrible! I hope your next one is better. I think I must be the only poster here who has had a good experience with his doctor! My story is almost exactly the opposite. In fact, if not for my doctor I would never have known that I have celiac disease and I would be harming myself right now without even knowing it. I am forever...
  7. sbj
    I've never heard of this type of reaction before! I have heard of folks reacting to airborne flour, or reacting to crumbs in the kitchen, etc. but never to cooking odors. That must really be tough on you because it means you can never eat out - anywhere! Or get near BBQs, probably can't even go to amusement parks or baseball games. Basically this means...
  8. sbj
    There's no 'real' test for gluten intolerance although plenty of folks will be willing to take your money! An allergist can help with testing for an allergic reaction to wheat (or barley, etc.). Maybe your DH should simply try a gluten-free diet to see if there is a positive response?
  9. sbj
    Thanks, Debbie, for sharing this important message. Celiac is not always the answer.
  10. sbj
    Hi Twisha: There's darkness at the end of the tunnel so don't despair. Anyone can overcome a weight problem but it will take had work and a lifestyle change - so be prepared. My first suggestion is to work on yourself. If you won't change then how can you expect your husband or children to change? If they see changes in you then they will be more...
  11. sbj

    ARCHIVED Gut Gurggling

    sbj replied to Discovery's topic in Coping with Celiac Disease

    I have always had a loud stomach. I have been gluten free for over four months now and my tummy noises are not any different than what they used to be, so - at least in my case - the stomch/digestive noises don't appear to be related to my autoimmune reaction to gluten. I'd suggest maybe more meals each day - perhaps smaller than usual - to keep your digestive...
  12. sbj
    Sounds like cramping due to dehydration or lack of potassium - drink plenty of water and eat bananas!
  13. sbj
    Yes, those with osteoporosis are more prone to bone fractures. I am only 45 and I have osteopenia. There are some who feel that osteopenia is a sort of made-up problem (as opposed to osteoporosis). To be safe make sure you are getting enough vitamin D and calcium and try weight bearing exercise. If you are already doing all of this then you might be able...
  14. sbj
    I highly recommend The Anxiety and Phobia Workbook. Your anxiety has now led to phobic behavior - that's where you avoid something because you are so anxious. This is a self-help book that contains exercises and worksheets to help you. It really works and you may be able to change your behaviors without any medications whatsoever. Give it a try, it's a wonderful...
  15. sbj
    That beer sounds great! I'll keep an eye out in some of our 'boutique' type liquor stores - no Wegman's here in Long Beach, CA. I've enjoyed your posts, Raven, and your responses to mine ... I may not be around much longer so just wanted to say thanks. (Or should I say cheers?)
  16. sbj
    Remember what you said about making assumptions? To the matter, I think the authors point out that no conclusions can be made - they are just throwing theories around. But it does seem to me that it can be hard for kiddies in some instances, and I can understand that the teen years might be particularly difficult. I think this is best looked at...
  17. sbj
    It's annoying to me that we are trained our whole life to look up to doctors - we treat them like all-knowing people. But they really aren't, sometimes with tragic results. I'm often on this forum defending traditional western medicine, but I do acknowledge that it is far from perfect. I've often had to train my doctors. That's one reason forums like this...
  18. sbj
    You do realize that I hate you right now, don't you? Just joking but man that sounded good. Try switching to a non-gluten beer (Red Bridge in USA made from sorghum). Doesn't have the wonderful aftertaste and can't hold a candle to a Belgian ale but it might tell you something. Hope you get some closure here - it's possible that you are 'allergic' to...
  19. sbj
    I totally agree with you.
  20. sbj
    Not sure if this would help anyone but I ask my pharmacist to insure that my medications are gluten free when I pick them up. I wait while he looks each one up in some sort of big book and then he also gets on the phone. I've also completed an 'allergies' form at the pharmacy so that whenever they bring my customer ID up on their systems a note tells them...
  21. sbj
    This is really interesting. This bit jumped out at me: Just as poor adherence is linked with psychiatric pathology, so too is good adherence
  22. sbj
    So can gluten-free or very low gluten products be made on lines that also process wheat, or be made on machinery that also processes wheat? Would very low gluten products be suitable for someone with celiac disease (or who is the target, I wonder?) The FDA article I linked to mentioned that 20 ppm for 'naturally' gluten free products and 100 pmm for other...
  23. sbj
    It is interesting to me that Europe uses a standard of 200 ppm. I often read on this forum about how Europe is so far advanced compared to the US when it comes to gluten free testing, products, labeling, medical profession, and so on. We are so backward in the USA, they are so much better, blah blah. So it strikes me as strange that Europe seem to be getting...
  24. sbj
    I'm actually quite eager myself to make it to 6 months so that I can be re-tested. I want to see if I have made any progress. While I have been very strict in my diet I have eaten products that are made on wheat lines and wheat equipment and such. I've also eaten out and I haven't paid too much attention to cross contamination. I mean, I've been diligent...
  25. sbj
    The test does not exist that can show something contains no gluten. No test is that sensitive - it's not possible. Gluten is virtually unavoidable in microscopic amounts - it's everywhere, even in 'gluten-free' flours.
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