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rosetapper23

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by rosetapper23

  1. rosetapper23
    Okay, I'm going to take a stab at this. First, no, I don't think that the steroids are causing you to feel fewer symptoms, since they're anabolic steroids and not a steroid like prednisone, which "might" alleviate an autoimmune response. My guess is that the pizza you ate had a crust that was made of a sourdough base. I read an article last year that scientifically...
  2. rosetapper23
    Looking at your list of symptoms, I notice several that I had a particularly hard time with--especially the paresthesia, muscle pain, and bruising. You should definitely get your B12 checked if it wasn't, because it can be responsible for paresthesia, numbness, and tingling in your feet and hands. As for the muscle pain and bruising, I'm sure many people...
  3. rosetapper23
    I have one important rule: Never, never, NEVER eat at other people's homes unless they have a dedicated gluten-free kitchen. I say the same thing about potlucks and picnics. I simply bring my own food to everything and explain (apologize) in advance to the hostess or host. Sometimes I feel as though people's feelings are somewhat hurt, but that's not...
  4. rosetapper23
    I think the 1:33 study and the others I've read were based solely on blood tests....but I agree that there are many, many people with gluten sensitivity.
  5. rosetapper23
    I believe that one of the reasons for the varying figures is that different populations have been tested for each study. I believe that the 1:133 figure resulted from the grant-funded study that Alessio Fasano did a number of years back that convinced the medical establishment in the U.S. that celiac is common here. That's the largest study that has been...
  6. rosetapper23
    When I was diagnosed, I knew immediately that my mother and son also had the same condition because they'd both exhibited the same symptoms for years. My son tested positive and has been gluten free ever since. My mother told me that she didn't know what I was talking about and claimed that she hadn't had any of the symptoms that she'd complained about...
  7. rosetapper23
    I just read a study that as many as 4% of adults have it.
  8. rosetapper23
    My gosh, you sound like a walking advertisement for celiac and Dermatitis Herpetiformis (DH)! Have you read some of the postings in the DH forum yet? There may be some threads on how people treat the itching until the rash eventually goes away after going gluten free. You should know, too, that iodine can also exacerbate DH, so you should eliminate iodized...
  9. rosetapper23
    You go, girl! Please let us know how your tests turn out...
  10. rosetapper23
    Here's the site for Against the Grain: Open Original Shared Link They have a store locator.
  11. rosetapper23
    Shayre, Where do you live? Here in the San Francisco Bay Area, there's a gluten-free bakery called Mariposa (perhaps they ship?) that sells excellent baguettes. Also, others on this Forum have mentioned that Against the Grain has great baguettes, too, but I don't believe they're yet in stores West of the Rockies. Could be wrong on that--the company...
  12. rosetapper23
    Trader Joe's has a boxed gluten-free mac and cheese that tastes identical to the Kraft Dinner type that has gluten in it. Until I found this brand, I thought all of the others were absolutely awful.
  13. rosetapper23
    Ahhh....I love hearing that positive attitude. You're going to be one of the success stories...
  14. rosetapper23
    Unfortunately, the journey is different for all of us. It took 18 months on a VERY strict gluten-free diet for me to feel "better." However, cross-contamination occurred from time to time, which caused me to have to receive intravenous iron on a weekly basis (which I have since overcome), receive B12 shots (still getting), and suffer numerous setbacks ...
  15. rosetapper23
    Yes...what GlutenFreeManna said.
  16. rosetapper23
    The next time you visit S.F., another great spot to eat is a little diner called Pica Pica at Valencia and 15th. What's especially outstanding about it (besides the great-tasting food) is that it is an entirely gluten-free establishment, including gluten-free beers. I've eaten there several times, and it's a very safe feeling to know that there will be...
  17. rosetapper23
    In my family, my maternal grandmother's father and all four of his brothers died of intestinal cancer. My maternal grandmother had many symptoms of celiac, but I didn't know anything about it back when she was alive. I do know that I, my mother, one of her brothers, one of her sisters, my son, my daughter, one niece, and one nephew have it. That's pretty...
  18. rosetapper23
    I also vote for the mayo as being the culprit. Soy in mayo is vicious!! I use Smart Balance now, but I skipped eating mayo for years because of the soy. Since you mentioned just getting a cat, have you checked to see if the cat food you're buying contains gluten? Is there any possibility that you are hyper-sensitive to gluten?
  19. rosetapper23
    Oftentimes, dairy, soy, oats, and corn are eliminated when a person first starts a gluten-free diet, because many people with celiac react badly to them. After three months, you can start adding them back into your son's diet one by one to see if he has any reaction to them. Since he has also suffered from rashes, which might be Dermatitis Herpetiformis...
  20. rosetapper23
    I would like to reiterate that iodine needs to be avoided. It is oftentimes found in dairy (except organic), seafood, iodized salt, asparagus, and chips/french fries. I totally understand the mother-in-law problem. My brother's son obviously has celiac (I, my mother, uncle, aunt, son, daughter, niece, and numerous cousins have it), and his symptoms are...
  21. rosetapper23
    One of the hallmarks of celiac is that symptoms can wax and wane throughout one's ilfetime. There were periods in my life when I felt almost completely well. You might be reacting to more than just gluten, and many people go on an elimination diet that eliminates gluten, dairy, soy, and sometimes corn. I'm sure others will chime in with additional advice...
  22. rosetapper23
    I used to suffer from migraines terribly before I went gluten free, and my hormones also played a large part. I also got auras, but they were the flashing lights type, and I also saw blank holes in my vision. However, I did have one or two ocular migraines which don't come with migraine pain. Instead, it looked like a thick, wavy, colored light across...
  23. rosetapper23
    While I haven't had the extent of the blurry vision that you appear to have, I've had eyes that seemed dry and blurry so that reading was difficult and painful. It turned out to be a zinc deficiency in my case. However, in your case, I'm a bit worried about the hair coloring. I wonder what's going on...
  24. rosetapper23
    I tend to get esophageal spasms from time to time, and the pain is in the center of the chest--very intense. I've never linked them to celiac, but the last time I had one, it was about an hour after I ate at a restaurant...and soon I felt as though I'd been glutened.
  25. rosetapper23
    Re IrishHeart's last posting: "5. If you tell your family that it is genetic and you try to educate them, be prepared to be scoffed at--or worse, ignored. Just know, you tried your best to spare them the misery. Then, let it go." Gee, and here I've been beating them with a stick like a pinata until the gluten all falls out!!
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