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rosetapper23

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by rosetapper23

  1. rosetapper23
    Since you describe the sores as being like cold sores, which are caused by the herpes virus, and the skin condition associated with celiac is called Dermatitis Herpetiformis ("herpes-like"), you may very well have DH. Many of us with celiac do. If you want to ensure that you NEVER get another one of those sores again, try eliminating iodine along with gluten...
  2. rosetapper23
    My guess is that the soup also contained iodized salt. Between the gluten in the noodles and the iodine in the salt, you experienced Dermatitis Herpetiformis, which many of us with celiac have. People with this condition usually have to ingest BOTH gluten and iodine to have a skin reaction. Since you indicated that you once ate gluten free but have only...
  3. rosetapper23
    I'm a fan of Udi's white sandwich bread and whole grain bread, and you can find it in the frozen food section of Whole Foods and many chain supermarkets (some Safeways, Raley's, Nob Hill, Ralph's, etc.). I've found that the best way to keep it fluffy for making cold sandwiches is to place several slices in a plastic sandwich bag. The warmth of the outside...
  4. rosetapper23
    You get DH exactly where I do, and it's so distressing to have blisters covering one's face. I agree that your cramps and trips to the bathroom were caused by eating gluten. Once we remove gluten from our systems, we tend to get very sensitive to accidental ingestions of it. When I eat gluten, I have trouble sleeping and I wake up with my eyes puffy, my...
  5. rosetapper23
    Two things to add to this discussion: 1. You might consider taking L-Glutamine to heal your gut. Many of us use this supplement when we need to heal. 2. Since you're having trouble getting insurance, if you get a celiac diagnosis, you might NEVER get insurance again. Perhaps it would be best in your case to forgo an official diagnosis. Okay,...
  6. rosetapper23
    I flew on Qantas from LA to Sydney and back last September, and I had expected a wonderful gluten-free meal. However, while the other passengers got to eat ice cream and creme brule (which I probably could have eaten), I received those dry rice cakes referred to above. The meal itself was so awful, I refused to eat it, but the meals served to the regular...
  7. rosetapper23
    You might try taking L-Glutamine, which heals the gut. It ended years of D for me.
  8. rosetapper23
    In households where "regular" foods are appreciated because not everyone has celiac, here is a list that many of us use (it lists all the processed foods that are gluten free at regular supermarkets): Open Original Shared Link You'll see that this is a lengthy list--I printed mine out so that I can refer to it when I'm at the store. The list also includes...
  9. rosetapper23
    I'm sorry--I've never heard of rooster sauce. Are you referring to Worcestershire Sauce (since it's pronounced wooster-sher)? If you could describe the sauce further, I'm sure that more people with jump in with responses. As with all products, though, you should check directly with the company to make sure that it is indeed gluten free. By the way...
  10. rosetapper23
    I don't know if what you have is DH, but be aware that it can be found anywhere on the body. I believe that so few studies have been done on this condition, the medical literature is completely wrong when it identifies the "only" places where DH develops. My DH, when I have a recurrence, is always on my face, neck, sole of my right foot, and left hand ...
  11. rosetapper23
    The advice about iodine is right on! When I was 34, I figured out that the DH was caused by iodine--I didn't yet know about the gluten connection. By eliminating iodine in my diet, the DH was kept completely under control. Thirteen years later when I was disgnosed with celiac disease, I still didn't make the connection, but when I read the book, "Celiac...
  12. rosetapper23
    I'm not sure what you mean by a whole foods diet, but I would imagine that dairy products would be part of any such diet. Not all of us are intolerant of dairy. Mainly, I think that the idea is to avoid processed foods.
  13. rosetapper23
    You might try removing soy and iodine from your diet--many people with celiac (and you may have celiac) can't tolerate one or the other. Also, it sounds as though you may be deficient in some vitamins and minerals, which could be causing some of your symptoms. Since you worried about MS, symptoms of that disease can be caused by either low B vitamins and...
  14. rosetapper23
    With regard to Dorito's, I know that Lay's website lists all of the gluten-free varieties of chips--most of their chips ARE gluten free. You'll need to check their site to see if all flavors of Doritos are gluten-free (or if ANY of them are). As for Rice Krispies, it's my understanding that the cereal and their treats all contain gluten (because of barley...
  15. rosetapper23
    This might seem like an off-the-wall comment, but I noticed that you mentioned iron anemia. Is it being treated with oral iron? If so, did you recently change the brand? I only mention this because when I was trying to overcome the anemia I'd had since age 11 when my celiac was triggered (though, I didn't get diagnosed 'til I was 47), I tried a brand that...
  16. rosetapper23
    If you're feeling ill, it may have been the mashed potatoes. I've never been to that particular restaurant, but when I go to any restaurant, I always ask if they put flour in the mashed potatoes. I know--that sounds weird, but about 50% of the time I'm told by the chef that they do, indeed, add flour to their mashers. I like PF Chang's, Tahoe Joe's,...
  17. rosetapper23
    This article reminded me of how much I enjoy visiting Disneyland parks. The last time I visited and discovered that all the restaurants offered gluten-free meals (hotdog and hamburger buns, pizza, bread, and pasta), I wanted to move into the Disneyland Hotel and live there forever!
  18. rosetapper23
    My advice is simple: since cost is an issue, drop the nutritionist and buy wholesome food that will make you healthier. IMHO, the only gut-healing supplements necessary for better health are L-glutamine and probiotics. As long as you take a good liquid vitamin and any specific vitamins or minerals in which you're highly deficient, those two supplements...
  19. rosetapper23
    Evelyn, I suffered from RA before I went gluten free. In fact, doctors believed I had juvenile RA as a child because of the amount of pain in my joints. I think it was probably due to the fact that I was born with Rickets and because I had undiagnosed celiac disease that caused pain in my bones, muscles, tendons, ligaments, and joints. I ended up having...
  20. rosetapper23
    Well, well....this is an improvement! Chevy's is the only restaurant that has ever invited me "to eat elsewhere." Yes, they suggested that I leave because they felt they couldn't accommodate my gluten-free diet. I actually cried....I felt so devalued. I've never set foot in another Chevy's since then. However, I'll check out the menu and see what's...
  21. rosetapper23
    Thankfully, many of my relatives also have celiac (including my mom), so family members are well versed in serving gluten-free meals. I even let a few, select friends cook for me (VERY short list). However, if anyone else invites me to lunch or dinner, I always respond, "I'm sorry, but I can't eat at other people's homes because I have celiac disease and...
  22. rosetapper23
    I recently read an article that said that iron anemia can also cause peripheral neuropathy because of lack of oxygen to the cells. Could that be a possibility? I've had peripheral neuropathy since I was 15 from celiac and it worsened during chemo when I was 50, but it's a lot better now--still there, but better.
  23. rosetapper23
    Whenever I make gluten-free chocolate chip cookies, they're a hit with everyone--even people who don't have celiac. I'm constantly asked for my recipe, though I always tell people that the special flour and xanthan gum make it too expensive for "normal" folks to want to make it. Anyway, I use the regular Tollhouse recipe, but I use Bob's Red Mill Gluten...
  24. rosetapper23
    Back when I used to menstruate (chemo put a halt to that four years ago) and before I knew I had celiac, I had the weirdest periods ever! I used to get them every other month for a few years, even though I was on the pill. When I lived in Europe, they came nightly from 9:00 p.m. to 9:00 a.m. and disappeared during the day for three months until I returned...
  25. rosetapper23
    For all you soy haters out there (and I'm one of them!), I'm hoping that you've noticed that soy is in almost all mayos and cans of tuna fish. I now eat Smart Balance mayo and only tuna from Whole Foods or Trader Joe's. Because our country has an excess amount of soybean oil to get rid of, they're putting it in everything!
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