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rosetapper23

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by rosetapper23

  1. rosetapper23
    I'm so glad that you're going to start taking the supplements! You should start feeling better soon if your malabsorption isn't too bad. Regarding the sores on your fingers, DH does both itch and hurt. That's where the "herpetiformis" part of its name comes from--it is herpes-like (though, not related to herpes) in that it is painful the way herpes lesions...
  2. rosetapper23
    Mike, One more thing--you mentioned that you're at the end of your Afghan tour; however, will you be in the service much longer? My understanding (and if anyone knows that this has changed, please jump in) is that celiacs may not serve in the military...and they are honorably discharged. If this is something that you DON'T want, you may wish to seek...
  3. rosetapper23
    Every single one of your symptoms correlates to celiac....though, of course, you may have some other autoimmune disease. However, I believe that your mouth sores may be stomatitis and the "sores" on your fingers could be Dermatitis Herpetiformis, which only people with celiac have. If you look at the list of forums on the Forum Home Page, scroll down and...
  4. rosetapper23
    Sounds like a possible thyroid problem to me--fatigue and feeling cold or hot are the most common symptoms. This is something that many celiacs end up suffering from. I developed it myself after being gluten free for three years. It's easy to treat....and it just takes a blood test.
  5. rosetapper23
    I know that I mentioned this possibility above....but it bears repeating. With regard to the brain fog, it can also be caused by malabsorption of certain vitamins, most notably Vitamin B12 and Folic Acid. These can easily be checked by your doctor there (I assume?). If not, ask if you can be given sublingual Vitamin B12 tablets to suck on. If Vitamin...
  6. rosetapper23
    This is a difficult question. To have celiac, you must have the genes AND a triggering event. I can only say that if your child has a triggering event, he MAY end up with celiac. However, at his very young age, he probably does not have celiac now. What are the chances? Sorry, that's unknown.
  7. rosetapper23
    My daughter's poop was well formed and usually some variation of brown--not grainy or runny at all. Now, my son, who was diagnosed with celiac at age 16, had poops that were, well, let's say they were somewhat explosive. He would fill his diaper with mushy, somewhat green-colored or black-colored runny stools. His stools were never solid or well formed...
  8. rosetapper23
    I can't help you with regard to the unsupportive husband, but I can help you with eating gluten free. Many people feel that they need to have gluten-free substitutes for all of their favorite foods--you know, the foods that make them sick. It's much easier to eat natural whole foods than to buy gluten-free processed foods, frozen foods, and special breads...
  9. rosetapper23
    The BJ's that I've been to (two of them)were huge and had originally been other restaurants previously....and I didn't notice any specific mural. What does it depict?
  10. rosetapper23
    Best gluten-free pizza around! I've never been glutened there either.
  11. rosetapper23
    I personally have met many celiacs....and MANY of them had DH. I have seen it be the norm rather than the exception. I recall reading how only 1% of celiacs had DH, and I just couldn't believe that figure. In my family alone, I, my uncle, and my son have DH. Of the four people at my place of employment, two out of the four celiacs have DH. I believe...
  12. rosetapper23
    Aw, Beebs, you KNOW you're one of us....
  13. rosetapper23
    Thank you, Takala--wise words, for sure! Dr. Fasano will always have our backs....and he is a decent doctor who cares for everyone with gluten issues.
  14. rosetapper23
    Don't feel bad about telling us how you feel--we've all been there at one time or another. It's very hard at first to remember all of the necessary precautions that have to be taken. Many of us mark our own peanut butter and jam jars as well as mayo and other condiments. Actually, for ketchup and mustard, the squeeze bottles are great. Mayo squeeze bottles...
  15. rosetapper23
    Dr. Fasano has been saying these things at conferences for at least 2-1/2 years. I heard him speak at Stanford University in June 2009 (and a number of times previously), and it was the first time I'd heard him say that a biopsy wasn't essential. I totally agreed with him then, and I still do. The other presenters--all old men who were very set in their...
  16. rosetapper23
    Yes, until I went gluten free, the only places I got DH were my face and neck; however, AFTER going gluten free, whenever I got glutened, usually only my hand and foot ended up with a DH blister or two. Bizarre mystery, for sure--but, hey, there are TWO of us who suffer from it...and I'll bet there are more.
  17. rosetapper23
    Some people with celiac suffer from Aphthous Stomatitis, which simply means canker sores; however, my daughter's "canker sores" were classified by her dentist as something other than canker sores and more like the result of an immune system disorder. Uh, perhaps celiac? I hypothesize that they're actually Dermatitis Herpetiformis blisters inside the mouth...
  18. rosetapper23
    Please double-check that you'r taking the Floradix that is gluten free. There are two versions of this iron supplement, and one of them has wheat grass in it.
  19. rosetapper23
    When I get glutened, I usually get only one blister on the sole of my right foot and another blister on my left palm. I know they're DH because I used to get them all over my face and neck; however, for some reason, I only get one blister in each of those spots when I've been glutened, and sometimes I'll get one or two on my face or neck, too. And, yes...
  20. rosetapper23
    I can recommend, "Celiac Disease: The Hidden Epidemic," by Dr. Peter Green. He speaks in laymen's terms, and his book contains a lengthy list of what you cannot eat. Remember--natural foods at first are best because you need the good nutrition to help you recover your health....so that means meats, eggs, dairy, nuts, vegetables, and fruits are all just...
  21. rosetapper23
    I agree with everything GlutenFreeManna said--you should definitely get an iron IV. With a ferritin (I assume it's ferritin) level so low, you're endangering your health. The low reading also indicates that you're not absorbing iron in your gut--take molasses and supplemental iron will do nothing for your condition. The doctor is correct--you need an iron...
  22. rosetapper23
    Yes, I agree that people with celiac generally do not absorb gluten through their skin, but people with DH can oftentimes have a different experience; however, even though it is a disease related to celiac, it is, in fact, a separate disease. I'm one of those persons who cannot even touch gluten without getting covered with an itchy rash. Last week, a co...
  23. rosetapper23
    I used to have the bra strap reaction, too, but I found out that I was super-sensitive to nylon. I have dermatographia (not sure of the spelling on that), so my skin does poorly with any pressure on it...but nylon made me suffer big time. Just a suggestion--you might try switching to a cotton or microfiber bra to see if you react less.
  24. rosetapper23
    First, yes, your husband will need to brush his teeth and tongue after eating gluten. However, if you decide to maintain a gluten-free household (which many of us here would support that you do), that won't be an issue in the home. You'd just have to be careful when your husband has eat something with gluten when he's on his own. By the way, there are...
  25. rosetapper23
    You may be reacting to some or all grains at this time. It's not uncommon to have what is called cross-reactivity, which occurs when the body misidentifies the grains or dairy that you eat as being gluten. Drs. Peterson, who wrote "The Gluten Effect," say that you should remove all grains and dairy for three months and then begin reintroducing them into...
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