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Mother of Jibril

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Latest Celiac Disease News & Research:

Everything posted by Mother of Jibril

  1. Mother of Jibril
    Being on a gluten-free diet for a day is not enough to cause a false negative That being said... false negatives are pretty common in young children. For that reason, some doctors will do an endoscopy even if the blood test is negative. If you want to pursue that, keep giving your son gluten! I know it will be hard Hopefully you can get an appointment...
  2. Mother of Jibril
  3. Mother of Jibril
    Hi Renee, Have you ever had a celiac panel (blood test)? Celiac disease is an autoimmune disorder... not an allergy... so you need to make sure you're getting the right kind of tests. Also, have you tried the gluten-free diet yet? If not, keep eating gluten until the testing is complete!! Otherwise, you could easily get a false negative. Some people...
  4. Mother of Jibril
    T4 is the "storage" form of thyroid hormones and T3 is the "active" form (what your body actually uses). Apparently... and I say apparently because a lot of doctors won't test T3... most people taking T4 drugs (Synthroid, Unithroid, Levoxyl, etc...) are able to convert to T3 on their own. If you're not, the quick solution is to take a drug that already...
  5. Mother of Jibril
    This morning I found out that my son is officially allergic to peanuts I just wanted to share an idea I got from "The Complete Peanut Allergy Handbook"... "If someone ever makes a mistake and, for example, a salad comes out with nuts [croutons!] on top, you may well not feel comfortable eating anything in that restaurant. But if you decide that you...
  6. Mother of Jibril
    Welcome to the group! I think it's a great idea to see a rheumatologist. A lot of autoimmune disorders involve rashes, fatigue, and digestive symptoms. Could you describe the rash on your chest and arms a little more? It is flat or raised, red, itchy, etc... what made you think scabies? Did you see a dermatologist about it? There is a rash associated...
  7. Mother of Jibril
    I wish I had known about my thyroid disorder and problems with gluten before I got pregnant (since they increase your risk of complications and loss), but I never had cravings for gluten foods. The first time I was hungry for raw tomatoes (I ate them like apples) and beef. The second time I wanted french fries with TONS of ketchup The third time all...
  8. Mother of Jibril
    Ah... the only reason your test is "inconclusive" is because it's incomplete. Here's what a full panel should include: Anti-gliaden IgA Anti-gliaden IgG Tissue transglutaminase IgA Tissue transglutaminase IgG Endomysial antibodies Total IgA The two tests you had were Ttg IgA and total IgA. Your number for IgA (510) just means you...
  9. Mother of Jibril
    I know that feeling... it's why people ask me, "What CAN you eat?" A few months from now you'll have a bunch of new favorites There's still plenty to eat... it just takes time to figure it out! You came to the right place for suggestions.
  10. Mother of Jibril
    Personally, I love "Mary's Gone Crackers" (especially the black pepper flavor) with hummus as a dip. Yum I think I'll go have some right now...
  11. Mother of Jibril
    What about cereal? My son (who's off gluten, dairy, and corn) can only eat Perky O's and puffed rice, but you should have a lot more options Applesauce is a nice alternative to yogurt. Simply fruit (freeze dried) melts in your mouth and doesn't need to be refrigerated. I think Gerber even makes some packages of freeze-dried fruit (althought I've never...
  12. Mother of Jibril
    The two genes that are most associated with celiac disease are DQ2.5 and DQ8. BUT... it's important to know that there are diagnosed celiacs with other genes (most notably DQ7.5, DQ2.2, and DQ9). I've read that anywhere from 90% to 98% percent of diagnosed celiacs have the "celiac genes." It's also important to know that there's a lot of research going...
  13. Mother of Jibril
    What about vegetables? Strips of red pepper, carrots (both are delicious with hummus as a dip), slices of cucumber, pea pods, celery... In my experience, small servings of foods that have a lot of protein and/or healthy fat (nuts, seeds, coconut, avocado, hard boiled eggs) really satisfy your hunger without the empty calories of the gluten-free "goodies...
  14. Mother of Jibril
    Welcome to the group! Is tissue transglutaminase the only thing you had tested (by blood)? A full celiac panel should also include antigliaden (both IgA and IgG) and endomysial antibodies (EMA). EMA is the most specific for celiac disease, but it's also the most subjective... it's just positive/negative and it's interpreted by a person (who may or may...
  15. Mother of Jibril
    Yeah... the lump in the throat That really used to bug me when I was reading bedtime stories to my kids. It's a lot better now that I've been on thyroid hormones for ten months. I also used to get a lot of pain in my joints while I was sleeping... shoulders, hips... grrr... The tricky thing (if you have an autoimmune thyroid disorder) is that your levels...
  16. Mother of Jibril
    Congratulations on your improved health How careful are you being right now? I find it's not so hard to avoid products that "may contain traces of wheat" or have other questionable ingredients. When I go to restaurants I stick with plain foods like salad, fish, omelets, etc... and I avoid things that might have hidden gluten (dips, sauces) or be cross...
  17. Mother of Jibril
    Since you've been on the gluten-free diet for a year I don't think that's the answer. Definitely get your thyroid checked! It's also possible to gain weight if you're not eating enough (because your body thinks you're starving)... but it sounds like you have a healthy attitude about food. Do you have any of the other common signs of hypothyroidism? ...
  18. Mother of Jibril
    Hmm... I'm also taking Zyrtec on a daily basis. Here's what the company's website currently says: Open Original Shared Link Q. Do Zyrtec tablets contain lactose? A. Yes. However, Zyrtec Fastmelts are lactose-free. Q. Do Zyrtec tablets contain wheat or gluten? A. No. The tablets can therefore be taken by people with coeliac disease.
  19. Mother of Jibril
    Just to add a quick note... if you do use an epipen, the ER gives you a prescription for a new one before you leave. It's not like you're expected to have exactly one attack per year Incidentally, the way epinephrine works is by very rapidly constricting all your blood vessels... it wouldn't help at all with the symptoms of celiac disease. Like jerseyangel...
  20. Mother of Jibril
    My son was exactly like that. In addition to eczema, he was also vomiting and having green diarrhea with streaks of blood. The good news is that he was completely back to normal within a few weeks after I took dairy products out of my diet I'm not sure that allergy testing will do any good. Protocolitis is an IgG-mediated reaction, which makes it...
  21. Mother of Jibril
    Hi Jason, For a couple of months I was off gluten, corn, all dairy products, nuts, celery, all members of the celery family (carrots, parsnips, dill, fennel, etc...), legumes, and all foods processed with aspergillus (chocolate, fruit juice, black tea, citric acid, etc...). There was not a whole lot to eat I don't know if this will help you, but...
  22. Mother of Jibril
    Here's an abstract about the link between CU and Hashimoto's: Open Original Shared Link I totally agree with you... chronic illness SUCKS. Autoimmune disorders are hard to diagnose, hard to treat, and impossible to cure... which can leave you feeling like you're either a piggybank for the drug companies or a complete nut job You have to be really...
  23. Mother of Jibril
    If your thyroid levels are normal that's great! If you ever have another bout of chronic urticaria you might want to get yourself retested... Hashimoto's is very common in people with that disorder. I have read that some people are able to kickstart a "sluggish" thyroid by taking supplements, changing their diet etc... it's like reversing type II diabetes...
  24. Mother of Jibril
    It's great if you can measure both free T4 and free T3 (although a lot of doctors don't do it routinely)... Normal T4 + Normal T3 = truly normal (if you're still having problems it's probably not your thyroid) Normal/High T4 + Low T3 = conversion problem (in which case you could try Armour or a synthetic T3 medication like cytomel) Low T4 ...
  25. Mother of Jibril
    These symptoms are also associated with Hashimoto's disease (autoimmune hypothyroidism). Have you ever had your TSH checked? Without insurance it would cost about $50. I understand being frustrated with conventional doctors... I've had some very BAD experiences...but I'm not sure a naturopath will be able to help you if your thyroid is destroyed. The...
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