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rosetapper23

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by rosetapper23

  1. rosetapper23
    No, sorry, Sam--I should have made that more obvious. Please let us know how your tests turn out, okay?
  2. rosetapper23
    I was overweight for years, and then recently I read, "Primal Body, Primal Mind," which changed my whole understanding of nutrition. The weight has been melting off during the past six weeks, and I'm never hungry and or feel deprived. My tummy is completely gone now! This particular diet is great for people with celiac because it eliminates all grains...
  3. rosetapper23
    Let the healing begin...it sounds as though you're on the right path. And, believe me, it gets easier.
  4. rosetapper23
    I would say that you are like many of us who suffer from DH--you simply CANNOT tolerate iodine. Now that you've seen the result of iodine ingestion, you'll need to try everything you can to eliminate any and all iodine in your diet. This may be why the blisters have not disappeared after six weeks of being gluten free. Don't eat seafood, iodized salt,...
  5. rosetapper23
    Some brands of magnesium cause diarrhea and some don't. A good healthfood store clerk can help select a brand that doesn't cause diarrhea if it turns out that you need to take a magnesium supplement in the future. Nature's Way Magnesium Complex and Blue Bonnet liquid magnesium are both good products that don't cause diarrhea. A healthfood store clerk...
  6. rosetapper23
    That's great news!
  7. rosetapper23
    Just want to add that while you're trying to get the DH to go away, you should avoid ALL salty gluten-free processed foods because the packages never say whether or not a product's salt contains iodine. That's true here in the U.S., and it may be true there. I'm sure you'll be able to find non-iodized regular salt for your cooking needs, though. Iodine...
  8. rosetapper23
    Ditto on the advice about iodine! For many of us, it takes BOTH gluten and iodine to cause the blisters. Iodine can be found in seafood, iodized salt (and salty snacks), asparagus, and some dairy. I've had good luck with organic dairy products. Remember, too, that you should be using a gluten-free shampoo (Desert Essence Organics and EO are good gluten...
  9. rosetapper23
    To be honest, when first going gluten free, it's best not to purchase processed foods of any kind so that there's less of a chance of being glutened. Oftentimes, newly diagnosed celiacs run out right away to purchase gluten-free substitutes for their favorite processed foods when it is much better to buy only natural ingredients. This DOES require preparing...
  10. rosetapper23
    I don't know about the hotwings--what are the ingredients? I'm sure you can find a gluten-free recipe somewhere on this site for hotwings. As for what to eat, generally it's best to eat natural foods for a while so that you can avoid cross-contamination. That means meat, fruit, vegetables, potatoes, rice, dairy, and nuts. Be careful with the dairy-...
  11. rosetapper23
    All I can think of is that the glass wasn't washed thoroughly enough or the person who served your drink had just touched gluten. Cross-contamination is common with glassware in restaurants.
  12. rosetapper23
    My guess is that your baby will be just fine. If you were to gluten yourself on an ongoing basis, that might have an effect, but it sounds as though you're being extremely careful. My mother's celiac was triggered when she was five months' pregnant with me and had to have an emergency appendectomy. The result was that I was born with Ricketts because she...
  13. rosetapper23
    Sam81, You'll be lucky to find any literature stating that iodine and gluten cause DH. The only place I've ever read about the connection is in Dr. Peter Green's book "Celiac Disease: The Hidden Epidemic." I don't believe there have been any studies on this--DH appears to attract no attention from researchers. It is still such a new type of diagnosis...
  14. rosetapper23
    They might be esophageal spasms, but I get those after I've eaten gluten...so that might be the culprit for you, too. I don't have much regard for doctors, and celiac is usually too much of a challenge for them. You might try going gluten free to see if your symptoms resolve. They sound like typical celiac symptoms to me; however, they are also symptoms...
  15. rosetapper23
    Welcome, CRash! Your story is one that is told here on a daily basis. Isn't it wonderful to finally know "the answer"? It sounds as though you're on the road to recovery and will have your life back shortly. What great news!! You'll find that eating natural foods, rather than gluten-free substitutes, will help you heal faster and allow for less gluten...
  16. rosetapper23
    Domesticactivist gave you some GREAT advice! I especially would like to follow up on her advice regarding the crockpot. That would be the easiest way to go for you. Cooking in a crockpot is extremely easy, and there are tons of recipes on the Web. All you do is throw in meat or beans, vegetables, potatoes, and a few spices....and then go to work, come...
  17. rosetapper23
    I hope you don't mind if I imply that your doctor is an idiot....but I'm afraid he's got to go! He clearly does NOT understand celiac disease or dermatitis herpetiformis. With all of your symptoms you're experiencing, you should have been referred to a gastroenterologist and dermatologist immediately. If your dermatologist decides to do a biopsy of your...
  18. rosetapper23
    Your story reminds of the time (many years ago) when I was in the McD's drive-through to pick up a milkshake for my daughter. When I got to the window to pay, I was told that the cash register wasn't working. She told me how much I owed, and I gave her a five. After a moment of frowning, she turned to me holding several dollar bills and a fistful of change...
  19. rosetapper23
    Congratulations! You deserve your good health! Thanks for sharing...
  20. rosetapper23
    Carl's Jr., Burger King, and In-and-Out Burger tend to do a nice job with preparing their burgers gluten free in lettuce wraps. Explain how sensitive you are to the manager, and they will usually take extra care. When I've gone to Carl's Jr. (which is rare--I usually only stop at a fast food restaurant on a long car ride), the manager always prepares it...
  21. rosetapper23
    I'm glad you're making connections between things you eat and how your body reacts to them. One thing I didn't mention is that many of us with DH are also sensitive to touching gluten. Now, don't bother to do a search on this on the Web, because you'll find no studies on it or any medical information mentioning this. However, many people on this Forum...
  22. rosetapper23
    Do you kiss anyone who wears lipstick or chapstick? Or the cheek of someone who wears makeup or lotions? Are you using a shampoo that isn't gluten free? Just a few possibilities....
  23. rosetapper23
    Are you still using shampoos or lipsticks/chapsticks with gluten in them? Are you eating frozen hashbrowns? (Some companies use flour in their packaging to keep the hashbrowns from sticking.) Are you using a dedicated toaster for toasting your gluten-free bread? Are you certain that no one is using your condiments (peanut butter, butter, jam, mayo, etc...
  24. rosetapper23
    You are a walking poster child for someone with celiac and dermatitis herpetiformis! Even if the tests come back negative (very common for people with this type of celiac--you can read this in Dr. Green's book, "Celiac Disease: The Hidden Epidemic"), PLEASE continue to eat gluten free and also eliminate iodine from your diet. It usually takes BOTH gluten...
  25. rosetapper23
    Oftentimes when someone first goes gluten-free, it's tempting to buy gluten-free substitutes of those foods you're most accustomed to eating. However, it is MUCH better to simply eat all-natural foods that don't contain gluten while you are trying to heal. Many of us never return to eating processed foods because we get used to eating natural foods. Believe...
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