Jump to content

rosetapper23

Advanced Members
 View Profile  See their activity

  • Posts

    1,270

  • Joined

  • Last visited

  • Days Won

    5

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by rosetapper23

  1. rosetapper23
    This is just my personal opinion--drop the doctors and continue to eat gluten free (and dairy free if it helps you). It appears that you may have identified the principal culprit that is causing your symptoms. It doesn't matter if your condition has a name or not--you know now that you can't tolerate gluten. The doctors will continue to do tests and give...
  2. rosetapper23
    This question has been asked many times before, and the time from gluten exposure to DH symptoms seems to vary. Personally, I broke out within 30 minutes during the first three years after I went gluten free, but nowadays it can take a few hours or even overnight. I do know that the longer I go gluten free, the longer it takes to break out when I'm accidentally...
  3. rosetapper23
    Yes, I agree that your symptoms are consistent with DH. However, you might also be suffering from a zinc deficiency, so you might ask your doctor to test you for that (zinc deficiency can cause flaking of the scalp). If you are indeed deficient in zinc, be sure to buy the amino acid chelated form.
  4. rosetapper23
    I hope you do have an amazing time at Yosemite and the other sights you're planning to see. I think your trip is well planned--you'll have a great time!! I visited Italy about ten years ago before I knew I had celiac disease, but if I ever return (and I hope I do!), I'll contact you about safe places to visit. Thanks!
  5. rosetapper23
    Try removing all iodine from your daughter's diet--with DH, many of us need to do that. It takes BOTH gluten and iodine to cause DH is many cases (if not all), so eventually you can add the iodine back in. However, for me, I still break out in an odd rash that is chronic on my back from my thyroid medication, which contains iodine. Although this chronic...
  6. rosetapper23
    This topic has come up before (pain under the left ribs), and many of us have had it. I had it for three years before I found out I had celiac disease--and it worsened as the symptoms worsened. It took about two years to go away after I went gluten free (and I'm strictly gluten free--no fooling around there!). A doctor once told me that the small intestine...
  7. rosetapper23
    I live near San Francisco and have traveled through all of those areas in the past. You'll find varying degrees of understanding and knowledge with regard to celiac, depending on where you are. In the larger cities, like San Francisco and L.A., you'll have no trouble finding supermarkets and restaurants that have gluten-free food. Specialty stores like...
  8. rosetapper23
    Normally, a doctor would run a panel right away to see what nutritional deficiencies your daughter might have. I don't know why there would be any reluctance on the doctor's part in this regard. Since you're receiving no help from the doctor, here is a list of symptoms that can be exhibited based on various nutritional deficiencies--your daughter's symptoms...
  9. rosetapper23
    I just wanted to add that you are doing the right thing in feeding her only natural foods. In the beginning (and I'm talking at least six months), it's safer to eat only natural foods because even gluten-free processed foods can cause difficulties for some people. When I say "natural," though, I'm not saying that she has to eat everything plain--you'll...
  10. rosetapper23
    I agree wholeheartedly with ALL of Skylark's recommendations. I know that a year seems like it would be enough time to resolve all of your issues, but I was diagnosed at 47, and it took a full 18 months before I felt halfway okay. Even so, I still had some major issues, but they resolved after a doctor recommended that I take a product containing L-Glutamine...
  11. rosetapper23
    The article came out in one of the quarterly newsletters of the Gluten Intolerance Group of North America (www.gluten.net), and it would have been published between April 2006 and October 2006.
  12. rosetapper23
    Just want to mention that it's perfectly normal for hair to fall out several months after having a baby--it's very common.
  13. rosetapper23
    Yes, PCOS does also fit the symptoms--good luck!
  14. rosetapper23
    Here is a URL that lists the symptoms of nutrient deficiencies: Open Original Shared Link You'll see that numbness of limbs (paresthesia is the technical name) can be caused by calcium and/or phosphorus deficiencies. Also, dizziness can occur from deficiencies in B-2 and/or manganese. You might wish to ask your doctor to check these nutrients.
  15. rosetapper23
    Grrrr....I really don't like doctors sometimes. It sounds as though you may be experiencing damage to your villi. And, yes, it can get much worse. Why don't doctors "get" this?? Just from accidentally eating gluten a few years back, I lost the ability to absorb iron and had to receive it intravenously for two years afterward! Another accidental "glutening...
  16. rosetapper23
    From information I read about five years ago, women with celiac can have trouble absorbing female hormones if they eat gluten. That's one of the reasons we have trouble with infertility and miscarriages (which I had a strong history of). The article I read cautioned women with celiac who go gluten free to be vigilant about breast cancer because if a woman...
  17. rosetapper23
    Is there a way that you can change doctors? You should NOT have to go through a worthless endoscopy to prove that you can't tolerate gluten. It's a shame that you've had to harm your health by adding gluten back into your diet. The fact that your children have growth issues is reason enough (in my book) to do further testing. Shame on their doctor!! ...
  18. rosetapper23
    I think your doctor may, in fact, be missing a thyroid problem. The symptoms you're describing are very much the ones that I experience when I take too much thyroid medication, making me hyperthyroid. Joint and muscle pain in all joints, along with fatigue, weightloss, and frequent bowel movements, are the presenting symptoms for me when this happens. ...
  19. rosetapper23
    I can only address symmetry. I think very few studies (if any) have been done on DH, so this assumption that it has to be symmetrical is not accurate. For my adult son and me, we both break out on our faces (jaw, chin, and down the sides of the neck). However, I also break out on the sole of my RIGHT foot and on my LEFT hand. My son, on the other hand...
  20. rosetapper23
    By cutting out BOTH gluten and iodine, my DH cleared up in about a week. Of course, it took about a year for the scars to fade away...but I had no new lesions after eliminating both gluten and iodine. I know that everyone heals at a different rate, though. However, if I ingest even the smallest particle of gluten, I get a few lesions immediately.
  21. rosetapper23
    Thank goodness you have a great neurologist! At a conference I attended last June, I learned that celiac is now considered a neurological disease and that gluten acts like a neurotoxin on the brains of people with celiac. It can cause memory disorders, learning disorders, seizures, neuropathy, ADHD, depression, and even schizophrenia. Gluten reduces the...
  22. rosetapper23
    Ditto to all of the above--I was also going to suggest no processed foods and definitely NO soy. Many celiacs cannot tolerate soy.
  23. rosetapper23
    As we each know, when we get glutened, we can sometimes end up with nutritional deficiencies caused by destruction of a part of our intestinal lining. Some of us have symptoms that have never resolved even on a gluten-free diet. In my search for information on the symptoms of nutritional deficiencies (so that I could perhaps find explanations for some symptoms...
  24. rosetapper23
    My mother and her brother, my sister's daughter, and both of my kids have it. We also suspect that my brother's kids have it.
  25. rosetapper23
    With regard to ALL shared toys, your son should just be careful not to put his fingers into his mouth and to wash his hands thoroughly after he's done playing with them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.